Lisa O Posted September 18, 2004 Posted September 18, 2004 Well it took a full week to get my test results. I am feeling a bit deflated. Initially I was told it was stable but when I asked for the report, I noted that there had been definate progression of several nodules. There was also a new low attenuation density on the kidney but too small to characterize. There is new emphysema of the upper lobe (cannot figure out that one!) My kidney function has continued to worsen so we have cut my Celebrex down to 400 mg per day. My oncologist is going to go through all of the CTs to determine when the nodules grew (since the last CT I was just told "stable" and had never seen the report. I will then figure out where to go from there. It may be that the progression is slow and that my treatment is still working. Quote
luvmydog2 Posted September 18, 2004 Posted September 18, 2004 I hope the treatment is working for you. It is sad that a lot of times we don't get the full picture because we don't understand medical language. My Onc will tell me what I ask but I am not medically educated enough to know what to ask. Anyway, hang in there girl and hope for the best. Now . Quote
paddy Posted September 18, 2004 Posted September 18, 2004 Lets hope that is the case Lisa. I will be praying for good shrinkage. Paddy Quote
Mr Ry Posted September 18, 2004 Posted September 18, 2004 I hope it is nothing. I hope your onc reads the things we want to hear. I am hoping for hte best for you. John Quote
cathy Posted September 18, 2004 Posted September 18, 2004 Lisa, I'm a little confused , if the nodules were removed with surgery are these new ones that are growing? Hoping for the best for you right now Lisa, maybe there will be a new plan of attack.. Quote
Lisa O Posted September 18, 2004 Author Posted September 18, 2004 Hi Cathy, All the nodules in my right lung (three the first surgery and eight the second surgery) were removed and my right lung was clean -- for three weeks. But then it recurred and I now have bilateral disease. The progression happens to be in the nodules in my right lung. For some reason the cancer there does not seem to want to go away. Thanks everyone for your well wishes. Quote
BeckyCW Posted September 18, 2004 Posted September 18, 2004 Lisa, I'm sorry to hear this and that you're feeling deflated. It's not the news you wanted, but I hope the news from here on out is that the treatment IS working and doing just what it's supposed to do. Shrink, nodules, shrink!!! I will keep you in my prayers. BeckyCW Quote
SandyS Posted September 18, 2004 Posted September 18, 2004 Lisa - I hope the docs come up with some better answers for you quickly! Keep us posted, Hugs and prayers, SandyS Quote
stand4hope Posted September 18, 2004 Posted September 18, 2004 Doggone it! That's not what you wanted to hear and that's not what we wanted to hear either. I think the hardest time after getting news about any kind of progression is the first few days. After that, it just kind of settles in and we are up and fighting again. You've got the weekend to let this news soak in, but by Monday or Tuesday, I bet you'll be posting with a plan and be feeling a lot more optimistic. We all love you, Lisa, and you are going to be ok!! Love, Peggy Quote
Joe B Posted September 18, 2004 Posted September 18, 2004 Lisa, Praying for healing and that the growth is very minimal if at all. keep on keeping on, still looking forward to that lunch Joe Quote
Nushka Posted September 18, 2004 Posted September 18, 2004 I would feel deflated as well. I hope the doctor can figure out a way to stop this and keep you feeling ok. There have to be more options. I have you in my prayers ...hope that helps some. Nina Quote
J.C. Posted September 18, 2004 Posted September 18, 2004 Lisa, Thank you for the update, the treatment may still be working, but you will know more when you get the last reading from the oncologist. Sending strong vibes your way. J.C. Quote
ginnyde Posted September 18, 2004 Posted September 18, 2004 Lisa, I know this is not what you wanted to hear and I am sorry. But don't go into a blue funk until the doctor gets all the information and gives you the complete report. I don't think we need to know the exact questions to ask. Just ask, tell me what this means in laymen's language and what can we do about it. Quote
cathy Posted September 18, 2004 Posted September 18, 2004 Lisa, Thanks for filling me in..If I would have read you signature I would have noticed . Still thinking of you and hoping for the best... Quote
betplace Posted September 18, 2004 Posted September 18, 2004 (((Lisa)))) This blasted disease always has some new surprise for us! I am praying the Onc can come up with a good explaination for you. Sending hugs, just because! Blessings Betty Quote
chloesmom Posted September 18, 2004 Posted September 18, 2004 Lisa, I just now read this and am sorry that your reports weren't all clear. I hope that your docs have some good tricks up their sleeve for you and you get on that path really soon....many positive thoughts from me for you. Cindy Quote
TAnn Posted September 18, 2004 Posted September 18, 2004 Lisa, How terrible that you had to wait so long for news like this! I'm a bit confused, did your dr. originally tell you were stable and then you had to point out the progression in the nodules to HIM??? If so, how does he explain this. Hopefully, you will be able to remain on the Iressa and continue a somewhat "normal" life, but if they decide to change the treatment, ask about ALL the options, Tarceva, Alitma, and anything that is not so devastating to your body! I'm sorry that you have to worry about this over the weekend. I'm sure the doc will have a plan next week. Please keep us posted. TAnn Quote
MJ Posted September 18, 2004 Posted September 18, 2004 lisa, i'm so sorry that it took you so long to get the news. waiting for test results is so hard as it is. i hope that the reports are clarified soon and that the clarification brings good news. i'm so sorry that you have to deal with all of this over the weekend. my thoughts and prayers are with you. God bless, mj Quote
Elaine Posted September 18, 2004 Posted September 18, 2004 Lisa We "talked" last night but I did want you to know that I am thinking of you. I hope you get additional answers in a timely manner next week, so that you can move forward. It probably feels like you are standing still, now. I pray it's really nothing to worry about, after all. love and fortitude elaine Quote
dede Posted September 19, 2004 Posted September 19, 2004 Lisa, Sorry that your test results were ambigous. I'm praying that you get good news soon. Denise Quote
Ry Posted September 19, 2004 Posted September 19, 2004 Lisa, Wishing you all the best. I hope you get it all straightened out soon. Rochelle Quote
cindi o'h Posted September 19, 2004 Posted September 19, 2004 Oh Lisa I am so sorry to hear that some of the air has left your balloon. It is so difficult to keep out spirits up while we wait for answers....doggonnit anyway. I try to keep distracted and busy during times like these and extra pampering is sometimes useful. I pray that everything will turn out all right for you. I am glad that you posted this scary news. Cindi O'H Quote
brm1949 Posted September 19, 2004 Posted September 19, 2004 Lisa, prayers your way that treatment works. Sorry to hear you have to deal with this thing again. Looking forward to a more positive report next time. Quote
dadstimeon Posted September 19, 2004 Posted September 19, 2004 Sorry to hear that Lisa. My thoughts and prayers are with you for the best of results. Rich Quote
Melinda Posted September 21, 2004 Posted September 21, 2004 ((LISA))) OK--Let's hope for one step backwards, but TWO steps forward!!! You are in our thoughts and prayers (and we are praying for shrinkage!) Melinda Quote
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.