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  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      43.8k
      posts
  2. STORIES OF SURVIVORSHIP

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2.3k
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      95.7k
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express the thoughts and issues that are specific to people living with lung cancer.

      9.1k
      posts
    3. NSCLC GROUP

      A forum where general thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      43.6k
      posts
    4. SCLC GROUP

      A forum for patients and caregivers impacted by Small Cell Lung Cancer. Share latest SCLC news, information and get and give support here.

      16.6k
      posts
    5. CAREGIVER RESOURCE CENTER

      A forum for FAMILY MEMBERS/CAREGIVERS: Air your feelings, get and give support from others who are co-surviving lung cancer. Post and share resources for caregivers here.

      29.6k
      posts
    6. LGBTQIA2S+ SUPPORT AND RESOURCES

      This is a private community for LGBTQIA2S+ individuals affected by lung cancer, where you can share your experiences, find support, and connect with others who understand your unique journey. Together, we create a safe and compassionate space to navigate the challenges and triumphs of living with lung cancer, while ensuring everyone's privacy and treating each other with the utmost respect.

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    7. NATIONAL HEALTH SYSTEM TREATMENT

      This forum is for patients to discuss the unique challenges of receiving lung cancer treatment in countries who have a National Health System. Navigating diagnosis difficulties and dealing with treatment availability are important topics to members receiving treatment within a National Health Care System.

      4
      posts
    8. US VETERANS

      This is a forum for all US veterans impacted by a lung cancer diagnosis. This forum is moderated by a veteran-survivor.

      51
      posts
  4. TREATMENT FORUMS

    1. CHEMOTHERAPY

       A forum for patients and caregivers impacted by chemotherapy treatment. Connect here to offer insight, get advice and peer support. Share Information and news about chemotherapy here.

      1.2k
      posts
    2. IMMUNOTHERAPY

      A forum for those on or interested in immunotherapy treatments, latest news and peer support.

      2.2k
      posts
    3. RADIATION

      A forum for patients and caregivers impacted by radiation. Connect here to offer insight, get advice and peer support. Share Information and news about radiation and new radiation therapies here.

      397
      posts
    4. SURGERY

      A forum to discuss lung cancer surgeries, share experiences, get and give support.

      506
      posts
    5. SUPPORTIVE CARE

      A forum about supportive/palliative care. Learn about palliative care for lung cancer survivorship, get advice and support and share your resources here.

      17
      posts
  5. LUNG CANCER NAVIGATOR

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      751
      posts
  6. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      10.8k
      posts
    2. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3.5k
      posts
  7. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      535
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      33.1k
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      40.5k
      posts
  8. SUPPORT

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      466
      posts
  9. GRIEF

    1. GRIEF

      A forum for anyone who has lost a loved one to lung cancer. Post general updates, memorial notices and any tributes here. Share resources for those who may be grieving.

      37.9k
      posts
  10. TERMS OF USE

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      34
      posts
  • Member Statistics

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  • Recent Discussions

    • Wow - amazing story, information and pics!  You truly are a walking miracle and I know you already realize that.  Thanks for all you do to help support and inform others....
    • ← The results are in.   September 2020 Well first dose of keytruda in and I'm still tired all the time.  Family is here helping to clean up after the hurricane. I have almost no memory of this.  I'm hot then cold. Restless then all I want to do is sleep. Taking the Meds and tea is keeping the nausea away but still afraid to eat especially when I'm not really hungry.  Did have an unexpected visitor.  One of the things I love about our home is the abundance of wildlife. Dolphins, bears, gators, to a fox squirrel.  Birds of prey are regulars but todays was extra special. A migrating Peregrine falcon. He let me take a picture before he flew off. A special rare treat. And considering Saint  Peregrine is the patron saint of cancer patients it's even more special. New treatment is carboplatin ,pemetrexed (Avastin) and pembrolizumab (Keytruda) by IV every 3 weeks. We're going to do 4 to 6 treatments of all 3 then switch to Avastin and keytruda for 2 years. They sound Way more optimistic now. Pemetrexed is an Antifolate. It blocks folic acid (vitamin b9). Folic acid is required for DNA and RNA production.  Both are needed by normal and cancerous cells.  Because cancerous cells metabolize faster they take up more and hopefully die. Unfortunately like all chemotherapies it's not without some serious side effects.  Because of these some are administered steroids around the time of injection.  Oral  Folic acid needs to be taken daily. And a vitamin B12 shot needs to be given every 3 weeks even if your B12 levels are normal. This needs to be by injection and not orally. B12 is not produced in plants and comes from eating animal meat.  It's why I'll never be a vegan. B12 deficiency can lead to neuropathy and permanent brain deficiencies.  My brain was deficienct before cancer definitely don't need more. Now Keytruda is an immunotherapy.  There are many forms of immunotherapy. A vaccine is a form of immunotherapy as is that Claritin .  Keytruda is specifically a Checkpoint inhibitor. It's an antibody that binds to PD-1.  The protein program cell death 1 is an off switch found on T and B cells. It stops the immune system from attacking healthy cells. It also unfortunately protects some cancers.  PD-L1 and PD-L2  found on cancer cells bind to the PD-1 site of the t and b cells without signalling the down regulation.  This blocks both PD-L1 and PD-L2 on cells from turning off the cells.  Like putting a piece of tape over a light switch to keep it from being turned off.   It's not a vaccine.  It does not teach your immune system how to fight the cancer. It does not strengthen your immune system.  Your immune system needs to be able to see and fight the cancer or keytruda is not going to work.  If you take the rape off the light switch, it's going to turn on or off until someone flips the switch. Supposedly keytruda can work miracles.  I now it did so for Jimmy Carter.  I don't want to die but the statistics are extremely dismal .  No one is supposed to survive a skin metastasis from lung cancer.   Here  is my skin met on September 8th. it started was smaller  looked like a pimple. Now something is behind it.   This is September 24th right before keytruda.   Up next can this be for real.
    • Thanks edlivebuddy. I am not going to go crazy trying to figure out why...or try not to anyway.  I didn't mean to imply Lynch syndrome could be a culrpit. It has just been a topic of concern and focus in my family over the last few years so it makes me think of genetic elements.  I am pretty sure the why will remain a mystery. But, if I can get some genetic testing done and find out more about my makeup it may point in the direction of necessary vigilance in other areas. I don't want to spend my days buying trouble though either. Mostly I am going to focus on better nutrition and getting back to swimming and tennis and traveling and being thankful for every crazy day. 
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