cathyjack Posted September 26, 2004 Share Posted September 26, 2004 My husband and I are interested in the vaccine trails. We would appreciate it if anyone here who is involved in a vaccine trail if you would share your experince with us. Thanks! CathyW Quote Link to comment Share on other sites More sharing options...
john Posted September 27, 2004 Share Posted September 27, 2004 Here are 11 trials found at www.clinicaltrials.gov http://www.clinicaltrials.gov/ct/search ... ne%2Cnsclc There may be more trials. You can ask your doctor. Geoff on this board knows of some Dendritic cell vaccines. Dendritic cells are the cells that act like "WANTED" posters at the post office. They allow the body to detect a foreign cell "non self" and lead the attack. They have memory in a sense. The problem as you may know with cancer is that the body can not determine "self" from "non self (cancer)" so there is no immune response. Dendritic cell vaccines like others train the body to recognize the cancer. Quote Link to comment Share on other sites More sharing options...
Elaine Posted September 27, 2004 Share Posted September 27, 2004 John I have seen it a few times, so I thought I would ask. Why would it take 5 years to recruit patients. One of these trials has been recruiting since July of 1999? I have seen others that are ongoing for several years, as far as recruitment, too. How can they ever finish a trial, if recruitment takes that long? Quote Link to comment Share on other sites More sharing options...
lilgna Posted September 27, 2004 Share Posted September 27, 2004 I am currently on the HyperAcute Lung Cancer vacine with the NIH, I agree the best sourch of clinical trials, including vacines are the lists at the site through the NIH. clinicaltrials.gov I believe, I have had no real side effects, very slight at best. My cancer is still stable and the long term effects are still unknown. This is a Phase I trial. Research. and then be persistant if you relly are intersted, is my best advice. I wish you the best of luck .... Prayers for us all..... Quote Link to comment Share on other sites More sharing options...
john Posted September 28, 2004 Share Posted September 28, 2004 Elaine, I think people are scared of trials and a sometimes doctors don't know they are there. Not sure. One problem could be the bad press that trials are getting as far as disclosure of bad trials. There are so many restrictions on entry to trials and sometimes it is a pain to actually find one if you are not in a big city. Maybe if the clinical trial system could be more accomodating to some extent (without jepordizing the results) that would help I think personally it does not make sense to restrict someone from entering a EGFR trials when they have failed a previous one. My thinking is - since they are different drugs and thus different chemical structures (ways of working) why can't a patient try another EGFR drug? Of course you want there to be a good possibility that it works but what if there is nothing else available. Soon there is supposed to be a database of all the trials results. Currently, it is pretty hard to get really good data on results and I think for almost everyone very had to interpret. My mom went in a trial because she thought it might help her but ALSO in the long run it would hopefully help someone else. John Quote Link to comment Share on other sites More sharing options...
cathyjack Posted September 29, 2004 Author Share Posted September 29, 2004 Thank you all for your responses, very helpful!! Cathy Quote Link to comment Share on other sites More sharing options...
Geoff Posted September 30, 2004 Share Posted September 30, 2004 Here is a good site for info: http://www.dendritic.info/ Check the trials section for trials Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted September 30, 2004 Share Posted September 30, 2004 Cathy, Mary Crowley's Research Center in Dallas at Baylor Hospital will be doing a trial in the near future using other peoples cancer to make a vaccine. I will probably do it after my trial of CT2103. Cheryl Quote Link to comment Share on other sites More sharing options...
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