bluebayou Posted June 17, 2004 Share Posted June 17, 2004 Hi Friends: My last update told you about my returning cancer. My onc made an appoinment with a view to removing the tumour via surgery. Small problem there...the neurosurgeon sees NO tumour and so..no surgery. He made an appointment for me next week for additional testing. He (the neurosurgeon) thinks its nerve-related. Then a return appointment for results end of August. Needless to say, that date is unacceptable. So we contacted our onc and said that the two have to get together and consult on this and do it sooner rather than later. I have since found out that they indeed have spoken and my MRI is on its way to the neurosurgeon. Meanwhile I wait and wait and fret about the tumour (if indeed there is one) growing in size. I remain in awful pain (trying various meds to relieve the pain) and deaf. That is another story for another time. Take care you all. You are the best. God Bless Us, Francine P.S. If you are wondering what the neurosurgeon based his opinion on in view of the fact he seems not to have had my MRI, you are not the only ones. I was under the impression he had both MRI and radialogist's report in his possessiom when I saw him. Confusion reigns (as always) Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted June 17, 2004 Share Posted June 17, 2004 Daggone, Francine, I think we are sorta, right now, sharing this same sort of uncertain frustration. Hang in there. Sorry about the pain. I hope they can figure it out quickly - and that it is NOT a tumor! Karen C. Quote Link to comment Share on other sites More sharing options...
Debi Posted June 17, 2004 Share Posted June 17, 2004 Jeesh Francine, talk about a roller coaster ride!! I am so sorry that you are going through this... Perhaps there is another neurosurgeon in town if this one doesn't do any confidence boosting after he sees the report? How could he make decisions without seeing the MRI?? I know you don't need me telling you this, but I have to anyway..make sure you stay right ON top of this guy.. I wish you all the best Francine and you are in my thoughts as always... Quote Link to comment Share on other sites More sharing options...
norme Posted June 17, 2004 Share Posted June 17, 2004 Francine, I hope and pray that the tumor is not there. This all sounds like the ride they took my Buddy on. All this college knowledge and they still can't read the test results....I sure don't understand this. HOpe and pray for you each night.... Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 17, 2004 Share Posted June 17, 2004 Francine, my prayers are with you. Don Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted June 17, 2004 Share Posted June 17, 2004 Prayers, Francine... XOXOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
Margaret Posted June 17, 2004 Share Posted June 17, 2004 Let's all hope NO tumor. Prayers, Margaret Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted June 17, 2004 Share Posted June 17, 2004 My thoughts and prayers are with you Francine for the best of results. Peace, take care and God Bless. Rich Quote Link to comment Share on other sites More sharing options...
Andrea Posted June 18, 2004 Share Posted June 18, 2004 Oy vey, how frustrating!!! I so hope for good news! Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 18, 2004 Share Posted June 18, 2004 Francine, The only thing worse than knowing is not knowing. I understand your frustration, and I am so sorry you are having all this pain. Did either doc offer any different type of medication to help you with the pain? Hang in there. Love, Peggy Quote Link to comment Share on other sites More sharing options...
Nushka Posted June 18, 2004 Share Posted June 18, 2004 Francine, Gosh, I can imagine how you must feel....I hate not knowing what is going on. One of them should be able to give you something that will help with the pain. If I were you I would try a second neurosurgeon. How can he possibly know if you have a lesion if he hasn't even see the MRI results himself? You are in my thoughts and prayers...as always. Nina Quote Link to comment Share on other sites More sharing options...
Fay A. Posted June 18, 2004 Share Posted June 18, 2004 Since I've been through this very thing I empathize with you, Francine. And I hope that you have accurate information and a good treatment plan in place very soon. I am just very sorry that you have to deal with something like this at all. It shouldn't happen....to anyone....ever. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted June 18, 2004 Share Posted June 18, 2004 I have come to believe that if you put 3 doctors in a room to come up with a diagnosis and a plan, you will get 37 dx and 144 plans, I am being conservative. Francine, I hope you get all the right answers soon and that they are good news answers. Keep us posted. Quote Link to comment Share on other sites More sharing options...
Sam'swifeShirley Posted June 18, 2004 Share Posted June 18, 2004 Dear Francine, Praying you will soon hear good news. May God Bless Us All. Sam'swifeShirely Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted June 18, 2004 Share Posted June 18, 2004 FRANCINE, THINKING OF YOU AND OFFERING PRAYERS. YOUR PROGRESS SOUNDS PRETTY GOOD. GLAD TO HEAR FROM YOU. KEEP US POSTED! CHERYL Quote Link to comment Share on other sites More sharing options...
sharyn Posted June 18, 2004 Share Posted June 18, 2004 Francine, I can bet you are very frustrasted at this point, but wouldn't it be wonderful if the second doc is right!! I am praying and keeping everything crossed for you. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted June 19, 2004 Share Posted June 19, 2004 Francine, I hope they get their sh** together soon,I also hope it turns out no tumor. Quote Link to comment Share on other sites More sharing options...
Lisa O Posted June 19, 2004 Share Posted June 19, 2004 Praying for a quick opinion and that it is not a turmor. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted June 19, 2004 Share Posted June 19, 2004 Francine, It must be agonizing suffering with the pain. Bill experienced this as well and always hated to increase the Oxycontin since it made him feel out of it. I pray you find relief and have some needed good news very soon. Blessings to you, Peg Quote Link to comment Share on other sites More sharing options...
bluebayou Posted June 19, 2004 Author Share Posted June 19, 2004 What a bunch of great people. Thx for your responses. Next week should be one of revelation so I would ask for your prayers please. I truly believe in the power of them. God Bless us All Francine Quote Link to comment Share on other sites More sharing options...
BeckyCW Posted June 19, 2004 Share Posted June 19, 2004 Francine, You know you have our prayers! I hope your pain subsides soon, and that the doctor voting "no tumor" is the right one!!! BeckyCW P.S. Deaf? You will tell us about that when you're ready, right? Quote Link to comment Share on other sites More sharing options...
bluebayou Posted June 19, 2004 Author Share Posted June 19, 2004 Again, many thx for your posts. BeckyCW, I am deaf right now (95%) left ear and about 50% in other ear as a result of cisplatin. That is what my onc said. I've been bouncing around different doctors and the last one said that it might clear up. That was six weeks ago and I see him next Monday. Keep you posted. God Bless us All, Francine Quote Link to comment Share on other sites More sharing options...
slinaresholz Posted June 20, 2004 Share Posted June 20, 2004 Hello Francine. Sure hope they find no tumor and you get some pain relief. Saying a prayer for you! Sharon Quote Link to comment Share on other sites More sharing options...
karen335 Posted June 21, 2004 Share Posted June 21, 2004 Francine, Prayers that there is no tumor. The doctors will be able to come up with a plan for your hearing... God bless and prayers always, Karen Quote Link to comment Share on other sites More sharing options...
Guest bean_si (Not Active) Posted June 21, 2004 Share Posted June 21, 2004 Norme is right. All that college and the goofballs still can't read tests correctly. I'm praying that all the news you get this week will be good and you can get off this roller coaster ride. Cat Quote Link to comment Share on other sites More sharing options...
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