char1048 Posted September 17, 2004 Share Posted September 17, 2004 My dear Rich has gone into hospice care as of this morning we went to radiation yesterday and it was the hardest day to get him there I had to call my son to takeoff work to come and help me to get him there, we had him in the day before for MRI of brain, when we got him there I asked to speak to the nurse to see about getting help to get a wheel chair for home and they told me that the radiation doctor wanted to talk to me and I just broke down knowing it was bad and told them I needed help and my son said why are we putting him through the last 4 radiation treatments and they said we could stop them, I got on phone with the doctor and she said the MRI showed a large tumor behind his right eye and a few other spots and thats when they suggested hospice they sent him up stairs to get IVs for very bad dehydration and sent us home with hospice. So all chemo stopped and radiation stopped and they more or less prepared us that his body is in the process of shouting down. My 3 sons and I are very sadden by this turn of events. Please pray for him and thanks for listening and I will try to keep checking the board when I can and know that I am praying for each and every one of you. God Bless You all Charolette Quote Link to comment Share on other sites More sharing options...
NellW Posted September 17, 2004 Share Posted September 17, 2004 Dear Charlotte, This is sad news, and my heart aches for you and your sons. I am praying you will have comfort and strength, and Rich also. Love, Nell Quote Link to comment Share on other sites More sharing options...
ginnyde Posted September 17, 2004 Share Posted September 17, 2004 Charlotte, I am so saddened by this. There are no words that I can say that will make this any easier. It is so very difficult and your husband like mine is just too young for this to be happening. I tried to keep life as normal as possible for Earl. We kept his hospital bed in the family room and I bought an air mattress and slept there. I wanted him to be a part of our life. I let him lead me. I didn't force food or drink on him. Let him eat whatever he wanted whenever he wanted. I even let him smoke the last few weeks. It seemed to be the only thing that gave him any pleasure. Hospice is wonderful. We did not have the best hospice because basically the hospice from Fox Chase Cancer Center is just too small and therefore did not have enough personnel to really do the job. But I have heard only wonderful things about other hospices. I also didn't know that I could have changed hospices until it was too late and I thought it would hurt Earl more than help him at that point. If you want to talk more, PM me. If you want you can give me your telephone number and I will call you or you can ask for mine. I will pray for you Charlotte. Love, Quote Link to comment Share on other sites More sharing options...
stand4hope Posted September 17, 2004 Share Posted September 17, 2004 Charlotte, This is very sad news. I am so sorry. My heart aches with yours. Please know that you and your family are in my prayers. Love, Peggy Quote Link to comment Share on other sites More sharing options...
Elaine Posted September 17, 2004 Share Posted September 17, 2004 Charlotte I am so sad for you and your boys. Ginny has given you some good advice. There are good hospices and not so good, and from what I understand, you have to be pretty proactive to get what you need sometimes as far as man.woman hours for direct care and social work. Mostly because they are not funded adequately by Medicare nor HMOs. I wish you strength and peace through a difficult time. You all remain in my thoughts/ love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted September 17, 2004 Share Posted September 17, 2004 Charlotte, I am very sad to hear this.You will be in our prayers for strength and comfort in the coming days. Quote Link to comment Share on other sites More sharing options...
lilgna Posted September 17, 2004 Share Posted September 17, 2004 Saddened by this news, hopefully positive change can happen. Peace for your family, take care of each other. Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted September 17, 2004 Share Posted September 17, 2004 I'm so sorry to read this. I pray you will have a wonderful hospice to work with, so you can concentrate on family time. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 17, 2004 Share Posted September 17, 2004 Charolette, I am so sorry for this turn of events for you all. My prayers are with you. Don Quote Link to comment Share on other sites More sharing options...
lisaRN Posted September 17, 2004 Share Posted September 17, 2004 Dear Charlotte, I am extremely saddened to hear of the turn of events.... my prayers are with you and your family.... Lisa Quote Link to comment Share on other sites More sharing options...
marion Posted September 17, 2004 Share Posted September 17, 2004 I am so sorry. Peace be with you and yours. Marion Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted September 17, 2004 Share Posted September 17, 2004 ((((((((((((((((((((Charolette))))))))))))))))))))))) XOXOXOXOXOX Prayers, MaryAnn Quote Link to comment Share on other sites More sharing options...
TAnn Posted September 17, 2004 Share Posted September 17, 2004 I am so sorry for you and your family. Sending my prayers. TAnn Quote Link to comment Share on other sites More sharing options...
Donna G Posted September 17, 2004 Share Posted September 17, 2004 So sorry to read of this turn. Hospice is a good program, pray they comfort and keep him comfortable. Donna G Quote Link to comment Share on other sites More sharing options...
J.C. Posted September 17, 2004 Share Posted September 17, 2004 So sorry, prayers for your husband and those that need them J.C. Quote Link to comment Share on other sites More sharing options...
TeeTaa Posted September 17, 2004 Share Posted September 17, 2004 I'm so very sorry, Charlotte. I can still so vividly remember the day TBone's wife called to tell me that they had finally decided to discontinue treatment and call in hospice. As much as I knew it was the right thing, it hurt like hell. I cry simply thinking about it. All I can say is this - enjoy this time. And if you haven't read Crossing the Creek or Final Gifts, either get to the website (www.crossingthecreek.com) or go buy the book just as soon as you can. It's a hard read, but one you won't regret. Praying for us all, TeeTaa Quote Link to comment Share on other sites More sharing options...
paddy Posted September 18, 2004 Share Posted September 18, 2004 Oh Charlotte, My heart goes out to you! I really don't know what to say. This is something we all dread. I can only pray that your husband will be kept comfortable and wish you both peace. All my love, Paddy Quote Link to comment Share on other sites More sharing options...
Fay A. Posted September 18, 2004 Share Posted September 18, 2004 (((Charlotte))) Thinking of you. Quote Link to comment Share on other sites More sharing options...
Ry Posted September 18, 2004 Share Posted September 18, 2004 I am very sorry to hear that things are not going well. I hope hospice is able to make him comfortable and give you support. Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted September 18, 2004 Share Posted September 18, 2004 Charolette, My heart is so heavy for your family. How is your husband holding up. Please let him know he is in all of our prayers as well as your family. We are here for you when ever you need us. So sorry about this news. Much love and support, Cheryl Quote Link to comment Share on other sites More sharing options...
K and Kids Posted September 18, 2004 Share Posted September 18, 2004 I'm so sorry to hear this recent turn of events. Thinking of you and sending hugs and prayers. Quote Link to comment Share on other sites More sharing options...
SJAS Posted September 20, 2004 Share Posted September 20, 2004 Charlotte, As soon as I read this, I stopped to pray for you all. I am so, so very sorry.... Quote Link to comment Share on other sites More sharing options...
karenl Posted September 20, 2004 Share Posted September 20, 2004 Charlotte Please know that I am thinking of you both and wishing you peace and comfort. Karen Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted September 20, 2004 Share Posted September 20, 2004 Such sad news, we are thinking of you, too. Margaret & Jim Quote Link to comment Share on other sites More sharing options...
Guest bean_si (Not Active) Posted September 20, 2004 Share Posted September 20, 2004 Charolette, my prayers are with all of you. Cat Quote Link to comment Share on other sites More sharing options...
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