Jump to content
  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      38,533
      posts
  2. STORIES OF SURVIVORSHIP

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,376
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      98,758
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express the thoughts and issues that are specific to people living with lung cancer.

      9,255
      posts
    3. NSCLC GROUP

      A forum where general thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      43,245
      posts
    4. SCLC GROUP

      A forum for patients and caregivers impacted by Small Cell Lung Cancer. Share latest SCLC news, information and get and give support here.

      16,593
      posts
    5. CAREGIVER RESOURCE CENTER

      A forum for FAMILY MEMBERS/CAREGIVERS: Air your feelings, get and give support from others who are co-surviving lung cancer. Post and share resources for caregivers here.

      30,627
      posts
  4. TREATMENT FORUMS

    1. CHEMOTHERAPY

       A forum for patients and caregivers impacted by chemotherapy treatment. Connect here to offer insight, get advice and peer support. Share Information and news about chemotherapy here.

      604
      posts
    2. IMMUNOTHERAPY

      A forum for those on or interested in immunotherapy treatments, latest news and peer support.

      940
      posts
    3. RADIATION

      A forum for patients and caregivers impacted by radiation. Connect here to offer insight, get advice and peer support. Share Information and news about radiation and new radiation therapies here.

      182
      posts
    4. SURGERY

      A forum to discuss lung cancer surgeries, share experiences, get and give support.

      304
      posts
    5. SUPPORTIVE CARE

      A forum about supportive/palliative care. Learn about palliative care for lung cancer survivorship, get advice and support and share your resources here.

      27
      posts
  5. LUNG CANCER NAVIGATOR

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      624
      posts
  6. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      11,306
      posts
    2. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      4,079
      posts
  7. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      511
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,759
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      42,191
      posts
  8. SUPPORT

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      502
      posts
  9. GRIEF

    1. GRIEF

      A forum for anyone who has lost a loved one to lung cancer. Post general updates, memorial notices and any tributes here. Share resources for those who may be grieving.

      42,060
      posts
  10. TERMS OF USE

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      12
      posts
  • Member Statistics

    13,007
    Total Members
    7,889
    Most Online
    debrasdaughter
    Newest Member
    debrasdaughter
    Joined
  • Forum Statistics

    44,015
    Total Topics
    422,543
    Total Posts
  • Blog Entries

  • Upcoming Events

    No upcoming events found
  • Recent Discussions

    • Hi Everyone, I joined this forum because my mom is recently diagnosed with lung adenocarcinoma in China. It is a big shock to me and my family since she never smoked in her 70-year of life and we never had a relative who had any forms of cancer. My dad is a life-long smoker though. Cancer seemed so far away to me before and suddenly it is just right in front. I have done a lot of online research last month and it is still a lot to take.  I want to be more informed about lung cancer and its latest treatment through this community, and want to be part of group of people with similar experiences. My mom was coughing for over a month and went to see the doctor in early June. The CT scan showed a tumor in lower right lung about 3 cm in size. She then had PET CT, MRI, bone scan, and enhanced CT. None of those showed the cancer has spread. However, during the micro invasive surgery, the doctor found out the cancer has spread to the upper and mid right lung and stopped the surgery without touching the tumor, but did took small piece of tissue with a spread dot for biopsy and genetic testing. The genetic test of blood showed nothing. But the genetic test of the tissue sample showed EGFR 19-Del mutation. Her doctor prescribed Gefitinib (Iressa) for her first line treatment last week, saying her mutation responds very well to Gefitinib. However, i read that NCCN guideline is to use the 3rd generation TKI, Osimertinib (Tagrisso), as the first line treatment for EGFR mutation. Not sure if anyone here can shed some light here that which one is a better option.  Also, I live in New Jersey. Are there any local groups in either New Jersey or New York that i can join? Thanks you, Min
    • Hi, I know this is an old thread but I wonder if any of you had advice re KRAS and Stage IV NSCLC.  My mother-in-law was diagnosed October 2018 with Stage 3, N2, underwent chemo-radiation for 6 weeks.   In January she started durvamulab.  In addition to KRAS, she has a very high PDL1 expression (90%), but was not a smoker.  Her lung tumor and lymph nodes now appear clear, but she had metastasis to her skull identified in May and now appears to have mets to her L4, which will be treated with targeted radiation, and may have another bone tumor in her skull.   Her oncologist is considering whether to change her immunotherapy drug as durva hasn't seemed to have helped as well as whether another round of chemo may be warranted.    Curious if there was any connection between Opdivo and KRAS; or if you have any insights into KRAS related trials that could be worth considering.  We're in NYC, but I wonder if there's non-NYC institutions we should be connecting with. Thanks so much for reading.  Sending lots of love and best wishes  
    • Hi Shayla, You landed in the right place with many other prayer warriors. The best thing about your post is treatment options, there have been more advances with lung cancer treatment in the last five years than the last 50.  There are lots of options available to provide a high quality of life.     The science is on our side, regardless of the Stage.   Let us know what the proposed treatment plan is, we’ve got a very diverse, warm   and caring group here.  Welcome aboard!  Michelle
×
×
  • Create New...