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  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      44.1k
      posts

  2. STORIES OF SURVIVORSHIP

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      1.9k
      posts

  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      95.8k
      posts

    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express the thoughts and issues that are specific to people living with lung cancer.

      9.1k
      posts

    3. NSCLC GROUP

      A forum where general thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      43.1k
      posts

    4. SCLC GROUP

      A forum for patients and caregivers impacted by Small Cell Lung Cancer. Share latest SCLC news, information and get and give support here.

      15.5k
      posts

    5. CAREGIVER RESOURCE CENTER

      A forum for FAMILY MEMBERS/CAREGIVERS: Air your feelings, get and give support from others who are co-surviving lung cancer. Post and share resources for caregivers here.

      29.2k
      posts

    6. LGBTQIA2S+ SUPPORT AND RESOURCES

      This is a private community for LGBTQIA2S+ individuals affected by lung cancer, where you can share your experiences, find support, and connect with others who understand your unique journey. Together, we create a safe and compassionate space to navigate the challenges and triumphs of living with lung cancer, while ensuring everyone's privacy and treating each other with the utmost respect.

      7
      posts

    7. NATIONAL HEALTH SYSTEM TREATMENT

      This forum is for patients to discuss the unique challenges of receiving lung cancer treatment in countries who have a National Health System. Navigating diagnosis difficulties and dealing with treatment availability are important topics to members receiving treatment within a National Health Care System.

      4
      posts

    8. US VETERANS

      This is a forum for all US veterans impacted by a lung cancer diagnosis. This forum is moderated by a veteran-survivor.

      21
      posts

  4. TREATMENT FORUMS

    1. CHEMOTHERAPY

       A forum for patients and caregivers impacted by chemotherapy treatment. Connect here to offer insight, get advice and peer support. Share Information and news about chemotherapy here.

      1.2k
      posts

    2. IMMUNOTHERAPY

      A forum for those on or interested in immunotherapy treatments, latest news and peer support.

      2.2k
      posts

    3. RADIATION

      A forum for patients and caregivers impacted by radiation. Connect here to offer insight, get advice and peer support. Share Information and news about radiation and new radiation therapies here.

      397
      posts

    4. SURGERY

      A forum to discuss lung cancer surgeries, share experiences, get and give support.

      506
      posts

    5. SUPPORTIVE CARE

      A forum about supportive/palliative care. Learn about palliative care for lung cancer survivorship, get advice and support and share your resources here.

      17
      posts

  5. LUNG CANCER NAVIGATOR

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      751
      posts

  6. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      10.7k
      posts

    2. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3.3k
      posts

  7. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      543
      posts

    2. HOPE

      Inspire us with your good news and hopeful articles!

      33.1k
      posts

    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      40.5k
      posts

  8. SUPPORT

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      471
      posts

  9. GRIEF

    1. GRIEF

      A forum for anyone who has lost a loved one to lung cancer. Post general updates, memorial notices and any tributes here. Share resources for those who may be grieving.

      37.9k
      posts

  10. TERMS OF USE

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      34
      posts

  • Member Statistics

    15,564
    Total Members
    7,889
    Most Online
    Daphnie
    Newest Member
    Daphnie
    Joined

  • Forum Statistics

    45.4k
    Total Topics
    423.3k
    Total Posts

  • Blog Entries

  • Upcoming Events

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  • Recent Discussions

    • edivebuddy
      ROS1 detected now

      By edivebuddy · Posted

      Hopefully the new treatments are effective for many years. 
    • edivebuddy
      NSCLC - stage 3 -pre-op

      By edivebuddy · Posted

      I'm really sorry you're going through this.  it’s such a difficult and deeply personal experience. It does seem strange and frustrating to be presented with contradictory information, so I want to share what I’ve learned: Surgery remains the best option for achieving long-term survival in lung cancer, especially when the tumor can be completely removed. There’s no real debate about this. surgery offers the greatest chance of long-term survival when paired with other treatments as needed. The addition of adjuvant therapies, like chemotherapy or immunotherapy, can further improve outcomes by targeting any remaining cancer cells after surgery. Immunotherapy, in particular, has shown incredible results for some patients, with durable remissions that wouldn’t have been possible before. But, and this is important, it doesn’t work for the majority of patients, which makes it less reliable when used on its own. I hope this helps you navigate some of the mixed messages out there. If you have specific questions or concerns, don’t hesitate to ask or discuss them with your care team—even if it means asking the same thing in 10 different ways. While we can share what we know, offer support, and provide alternative points of view, only your care team has the specific knowledge to guide your personal care.
    • LouT
      NSCLC - stage 3 -pre-op

      By LouT · Posted

      Hi Jeannie, Welcome to our forums.  I see your post is dated "Tuesday @ 3:02pm", but the first time it showed up for me was just a little while ago.  So, I sure hope that is a time-stamp error and not that you waited almost a week for a response. Okay...onto the crux of your questions.  It seems your surgeon is referencing more around the surgery and in a conversation with your oncologist those risks seemed to be highlighted to the point where you are now doubtful if surgery is the answer or not.  Nobody here is a doctor so we will not weigh in with an opinion on the best option. Having said the above disclaimer I would recommend you take some actions:   If you heard different risks from your oncologist than your surgeon have another conversation with the surgeon to get more clarity on those risks.  At the stage you are on this journey many of us amplified or heard things differently and with different weight than what was said to us.  It's normal and understandable considering the stress we go through with a recent LC diagnosis. For cancers that have progressed without a clear mutation or other indicators for Targeted or Immunotherapy surgery is the standard treatment to ensure that the most cancer cells are removed.  You don't say what type of cancer you have (adeno, squamous, NSCLC or SCLC) so no one can comment specifically for a therapy they had that was successful under similar circumstances.  The oncologist can usually provide a clear picture of which treatment would provide the best chance of reducing the cancer in the body and leaving fewer cells behind that could cause a recurrence.  Again you need to have this conversation with both your doctors or at least your oncologist. If you are going to have the surgery there is a blog titled "Tips and Tricks For Thoracic Surgery" click on the title to get to the article.  It will provide my experience pre-surgery, hospital stay, and post-surgery on how to best weather the process. One of our long-time members was diagnosed with Stage 3 cancer (that then went to Stage 4) over 20 years ago and he wrote a blog titles "10 Steps to Surviving Lung Cancer, From a Survivor".   This is a must read for all newcomers to our forum regardless of of cancer type, stage or other factors. Please have the aforementioned conversations with your doctors and then let us know if you have any questions as well as providing an update so we can better support you. Lou
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