Debaroo Posted June 18, 2003 Share Posted June 18, 2003 I called the oncologist office yesterday, explained my concerns about dad. He sleeps ALOT, still barely eats, is constipated, and is having alot of pain in the stomach and back...and in the past few days has developed a REALLY TERRIBLE cough. I told the nurse pract. that I was very worried. She said that she could get a perscription for the pain, and that the meds to increase his appetite could take a week or so to work...I told her that I believed it was time for a CT scan, and that I really wanted this checked out. She said shed talk to the DR. and call me right back. Fifteen min later she called back and said that the Dr. agreed with me and scheduled a CT scan of the pelvic area, chest and abdomen. It isn't until Next thursday, but the radiology dept said we should call every day to check for cancellations. I know that all of this could be from the stopping the steriods, you don't eat and it affects how your body functions and can cause pain...but seeing my dad tells me it is more. He looks good, but he is so tired, and he is getting fed up with feeling so badly. Swears that if he ever needed to go back on steriods, if he ever has brain mets again, he will refuse. He hated how they made him feel and that the affects have lingered for so long. Today my parents went to price club and dad needed to sit down after walking from the car to the store. Then he got up and got 1 item and told my mom he was going to wait for her in the car. He was so short winded and fatigued. Its like he is deteriorating so quick right before our eyes. Although it could be the affects from not having an apetite (again, this is very common after stopping steriods), just the knowledge that the cancer may be doing its job on him is absolutely terrifying! The thing is, he was just at the onc. office last week and his lungs sounded great! Now this cough has him where he can't even talk. He sounds like me, I get this nasal drip during allergy season and all I do is cough. He has allergies, but they usually just make him sneeze alot. The cough has developed over that past few days. My mom called me up crying. She is frightened. She feels so bad for him, seeing him suffer like this. And he is so strong about it. I swear if you were to ask him how he was, hed say, "not bad" or "pretty good". OH, and get this, I mentioned in an earlier post that dad had a follow up with the neurologist for the most recent MRI to see how the tumors are re absorbing and check for any other mets. Well the appt. was LAST TUESDAY, and he never got to see the Doc. because of an emergency surgery. They were supposed to call my mom with the results...and havn't. I have called several times, and today when I called last I told the receptionist to please tell the doctor that I think it is dispicable that he would make someone wait for such important test results like this, and to be so uncaring as to not even return a phone call. I also told her that we understand that Dad is not his only patient, and don't expect him to stop an emergency surgery to call, but I DO expect a call by the end of that business day! I told her that my dads oncologist could just as easily schedule any follow up MRI's AND READ THEM and compare them to the past MRI's, and that this is what we would be doing from now on. While we were happy with the doctors medical expertese, the fact that he has neglected to have the respect to call my dad back was disgusting. To keep ANYONE waiting for results like this is inexcusable. And that the doctor is to call ME back, as I do not want him talking to my parents and upsetting them, regardless if the results were good or not. At first my sister was annoyed with me for saying that I wouldn't be sending dad back there, but when I told her that I was completly calm and also threw in a compliment about the doctors medical expertese, and explained to my sister about how Dr. Gold found the mets in the first place, so why can't he figure out how things are going? HE CAN!! Then she said I was right. Besides, since dad would probably refuse any further treatment should he experience brain mets again, there was no point in making him go to this Dr. and wait and possibly never be seen or called. Its weird, the neurosergeon was SO NICE, and SO great with treatment and with talking to my dad. We really liked him.. I don't know what has happened that the treatment of his patient has deteriorated like this, its really mind boggeling. And frustrating. Well, thats it for now. Thanks for the outlet, guys. Take care of yourselves and please know that you are all in my prayers and I think of you guys CONSTANTLY through the day. Prayers are always appreciated. Thanks again, take care, Deb Quote Link to comment Share on other sites More sharing options...
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