TAnn Posted September 27, 2004 Share Posted September 27, 2004 I just got the call today from my onc. to tell me the results of the brain MRI I had done a week ago. I have 6 brain mets. He says they are VERY small, in fact so small that he can hardly believe they would cause any symptoms....like the headaches. But, leave it to me to "throw 'em for a loop"..... I have a consult with the radiation dept. on Wednesday to discuss WBR. I know many of you have had this procedure and I would sure appreciate anything you can tell me about what to expect and what questions I should ask. And what the actual procedure itself is like. I have not had any kind of radiation at all, so I am clueless and scared . Thank you and I am praying for all of us... TAnn Quote Link to comment Share on other sites More sharing options...
luvmydog2 Posted September 27, 2004 Share Posted September 27, 2004 Sorry to hear this TAnn. I have not had radiation to the brain or mets there so I can not offer you any help there. I did have radiation to the chest but I am sure the brain is different. There are lots of people here who have had brain mets and am sure you will be getting more replies. Hang on and don't let this dip in the road get you down. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted September 27, 2004 Share Posted September 27, 2004 My reply is basically like Bruce. Keep heart and keep battling. Like you have a choice!?! Curtis Quote Link to comment Share on other sites More sharing options...
john Posted September 27, 2004 Share Posted September 27, 2004 You might want to ask about things like Temador and RSR13 RSR13 is a radiosensitizer. I think the theory is that they can limit the radiation dose, but get the same effect because it sensitizes the met to radiation. Temodar is a a oral chemotherapy that will pass the blood-brain barrier. I think neither are FDA approved yet for mets, they are in clinical trials. Quote Link to comment Share on other sites More sharing options...
gail Posted September 27, 2004 Share Posted September 27, 2004 Just wishing you the best . . . You don't look old enough to be his mother!!!! gail Quote Link to comment Share on other sites More sharing options...
Elaine Posted September 27, 2004 Share Posted September 27, 2004 TAnn My heart is breaking for you because I know how frightened you must be. I can guarantee that the full force of love from this website will gather around you as you zap those beasts. They are small, Tann, and love is large! Besides your family, you have all of us. I wish there were more that I could do. elaine Quote Link to comment Share on other sites More sharing options...
ginnyde Posted September 27, 2004 Share Posted September 27, 2004 Tann, I am so saddened by your news. Earl had WBR and other than losing his hair and having some fatigue, he breezed through it. Quote Link to comment Share on other sites More sharing options...
Elaine Posted September 27, 2004 Share Posted September 27, 2004 Here is the latest on the treatement John talked about. http://ir.allos.com/phoenix.zhtml?c=125 ... highlight= Quote Link to comment Share on other sites More sharing options...
lilgna Posted September 27, 2004 Share Posted September 27, 2004 Tann, I am so sorry for your latest news, but, please remain positive, things will look up.......Prayers coming your way Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted September 27, 2004 Share Posted September 27, 2004 T Ann, Sorry to hear this news,I have had radiation but not to the brain.Many on here have and I'm sure you'll hear from them.As the others I'm on your side.Must be scary but hang in there and kick the sh** outta em. Quote Link to comment Share on other sites More sharing options...
MayFrog Posted September 27, 2004 Share Posted September 27, 2004 TAnn.....sorry for this news, but will be sending all kinds of good thoughts your way. I can understand the stress you've been under this past week waiting: I'm having a Brain MRI tomorrow to look for mets, and will be a basket case waiting on the results. Best wishes to you, Mary Quote Link to comment Share on other sites More sharing options...
MayFrog Posted September 27, 2004 Share Posted September 27, 2004 TAnn.....sorry for this news, but will be sending all kinds of good thoughts your way. I can understand the stress you've been under this past week waiting: I'm having a Brain MRI Wednesday to look for mets, and will be a basket case waiting on the results. Best wishes to you, Mary Quote Link to comment Share on other sites More sharing options...
TeeTaa Posted September 27, 2004 Share Posted September 27, 2004 Boy am I tired of reading about so many people here developing brain mets! Doesn't there seem to be an epidemic of it these days? TBone actually handled his 15 WBR treatments very well, but did lose his hair after the 7th or 8th one. Other than that though, it really didn't have much effect on how he felt. I would imagine that you're having a rough time with this, as would anybody. Maybe if you go back to those old, old posts (January of this year) and refer to all the ideas submitted as creative uses for your radiation mask, you can at least have a laugh or two. I'll try to find it for you. The LEAST I can do is try to bring a smile to your face. Praying for us all, TeeTaa Quote Link to comment Share on other sites More sharing options...
Ry Posted September 27, 2004 Share Posted September 27, 2004 I am sorry about the brain mets...but it is fortunate they were found early. Hang in there. Quote Link to comment Share on other sites More sharing options...
Snowflake Posted September 28, 2004 Share Posted September 28, 2004 TAnn, I'm SO VERY GLAD you had symptoms before you were "supposed to"! Maybe with them being so small the treatment won't be as hard on you... I have not been where you are, so I have no specifics to share. Just know that I am here for you whenever you need someone to talk to - I'll even send you my phone number if you'd like. Hang in there, girl! They may be there, but it sounds like you have a headstart at heading 'em off, so to speak! Hugs, Becky Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted September 28, 2004 Share Posted September 28, 2004 TAnn, Very sorry to hear that but I'm glad was found early for treatment(s). Have no experience with that. Just want you to know my thoughts and prayers are with you for the best of results. Peace, take care and God Bess. Rich Quote Link to comment Share on other sites More sharing options...
stand4hope Posted September 28, 2004 Share Posted September 28, 2004 TAnn, RATS!!!!!! I really didn't think you would be coming back with this kind of post, but since you have, guess we'll just have to blast those critters straight to hell where they belong! My husband had WBR. His hair came out on the 8th day of treatment, he had some fatigue, and got a very, very dry scalp. Other than that, and a little confusion for a short period of time, he did great, and is still doing great. If he's absent-minded now, I blame it on age instead of WBR! The fear is normal, and if I had to have it done to myself, even knowing that he did ok, I would be afraid, too. Some of that just comes from the fact those varmits are there. ZAP'EM!!!!! Love, Peggy Quote Link to comment Share on other sites More sharing options...
paddy Posted September 28, 2004 Share Posted September 28, 2004 TAnn, I know this sounds horribly scary, I was scared for my husband when they told him he had to have WBR, however, we are on his twelth day now and the only problems he has had is a little muscle weakness in his legs. He has not had any extra fatigue, in fact, he says he feels a lot better. He is being slowly weaned off the steroids which the Drs. gave him to take down the swelling around the tumors. When he went for his first appointment the neurologist gave him a short examination and then they made a mask to fit his face exactly. Apparently it is a sort of net mask and it feels warm when they put it on at first but other than that it was not unpleasant at all. Dave is going every day for three weeks and he says it takes about ten minutes for each session. He tells me it's a "piece of cake!" Zap these things my Dear and feel better soon. Paddy Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted September 28, 2004 Share Posted September 28, 2004 TAnn, I am sick to hear about this for you. You certainly don't deserve this. Of course you are scared my Dear. The unknown is always scarey. but you have conquered some pretty heaviy duty treatments thus far. You are truely a cancer warrier. The mets are very small, and very treatable right now. I myself have always feared getting them, and am not immune from getting them still. I wish that I could somehow make you feel better. I wish I could make them disappear for you. Don't worry TAnn, this treatment will make them disappear for you. You are in my prayers and thoughts, Cheryl Quote Link to comment Share on other sites More sharing options...
Amy P Posted September 28, 2004 Share Posted September 28, 2004 Oh TAnn - I am so sorry to hear this. Glad they were caught while they were small. Will keep you in my thoughts and prayers and hope, like Frank, that the radiation kicks the crap out them. Hang in there! Much Love, Amy Quote Link to comment Share on other sites More sharing options...
NellW Posted September 28, 2004 Share Posted September 28, 2004 So sorry you got this scarey news, Tann, but glad they are small, and like Becky said glad you had early symptoms. I will be praying for you to breeze through this like some of the others have, and to kick those mets out!! Love, Nell Quote Link to comment Share on other sites More sharing options...
Tiny Posted September 28, 2004 Share Posted September 28, 2004 Tann- Bummers-ville!!! But I'm glad they caught them while they are small. Praying for you. Quote Link to comment Share on other sites More sharing options...
Nushka Posted September 28, 2004 Share Posted September 28, 2004 T-Ann, So sorry to hear about the mets. It is a good thing that you found them when they are small and have a better chance of responding well. I know you are scared. I would be hysterical...but others have gotten through it well. About all of us that haven't experienced it yet can do is rely on their results. I hope your response is wonderful and that those critters are zapped for good. I also wish you NO BAD SIDE EFFECTS. I will keep you in my prayers...let us know how you are doing. Nina Quote Link to comment Share on other sites More sharing options...
J.C. Posted September 28, 2004 Share Posted September 28, 2004 TAnn, Found very early is the best and you did. Thoughts and prayers going your way. J.C. Quote Link to comment Share on other sites More sharing options...
kate1621 Posted September 28, 2004 Share Posted September 28, 2004 Boy, that sucks, but--ditto. Glad you found it early on. Go get 'em. Kill 'em. Me and mine are thinking of you and yours. Kate Quote Link to comment Share on other sites More sharing options...
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