Herman Posted September 20, 2004 Share Posted September 20, 2004 I wrote some time ago regarding my father who had just been diagnosed with lung cancer after undergoing a cat scan. The problem now is that there does not seem to be any way to confirm the diagnosis of cancer, and no one will treat him for cancer without a definative diagnosis of cancer. The mass is behind the right lung, and they do not know if it is pushing out of the lung into the lymph nodes or a tumor on the lymph node itself pushing into the lung. 4 radiologists were contacted and all 4 said they could not due a needle biopsy due to it's location. Too many large blood vessels in the way. A bronchoscopy was done with a "Wang Needle Procedure", but the results were inconclusive. Cells from the biopsy were normal, but cells from a saline wash of the mass showed to be "suggestive" of squamos cell carcinoma. He was then sent to a very well known surgeon in our area to discuss a "scope" procedure, but he also said that due to the location of the mass, he was unable to get to it. We were told the only way to get a biopsy was to do open chest surgery. As my father is oxygen 24/7, the surgeon said it was too risky a procedure for him, as he may not ever come off the ventalator after surgery. So, now after two months (this all started on July 16th), we are no closer to getting the answers we need. The pulmonologist basically said there is no more she can do for him, and is sending him to an oncologist next week for another opinion, and maybe the oncologist will want to do a CAT or PET scan. My parents have an HMO, and do not have the financial means to go out on their own. There is the MAYO clinic about two hours from where we live where I would like to take my father there for another opinion, but they do not accept HMO's (obviously). Has anyone ever had this happen, that a confirmed diagnosis could not be made? And if you have gone through it, what if any treatment was done? I am so scared we are running out of options. I can understand that if it isn't cancer, the treatments would do him more harm than good. But on the other hand, what if it is cancer, and nothing is done about it? I feel like they couln't just sit back and do nothing, but apparently, that is what will happen if a confirmed diagnosis is not made. My father had another CAT scan Friday to see if it has grown. At last scan, the mass was 5cm x 4cm. The pulmonologist said that when she did the broncoscopy, the tissue on the outside of the mass looked normal, and that she does not think the cancer has spread. I would hope and pray for that to be the case, but it seems to confuse the diagnosis. Does anyone know of where I can turn to help my father? This is really wearing on us all - ecspecially my father. Any thoughts would be appreciated! Quote Link to comment Share on other sites More sharing options...
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