Guest NowakowDA Posted June 4, 2004 Share Posted June 4, 2004 My name is Don. I am 53 years old. I was 52 untill the 31st of May then I got older. I've been lurking in the backround of this web site for the past two weeks. I finally decided to sign up. I'm a computer tech by training. (A+ cert and N+ cert). Well! This has been a very strange fourteen days. I found out today that my mother has lung cancer. The doctor said she has NSCLC in the upper lobe of her right lung. He said it has not spread and there appears to be "some" node involvment. My mother is almost 79. June 27th is her birthday. We live in Albuquerque, New Mexico. My mother worked for AAFES (Army and Airforce Exchange Service) off and on for the past thirty years. She finally retired in 2001 at the age of 76. This all started back on May 22nd. Mom (who's been living with me for the past several years) got hungrey so I opened up a large can of Campbell's Chunky soup and we had breakfast. I went out to do some work in the yard. When I cam back in the house. I found Mom standing in the doorway between her bedroom and bathroom crying!. She said that she could not remember how to close the bathroom door. At First, I thought she was having a stroke. I got her to bed and covered her up. Latter she tried to get up but she was week that I had to help her stand and lead her to the bathroom. Then, the feaver hit. It reached 100.8 and stayed their. About 5:30 in the evening, I convinced her it was time to go to the hospital. Got her in the car and got her to the emergency room. At first, they thought she had a bladder or kidney infection. After several tests they ruled this out. They decided to do an x-ray, thinking sh had pneumonia. That's when my world took a dive. The doctor said she had an abnormality on her right lung and they wanted to do a CT scan. So. about 12:30 Sundat morning the did the CT scan. They told me she had a mass on her right lung. They kept her in the hospital overnight for observation. They gave her saling in an Iv to get some fluid back into her body. She had some infection in her lung so they gave her Levaquin to try and clear it up. Sunday morning, they released her from the hospital with perscriptions for oxygen (2ltrs for 2 months) and 500mgs tablets of Levaquin. The doctor said he would amke an appointment with a pulminary specialist for her. On Thursday, May 27th I took her to see the pulminary doctor. He told her that he wanted to do a Bronchoscopy and get some tissue for a biopsy. He asked her if she was free tomorrow Friday the 28th. He did the procedure that Friday. We had to wait until today to find out the results. Mom has cancer. He said that she has a Non Small Cell Lung Cancer in the upper lobe of her right lung. He wouldn't of couldn't tell me what stage it was. He couldn't or wouldn't tell me what type of Non Small Cell Lung Cancer she had. He did say that the cancer has "not" spread out of her lung. He said that she has some lymph node involvement, but not the upper nodes around her neck. Exactly which nodes and how many are involved her didn't or couldn't say. They haven't done a biopsy on her lymph nodes. When I asked what they could do for treatment he said that radiation would probably be the best bet. He said that the treatment would have to be handled by a cancer specialist. When I asked about surgery, all he did was shake his head. He couldn't or wouldn't give me a reason why they could not do surgery. He told Mom that if untreated she would have from six months to a year. If the cancer was treated the prognosis would be open ended. He said that the radiation would "not" kill the tumor. but it would shrink it. The pulminary specialist tried to find a cancer specialist that would take Mom as a patient. The first docter said she was not taking any new patients right now. The second doctor said it would be a month before he could see a new patient. After waiting for about an hour they told us to go home and they would call us when they got Mom an appointment with a cancer specialist. I was totally pissed off to say the least! When I got home there was a message from Mom's primarry care provider at the UNM (University of New Mexico) Family Helath Clinic. I had sent him an e-mail yesterday (June 2nd) explaining what had happened to Mom during the past ten days. When He called back I told him what had happened at the pulminary specialist's office today. I told him that they had given her Levaquin to try and clear up the infection in her chest. The pulminary specialist said the infection was caused by the tumor partialy blocking one her airways. Her primary care specialist asked if they tried to relieve that blockage when they did the Bronchoscopy. I told him all they did was take a biopsy. At this point her primary care provider (Michael Servilla) asked me if Mom would mind going to the UNM Cancer Center. He said he would talk to a chest surgeon at the Caner Center to see if he could get an appointment. Michael called back within the hour and told me he had made Mom an appointment for June 10th, next Thursday with a surgeon who specializes in pulminary cancer. It took Michael one hour to get Mom an appointment at the University Cancer Center. I still haven't heard from the pulminary specialist. Michael said that the doctor at the Cancer Center wants to see Mom's CT scan, lung X-ray and the slides of the tissue taken during the Bronchoscopy. They want the view the tests results for themselves. The UNM Cancer Center is run the University of New Mexico Hospital. The pulminary specialist works for Presbyterian Hospital. Two seperate and "competing" hospitals. So tomorrow, I will go and see if I can get the X-ray, CT scan and tissues slide from Presbyterian Hospital and take them to the UNM Cancer Center. The only sign that Mom has cancer is the CT scan an x-ray showing the mass. She does not have any pain. She can breath deeply. She can hold her breath and breath rapdily without pain. She has no swelling or tenderness in his back shoulders, stomach or sides. She can lift her arms over her head and there is no swelling in her legs. She has lost a little weight (about five pounds) but her primary care provider said that this is nothing to worry over. It could be because I've been cooking her meals for her. I think he was trying to insult my cooking? She gets tired and needs to rest. The pulminary specialist who did the bronc said the the mass looked raw and inflamed. He said it would bleed a little if he pressed it with the scope. Mom trusts her primary care provider and wants to go the UNM Cancer Center. So that's where I'll take her. What happens next? I have no idea, but it's going to be a rough road. Quote Link to comment Share on other sites More sharing options...
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