IIIp0 Posted June 9, 2004 Share Posted June 9, 2004 Hello everyone. I know I've been remiss in writing for a while now, [and our 17 yo is a counselor away at camp you'd think I'd have more time!]; but my time has been chewed up literally between taking care of my husband [if I don't remind him he doesn't EAT~]; getting meds; and trouble-shooting side effects with pharmacists and doctors~ He is into week two of whole brain radiation and spinal. The good news is that thank God, he is pretty much off the every-two-hour 3-6 oxycodones he was taking so I guess that means radiation is working in his spine at least~ Thank you God. The pain was just awful for him there for a while. Course, the flipside is that even with all of the ensure, the ice cream, the whatever-I-can-Get-Him-to-eat stuff - he's still loosing weight~ And the radiation just wipes him out in a big way. He is still working half days [as of today~] and I think he sees enough now himself that there just ain't no way he can work full time. If we have radiation at 7:30 am. by noon he's had it. And I'm pretty sure that he will be seeking disability in the immediate future. It is just becoming toooo tiring, tooo taxing mentally, just too exhaustive to try to work and take care of himself too. I've no idea what that means for me just yet and my full time job but hey ya know? This is the way I look at life these days -- I am convinced beyond a doubt that [my] God didn't bring me this far to leave me now, ya know what I mean???? And I ain't sweatin it. So for now it's eight more radiation treatments and we'll take another look at finishing our regimen of chemo and THEN new tests~ Any thoughts out there on weight loss in the face of eating food Oh, and, swelling of his feet and ankles? I'm concerned about CHF but the doctors aren't -- these guys seem to be such pro's, they're hardly concerned about anything~ [sorry]..... I'm sure some of you can relate. That's my story, that's where we are today and I am praying for our tomorrows. Big hugs to you all - Beth ============================================ Husband diagnosed 12/03 w/Stage 4 SCLC mets to spine/liver/bones/and now brain. Had to get off Taxol-carbo because of neuropathy; switched to CPT-11. Cat scan from back pain showed single lesion in brain. Started whole brain and spine radiation 6/2 for three weeks. ------------------------------- Mine is the prayer fo Surrender~ because I am Powerless. Quote Link to comment Share on other sites More sharing options...
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