Guest NowakowDA Posted June 28, 2004 Share Posted June 28, 2004 Well! Mom made it. She turned 79 today. She was born Jun 27, 1925. She is the last sibling. All of her brothers and sisters are all dead. They were younger then her when they died. So, I guess she's the winner. Today we celibrated her birthday with a traditional birthday pizza. Red Baron, three cheese. How my world has narrowed since she was Dx. I have been here 24/7. Clean the house, buy grocies, pickup prescriptions. Talk to doctors, relatives and anyone else who calls. Take her to appointments. Try to get her to take her medicine and eat, always eat, eat. Drink more fludis, more, more. She worries that she'll wet the bed. Too embarrassing for her. Order oxygen. I can not pickup a book and read it. In my line of work that can be fatal (computer tech). I have at least half a dozen big (800 to 1000 page) books I should be reading, but can't. Watch TV till I pass out. Got a baby monitor. Now I can hear her when she has trouble breathing. Last night it was 2:AM when the panic hit. Got up set beside her bed, talked to her. Got her to use her inhalers and drink some more water. Got back to bed at 4:AM. She slept to 7:30. At night she gets upset, worried, confused or frightend. If I can catch it quick enough I can stop it. Thank God for Risperdal. With it, she can sleep. Without it, the episodes can drag on and on and end up in the ER. Worried she'll miss taking one of her Dexamethason pills. Worried the Pepcid won't kill the acid in her stomach. Major fear is that she will have an impacted bowel and endup in the ER. With her upcoming WBR treatment, that would be a major porblem. Had a small victory tonight. She managed to have a bowel movement. We didn't have to blast. She can pass gas, (sounds like a fart to me!) so I guess everything is OK. Tomorrow Michael Servilla, her primary care provider and a nurse case worker want to pay her a home visit. I've been laying awake wondering what they want. Tuesday, Dr. Wong and one more time on the sim before her treatment starts. Will it work. What will happen if it dosent' God! Don''t think about that now. Can they do anything about the mass in her lung? I can handle a lot of things, but I can do nothing about her confusion, disorientation. I can not stop the periods of delirium. Try and make it through tonight. Worry about tomorrow when it gets here. Work? Not now. Living off savings. Will be OK for a few years if it goes that far. Haven't had a full night's sleep since the Dx. Got to rent wheelchair for Mom's WBR. Wonder how the WBR will affect her. Fatigue, hair loss, loss of appetite. Hard enough now getting her to eat. Left to wonder what next. Don Quote Link to comment Share on other sites More sharing options...
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