Guest medgrrl Posted July 23, 2004 Share Posted July 23, 2004 Hello! I have tried to post a few times but i would always press the wrong key or close the window by accident. I think it is because after 14 months of dealing with this I still can't believe it is really happening. My mom was diagnosed 14 months ago with stage IV NSCLC with mets to liver and brain. She had a craniotomy, WBR, 6 cycles of carbo/gemcitabine, break, 4 cycles of velcade/taxotere and 2 cycles of taxotere. She responded well to all of them but her most recent set of scans shows numerous new brain mets. Feeling really discouraged and sad. She feels well today but we are all scared about what comes next. She just started iressa. new scans in a month to see if it is working. keeping my fingers crossed but also trying to be realistic about the situation. Definitely feel like I need the support of this community and I thank you for the support I have already found here. I can't believe it took me so long to get here. thank you for the help and support. Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted July 23, 2004 Share Posted July 23, 2004 medgrrl, Welcome to the club no one wants to belong to. I am glad you're here, and sorry it took you so long to get here. What a roller coaster ride emotionally you all have been on! Keep us informed about your dear mother, please. Let us help you anyway we can. Prayers always for you and your family. Hoping the Iressa does the trick. XOXOXOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
Don Wood Posted July 23, 2004 Share Posted July 23, 2004 Welcome! Sorry your mom has new mets. Hope the Iressa will work for her. Glad you posted. Keep us posted. Don Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted July 23, 2004 Share Posted July 23, 2004 Welcome. The Iressa for us was a godsend while it worked. For six months, Becky really felt very strong and was on top of everything. It was so very nice. I hope the same happens for your mom, but just for a lot longer. Best wishes, Curtis Quote Link to comment Share on other sites More sharing options...
Katester Posted July 23, 2004 Share Posted July 23, 2004 Sorry to hear about you Mother and hope things start getting better. You have come to a great place for support and information. As you can see there are many survivors, caregivers, and family members here who will help you through this. Hang in there. Kate Quote Link to comment Share on other sites More sharing options...
Margaret Posted July 23, 2004 Share Posted July 23, 2004 I am very glad that you decided to post your and your Mom's story. I hope you will find support and comfort on the Board. We all know what you are going through and will walk with you every step of the way...it is never easy, but it is more doable when you are not doing it alone. In the meantime, prayers, Margaret Quote Link to comment Share on other sites More sharing options...
Fall54 Posted July 23, 2004 Share Posted July 23, 2004 I am so sorry about your Mom. I know what you are going through because I have been there. I also know how sad you feel. I wish we could take that all away but we cant. What we can do is be of support to you and your Mom through this. I am praying the iressa works for her. Stand strong as it is a hard battle for the caregiver as well as the person with cancer. She will need you and as long as you give all that you can you will never have any regrets. God Bless You and your Mom, Jane Quote Link to comment Share on other sites More sharing options...
elnodel Posted July 23, 2004 Share Posted July 23, 2004 Let me add my welcome to those already here -- and I'm glad you finally posted. It's a bit hard to do that first one, but after that, it all flows.... Iressa can be fabulous, I know, so I'm hoping that it works for your mother. She's had (as have you) a tough time; it's natural to feel discouraged but keep on hoping and fighting -- the only way! Let us know how it goes. Ellen Quote Link to comment Share on other sites More sharing options...
Lisa O Posted July 23, 2004 Share Posted July 23, 2004 Welcome, I think you will find all of the support you need here. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted July 23, 2004 Share Posted July 23, 2004 Welcome to the best site for support and information for lung cancer. I hope your mother is doing well. The only question I have, is that I am not sure that Iressa crosses the blood/brain barrier. There is a brain cancer drug, Temodar, that is being used for lc patients that have brain mets. It, like Iressa, is chemo in pill form. Might ask your mother's dr. about it. Quote Link to comment Share on other sites More sharing options...
Guest medgrrl Posted July 24, 2004 Share Posted July 24, 2004 the outpouring of support is a blessing. thank you all so much. in response to the question about iressa and the blood/brain barrier her doc has seen it work with brain mets and bulky disease. because her mets are early he feels we can wait one month. if it is not successful he plans to use temodar. thank you again. i will post more frequently now! Quote Link to comment Share on other sites More sharing options...
brm1949 Posted July 24, 2004 Share Posted July 24, 2004 Unfortunately you have had to find us but you arfe now in a good place for advice, info, support and comfort. My prayers for your mother and prayers for you to be given the strength you need to be there for her. Quote Link to comment Share on other sites More sharing options...
Guest bean_si (Not Active) Posted July 24, 2004 Share Posted July 24, 2004 I'm glad that you did find us. You sure could use some TLC. Please continue to let us know how you and your mom are doing. Take care, Cat Quote Link to comment Share on other sites More sharing options...
slinaresholz Posted July 24, 2004 Share Posted July 24, 2004 hello and I'm sorry to hear about your mother. Hope the Iressa will help her. Prayers and hugs for both of you! Sharon Quote Link to comment Share on other sites More sharing options...
Nushka Posted July 25, 2004 Share Posted July 25, 2004 It sounds like you have really been on a roller coaster ride like many of us here on the board. It sounds like you have a good doctor willing to try new things and keep an eye on your mother. If we can help just let us know. Keep us posted on how you and your mom are both doing. Nina Quote Link to comment Share on other sites More sharing options...
Snowflake Posted July 27, 2004 Share Posted July 27, 2004 Welcome to the journey. The trail is rough, but the companions are top notch. I'm sure you'll find all the support you'll need and then some. Take comfort is sharing the load, there are many shoulders here to help bear your burden. Becky Quote Link to comment Share on other sites More sharing options...
SJAS Posted July 29, 2004 Share Posted July 29, 2004 Sending you a bit belated welcome (I don't get on as much as I'd like) and a ((hug)) for you and your mom. We started out in the same category - Stage IV bone and brain mets - and it is such a rush that I'm not surprised you haven't posted yet. That dx doesn't leave time to catch a breath. We'll be here for you and looking forward to leading the cheering section for your mom. Take care.... Quote Link to comment Share on other sites More sharing options...
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