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  1. Good morning everyone, I have only written a couple times in this forum, but I have to express how deeply grateful I am for this resource. My dad passed away last Wednesday and I don't want this to worry anyone or bring anyone else's positive thinking down, but I just had to express that gratitude. Fighting cancer is so difficult. It's not a battle anyone has chosen and fight/battle seems like an inconsiderate way to describe it, because so much of the outcome is out of our control and those who lose the battle are not weak and did not choose to go. My dad was originally given 5 months to live and he lived 15. He was determined to hold on. As my sister and I process this grief and nurture the emptiness we are feeling, I can't help but feel like an entire village of people helped me through and this resource is part of that. I don't know what life holds for me, but I am constantly reminded how kind and beautiful human beings can be. Thank you all for everything. My life has fundamentally changed from the passing of my dad, but I will look at him with fond memories and celebrate him by being kind, determined and empathetic to every soul I meet. So much love to you all. Holding all of you in the light. Lily
  2. Hello, my name is Christine. In Nov 2016, my Mom was diagnosed w/ Stage IV metastatic adenocarcinoma NSCLC (primary: right lung, spread to both adrenal glands, brain & right proximal tibia). She had surgery to remove the tumor in her right tibia, which they filled with bone cement to stabilize the bone. She has completed whole brain radiation, radiation to the right tibia, 2 rounds of chemo: Paraplatin (Carboplatin), Alimta (Pemetrexed) & Avastin (Bevacizumab) & 6 Opdivo (Nivolumab) treatments. The chemo & Opdivo were both unsuccessful. Since her last scans 3 months ago, the cancer is spreading/growing in the bones (spine, hip, both tibia, left fibula, & sacrum) in her lung, adrenal glands (lung tumor & adrenals mets doubled) & possible spot on the liver. The good news is the WBR radiation helped, out of the 13 mets only 1 is left. It seems as her cancer is receptive to radiation but not chemo or immunotherapy. The remaining treatment options are becoming scarce. The Oncologist offered 3 options: 1- Do nothing. See her once a month, if possible treat pain/issues as they arise. The Oncologist estimates life expectancy to be 3-6 months. 2- Chemo: Docetaxel 1x every 3wks. 3- Chemo: Gemcitabine 1x every week for 3 weeks per month. Estimated life expectancy for both chemo options is 6-12 months. However, based off her chemo history her QOL will be severely impacted. My Moms primary goal is quality of life & has chosen to treat issues as they arise. Tomorrow, her 72nd birthday, she will have her 1st of 5 radiation treatments to mets in her right tibia & fibula b/c they are causing severe pain. Sorry for the excessive details, I'm emotional, confused & scared. My main objective in writing tonight is to ask the tough question, what generally happens when treatment is basically stopped. I know everyones situation is different, so there wont be a cookie cutter answer. I'm looking for honest, straight forward, even blunt info as to what we are facing as this disease keeps spreading.
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