tess Posted June 12, 2004 Share Posted June 12, 2004 Well, I hate to have to tell you all about Rob's CT Scan and bone scan. We had to wait for the Dr about 50 minutes. This was the first time we ever waited more than 15 minutes. We were waiting for two months, so whats one more hour I guess. So, she told us that the Gemzar Navelbine was not working at all. It sure made him sick though. Rob now has multiple tumors in both lungs,( more besides the ones already there) the ones that were originally there last time have grown. This explains why he can't lie down to sleep.. He feels like he can't get a good breath. and he said its like having a weight on his chest all the time. So we are taking the sectional center piece out of the couch, putting the two ends together, and I will sleep on one side, and he can be in the recliner, so we can at least sleep by each other. Then the bone scan. We could not believe the results from that! There is a spot on his left shoulder, which explains why it has been hurting and he can't lift his arm without pain. He also has more involvement in his leg, hip, and spine again. The Dr just kept saying, "There's a spot here, and one there" and on and on.!! It is spreading all over his skeleton! Thank God we got him the Duragesic pain patch a few weeks ago (75mg) and he also is taking Oxycontin 80mg twice a day for pain. We originally thought the pain was from the chemo, which is what the Dr says happens when taking the gemzar/navelbine. We were is shock needless to say. The night before the Dr visit, we had a good talk(and a good cry) together. I could see him getting weaker, losing weight and appetite, I just knew that the news was not going to be good, even though I was hopeful. I just wasn't expecting it to be as bad as it was. Rob was taking the Zometa for the bones, but it is not working any more either. So starting on Monday, he starts taking Iressa. I called around to see who had it in stock, no one did.. In fact, the rite aid and safeway pharmacies, said, "How do you spell it? What is it?" It this stuff that new or what?? So we had to order it. Thank God for insurance! They said 30 pills are about $1000.00. WOW.... I have heard good and bad about the Iressa. I just pray to God that it works for Rob! Thanks for listening, God please help us all. Tess Quote Link to comment Share on other sites More sharing options...
Addie Posted June 12, 2004 Share Posted June 12, 2004 Tess....I am so sorry to hear your latest news....but I will pray that the Iressa works for Rob and works well. I do admire your spirit...such as how you've figured out a way for Rob to sleep more comfortably and for you to be by his side. Keeping you both in my positive thoughts and prayers for things to turn around and for the Iressa to work. I will look forward to a good news report from you! Quote Link to comment Share on other sites More sharing options...
BeckyCW Posted June 12, 2004 Share Posted June 12, 2004 Tess, I'm so sorry to hear about this news, and I hope the Iressa works miracles for Rob, as it has for others. Thinking good thoughts & praying for you, BeckyCW Quote Link to comment Share on other sites More sharing options...
karenl Posted June 13, 2004 Share Posted June 13, 2004 Tess I am so sorry you did not receive better news. I too, hope that the Iressa works its magic on Rob. Be strong - you are still in this fight!! Will be thinking of you both, Karen Quote Link to comment Share on other sites More sharing options...
slinaresholz Posted June 13, 2004 Share Posted June 13, 2004 Hello Tess and sorry Rob is not feeling well. Sure hope the Iressa can help him feel better. I'm glad he is on the duragesic patch. It will make him more comfortable. Sending prayers and good wishes your way! Sharon Quote Link to comment Share on other sites More sharing options...
Ry Posted June 13, 2004 Share Posted June 13, 2004 Tess I hope the Iressa will help. John has to order his about 3 days in advance. Due to the expense it is not a drug kept in stock. I wish you both the very best. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 13, 2004 Share Posted June 13, 2004 Hi, Tess! Boy, can I identify with what you're feeling right now. My husband got a similar type report last week - there just didn't seem to be anything good about it. The first few days after receiving the results were the hardest, but after that, we started feeling a lot better and got back in the fight. Fay A. posted her test results yesterday, and I love her attitude. It's worth reading, so I would suggest you check it out. It's under the Test Time forum and it's called "It's all in how you look at it." Good luck with the Iressa - it has worked for a lot of people. My husband has also just started Iressa. Send me a PM anytime if you would like to compare notes. Lots of love and prayers to you and Rob, Peggy Quote Link to comment Share on other sites More sharing options...
Guest bean_si (Not Active) Posted June 13, 2004 Share Posted June 13, 2004 I'm so sorry Tess. My prayers are going up for you and your husband. A billion wishes that Iressa works. Cat Quote Link to comment Share on other sites More sharing options...
jamie Posted June 13, 2004 Share Posted June 13, 2004 Tess & Rob, I sincerely hope this thing turns around for you guys. It truly breaks my heart when I hear some not so good news on here. Hopefully the Iressa will work. Im gathering up all of my good luck for you guys and sending it your way!!! Jamie Quote Link to comment Share on other sites More sharing options...
betplace Posted June 13, 2004 Share Posted June 13, 2004 Tess, I am sending hugs and prayers your way. I hope the Iressa works for you. blessings Betty Quote Link to comment Share on other sites More sharing options...
Fay A. Posted June 13, 2004 Share Posted June 13, 2004 Hoping that Iressa works it's magic for your husband. Quote Link to comment Share on other sites More sharing options...
karen335 Posted June 15, 2004 Share Posted June 15, 2004 Tess and Rob, Saw your posting late. You and your hubby are in my prayers each day! Praying for a cure and good results with the Iressa. Please keep us posted on how Rob is doing... God bless and prayers, Karen Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted June 15, 2004 Share Posted June 15, 2004 Tess and Rob, Very sorry to hear of the test results.Praying that the Iressa works as it did for many others on this board. Quote Link to comment Share on other sites More sharing options...
niececola Posted June 15, 2004 Share Posted June 15, 2004 Hi Tess, I am so sorry to read of your news, my mom got the same exact news yesterday, so I can relate for the most part to how you are feeling. But never give up hope, I pray that Iressa does the trick for Rob! Blessings, Denise Quote Link to comment Share on other sites More sharing options...
elnodel Posted June 15, 2004 Share Posted June 15, 2004 So sorry that the results were what they were, but I'm hoping that the IRESSA works and that he'll be comfortable with the pain patch. Sitting up when sleeping is a drag but you do get used to it. Keep fighting the good fight. Ellen Quote Link to comment Share on other sites More sharing options...
Connie B Posted June 15, 2004 Share Posted June 15, 2004 Dear Tess, I too am so very sorry to hear this very sad news. I can just imagine how you both must of felt when the doctor went on and on. My prayers are with you both, and I too hope and pray that IRESSA will bring good things to Rob. Quote Link to comment Share on other sites More sharing options...
Margaret Posted June 15, 2004 Share Posted June 15, 2004 Here's hoping that Iressa will work its magic. When I was on it, it was under a clinical trial, so never had to actually get the drug from the pharmacy. I'll be watching for positive result posts. I pray for strength to deal with the roller coaster of emotions you both have to deal with. Prayers, Margaret Quote Link to comment Share on other sites More sharing options...
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