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  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      34.9k
      posts

  2. STORIES OF SURVIVORSHIP

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      1.9k
      posts

  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      90.5k
      posts

    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express the thoughts and issues that are specific to people living with lung cancer.

      8.6k
      posts

    3. NSCLC GROUP

      A forum where general thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      41.5k
      posts

    4. SCLC GROUP

      A forum for patients and caregivers impacted by Small Cell Lung Cancer. Share latest SCLC news, information and get and give support here.

      15.4k
      posts

    5. CAREGIVER RESOURCE CENTER

      A forum for FAMILY MEMBERS/CAREGIVERS: Air your feelings, get and give support from others who are co-surviving lung cancer. Post and share resources for caregivers here.

      29.2k
      posts

    6. LGBTQIA2S+ SUPPORT AND RESOURCES

      This is a private community for LGBTQIA2S+ individuals affected by lung cancer, where you can share your experiences, find support, and connect with others who understand your unique journey. Together, we create a safe and compassionate space to navigate the challenges and triumphs of living with lung cancer, while ensuring everyone's privacy and treating each other with the utmost respect.

      7
      posts

    7. NATIONAL HEALTH SYSTEM TREATMENT

      This forum is for patients to discuss the unique challenges of receiving lung cancer treatment in countries who have a National Health System. Navigating diagnosis difficulties and dealing with treatment availability are important topics to members receiving treatment within a National Health Care System.

      4
      posts

    8. US VETERANS

      This is a forum for all US veterans impacted by a lung cancer diagnosis. This forum is moderated by a veteran-survivor.

      21
      posts

  4. TREATMENT FORUMS

    1. CHEMOTHERAPY

       A forum for patients and caregivers impacted by chemotherapy treatment. Connect here to offer insight, get advice and peer support. Share Information and news about chemotherapy here.

      1.2k
      posts

    2. IMMUNOTHERAPY

      A forum for those on or interested in immunotherapy treatments, latest news and peer support.

      2.2k
      posts

    3. RADIATION

      A forum for patients and caregivers impacted by radiation. Connect here to offer insight, get advice and peer support. Share Information and news about radiation and new radiation therapies here.

      397
      posts

    4. SURGERY

      A forum to discuss lung cancer surgeries, share experiences, get and give support.

      506
      posts

    5. SUPPORTIVE CARE

      A forum about supportive/palliative care. Learn about palliative care for lung cancer survivorship, get advice and support and share your resources here.

      17
      posts

  5. LUNG CANCER NAVIGATOR

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      751
      posts

  6. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      10.7k
      posts

    2. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3.3k
      posts

  7. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      543
      posts

    2. HOPE

      Inspire us with your good news and hopeful articles!

      33.1k
      posts

    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      40.5k
      posts

  8. SUPPORT

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      454
      posts

  9. GRIEF

    1. GRIEF

      A forum for anyone who has lost a loved one to lung cancer. Post general updates, memorial notices and any tributes here. Share resources for those who may be grieving.

      37.9k
      posts

  10. TERMS OF USE

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      34
      posts

  • Member Statistics

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    Total Members
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    Most Online
    Rach RN
    Newest Member
    Rach RN
    Joined

  • Forum Statistics

    45.4k
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    423.2k
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  • Recent Discussions

    • Rach RN
      HER2+ lung cancer

      By Rach RN · Posted

      Sally, I have Stage IV squamous cell carcinoma and all of my genetic and molecular testing has shown high HER-2 expression. I was diagnosed in March 2024 and initally responded to Abraxane, Carboplatin, Opdivo, and Yervoy. When I finished my chemo course and went to the Immumotherapy alone, I had progression that caused me to become symptomatic with a severe cough and shortness of breath. I just had my second dose of Enhertu today but after my first infusion my cough and shortness of breath drastically improved! I am very excited about this new treatment option for those of us who are in the minority with NSCLC and Her-2 mutation. Best wishes to you!    Rachel 
    • Tmph1980
      Combined small cell carcinoma and large cell neuroendocrine carcinoma?

      By Tmph1980 · Posted

      I'm reading the report more and doing a lot of research. It appears that LCNEC and SCLC have a lot of overlap when they're diagnosing; looking at what genes are expressed, it looks like she is SCLC-P, and there is some information on immunotherapies and drugs that people with this type of SCLC respond better to. There was an article about Zepzelca + Tecentriq published literally today that is promising, and the type of SCLC she has seems to respond to the active medicine in Zepzelca. So I feel like I have an avenue for checking this all out.  
    • bgh
      My experience with lung cancer

      By bgh · Posted

      I thought of sharing my experience here in case others like me are searching for information. I am 50m, never smoked, and no real history of cancer on either my mom or dad’s side. So cancer was the last thing on my mind. I had chest pains after running about this time last year and I happened to casually mention it to my primary care physician during my annual physical. I thought it was the result of gas in my stomach as I was experiencing abdominal discomfort at that time. He surprisingly took it seriously and had me go through a battery of tests which culminated in a CT angiogram as the stress test showed some abnormality. That scan showed an incidental finding of multiple pulmonary nodules including a 10mm part-solid ground glass nodule (GGO) with a solid center in my lower right lobe. My primary care physician was not too concerned, and it would have been easy for me to ignore it. However, I have a friend who had exactly this kind of a nodule discovered incidentally just a few years back and had eventually gotten it removed last year (as it had not gone away) and it turned out to be malignant. And because of this I followed up with a thoracic surgeon who told me to have a repeat scan in six months (he was also not too concerned initially and said it could be due to any number of benign reasons including sarcoidosis). Six months later I have the repeat scan and the nodule was still there and had not significantly changed. However the radiologist report said it could represent “adenocarcinoma spectrum lesion” and my thoracic surgeon was now concerned it was cancer. I was stunned as I thought I should not be at risk for lung cancer as a never smoker. My surgeon recommended segmentectomy and he said it would be taken out fully and my lung function would not be materially impacted as it was a very small piece of tissue that would be removed. I agreed first and then dilly-dallied and eventually got a second opinion and got the same conclusion. It was suspicious for cancer. While still in a little bit of denial I did have the surgery early September and was still shocked to learn it was “minimally invasive adenocarcinoma” with a 4mm invasive component. Lymph nodes were negative and there was at least a 2cm margin. I believe I am fully cured from this although meeting with an oncologist soon to see what they think. I feel so fortunate and blessed that this was caught in the early stages. I do have to undergo periodic surveillance CTs to monitor my other nodules that are sub-5mm so far. The doctors and nurses in this hospital (large academic center in Boston) were outstanding in their care. I believe early screening and detection can really help - that is what saved me.
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