moocow35 Posted July 1, 2004 Share Posted July 1, 2004 I've been lurking since about March of 2003 when my Mom was diagnosed with this cancer. The only symptoms she had initially was the inability to move one foot side to side. She could move it no problem up and down, if that makes sence? Her internist said it was her age, and to go to Curves. She knew better than that, and got an MRI on her own. Long story short, the whole brain radiation got rid of the 3 spots on her brain, the chemo (after 3 different kinds) finally we got a good response to Iressa. Both the lung and liver spots shrunk considerably! However, she started to act like the brain tumor was back, and slowly but surely she is now completely unable to walk. (another MRI was done, and there is no cancer) She has been in a hospital bed in her room with 24 hour nursing care for over a month. She is alert, her vitals are good, but I am afraid that what she has now is radiation necrosis. Reading here for so long, I never once have read any posts about this side effect. After doing much research on the subject, it does happen, slowly the good brain cells start to die. This can happen 6 months to 2 years after the radiation. Her doctor said that she didn't think that Mom was even going to live this long, so the radiation necrosis did not even concern her. Well, Mom has outlived all expectations, but now she is leaving us not from the cancer, but dying brain cells. Does anyone here have any insight to this? They took her off the iressa, and is considered hospice. I don't believe they should have done this, but perhaps the necrosis will kill her just as the cancer would have. Sorry to be so long and depressing, just wondering???................. Robin Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.