SharKats Posted August 8, 2004 Share Posted August 8, 2004 Hello! Just wanted to say a quick hello to all you nice people. I just finished a 2 week hospital stay and am just feeling up to going through emails, etc. I finished my dreaded radiation 7/7/04 - and was doing fine, throat was healing when bam, had problems breathing, etc. My onc saw me for 2 minutes and said I had radiation-induced pneumonitis and put me on Levaqauin and steriods. I got worse - went back. Saw a different onc and he sent me straight to hospital, wouldn't even let me go home first even though I whined. I ended up with asthma, COPD, mild emphysema and some weird a-typical strain of TB - they're still waiting to find out the "DNA" of the bug. I now get to add an "infection disease doctor" to my list of specialists. For some reason, after fighting high BP for 24 years, my bp went so low they had to give me sodium chloride to bring it up a little so they took me off all my BP meds. That was (and is) weird. I've noticed my BP coming up since I got home so I'll probably be back on my meds again soon. I had another bronscopy(?) which showed the 4 little "growths" on my right lung that had been there since day one were not maligent. (I can't spell). I didn't think they were since everything else shrunk w/chemo but they wanted to make sure. Lung cat scan showed NED - so if I can get some wind back, I'll feel pretty darn lucky. The shortness of breath is very frustrating as I can't do or talk much. Those TB meds they had me on messed up my red and white cell counts so maybe that's causing some of the SOB. It sure takes a while to catch up with everyone and everything after being gone for so long - I am so happy to see so many of the same people here, posting and giving their continued support and caring. (I cried a lot about Mo though). God bless each and everyone of you - and I hope to stay out of the hospital and get back to my normal schedule. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted August 8, 2004 Share Posted August 8, 2004 NED great! TB? Dang. Who would have thought? Wishing you smoother sailing from here on out. Margaret Quote Link to comment Share on other sites More sharing options...
betplace Posted August 8, 2004 Share Posted August 8, 2004 (((Shar))) It is so good to see you posting! I am sorry you have had such a rough time. NED is wonderful news though isn't it! I'm doing a happy dance for that! Blood counts will go back up with time, so just hang in there, it is a slow process. I think the worse thing about this is you go in with 1 thing (LC) and end up with 3 or 4 more diseases to deal with. Sometimes I wonder if I will every get better! Anyhow Hugs and prayers going out for you and continued NED status! Blessings Betty Quote Link to comment Share on other sites More sharing options...
Don Wood Posted August 8, 2004 Share Posted August 8, 2004 That is great news, Sharlene! Lucie got a staph infection two months arfter diagnosis, and just as she was starting chemo and radiation.. It went systemic and her bp dropped dangerously low. She had every kind of specialist looking at her, and, as you, we picked up an infectious disease doctor. Glad you got through all of that. Don Quote Link to comment Share on other sites More sharing options...
ginnyde Posted August 8, 2004 Share Posted August 8, 2004 Sharlene, Welcome home, to home and here. Great, terrific news about NED. Sorry about all the other stuff but hopefully just a bump in the road and the meds will make you 'all better'. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted August 9, 2004 Share Posted August 9, 2004 Wow, glad you're home. You've been thru quite a lot. Now, I hope you make a speedy recovery and start feeling more like yourself. Enjoy your friend NED, that is awesome news!!! Nancy Quote Link to comment Share on other sites More sharing options...
Addie Posted August 9, 2004 Share Posted August 9, 2004 Geez, Shar...what an ordeal you've been through, eh? But with the bottom line of NED....I'd say that's cause for some celebration!! I sure hope your breathing gets easier and your b.p. gets squared away...but meanwhile, you enjoy hanging out with NED, ya hear!? Hope to hear you're feeling better, day by day...and glad you're back home and back here with us! Quote Link to comment Share on other sites More sharing options...
Elaine Posted August 9, 2004 Share Posted August 9, 2004 Shar It's good to hear from you! And mostly good news, too! I wonder where on earth you got that TB? Any ideas? Glad you are home and hope they can resolve your ailments soon! Quote Link to comment Share on other sites More sharing options...
Margaret Posted August 9, 2004 Share Posted August 9, 2004 It's great to see you back. You have been through a lot, but some of your post is grrrrreat news. Stay out of the hospital and continue on your road to recovery...we're glad to have you back! Margaret Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted August 9, 2004 Share Posted August 9, 2004 Glad you're home, Great about NED. Hopefully the other stuff will be easily treated and over. XOXOXOXOX Prayers always, MaryAnn Quote Link to comment Share on other sites More sharing options...
Fay A. Posted August 9, 2004 Share Posted August 9, 2004 Welcome back and congrats on the NED, just sorry to hear you've been ill at all. Hope that you are truly on the mend. Quote Link to comment Share on other sites More sharing options...
BJ Posted August 9, 2004 Share Posted August 9, 2004 Welcome back and I know its always good to be home. Hope you get better and better with each day. I'm also happy to see NED with you! BJ Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted August 10, 2004 Share Posted August 10, 2004 SHAR!!! You just needed some attention!! Well you got it!! Stay well and get your energy back!! Love Cindy Quote Link to comment Share on other sites More sharing options...
karen335 Posted August 11, 2004 Share Posted August 11, 2004 Shar, Glad you are doing better. Missed your posts and continue to get better and get your energy back up. Many prayers for you... God Bless, Karen Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted August 12, 2004 Share Posted August 12, 2004 I'm also late, but glad to hear from you! Seems like there's so much "stuff" just waiting for an immune system not up to par. Hopefully your SOB problems will clear out and leave you to enjoy NED. Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted August 16, 2004 Share Posted August 16, 2004 Sounds like a rough ride but NED is great. Hope you get your strength back soon and yes, stay out of that hospital!!!!!! David C Quote Link to comment Share on other sites More sharing options...
Katester Posted August 16, 2004 Share Posted August 16, 2004 Here's hoping each new day is a better one from now on. Kate Quote Link to comment Share on other sites More sharing options...
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