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Hi Susan. I’m three weeks post op from an Upper Right lobe lobectomy. I’m glad to hear you are doing well a year later. It gives me hope. The day after the surgery the hospital told me I had to walk a mile a day if I wanted to go home. I did that religiously while there. Since home I’ve been doing 30 minutes on the treadmill (it’s too cold to be outside) slowly increasing my walking speed and incline. I’m up to a mile and a quarter in 30 minutes on a slight incline. It’s a long way from a 7 minute mile but who cares. It’s more about how I feel afterwards, not how far or fast I went. One bonus to having lower lung capacity is that you can get your heart rate going with less effort. Higher heart rate equals more cardiovascular exercise, with less effort. That’s the math I’m using anyway.
I’m not sure if you feel this way but when I exercise it is a pretty strong reminder of the fact that I had cancer and lost a part of my body because of it. That reminder stings. I’m hoping it lessens with time but I can imagine a lot of frustration comes with those reminders. I’m choosing to not focus on the why I’m not able to do what I use to and focus more on how much improvement I’m able to achieve now. I’m focused on recovering from the surgery and improving. I’m obsessed with the spirometer and getting as close to my preop lung capacity as possible. I hope I can keep up that perspective long term. I’d like to get back in a Montauk bike this summer
Lungevity has some endurance events you may want to look into when you feel ready. https://lungevity.org/events/team-lungevity-endurance-events
Its awesome you are interested in getting back into running. Go with how you feel during and after running, that’s what’s most important. Not how far or fast you go.
Welcome to our group! I was a competitive rower before my diagnosis. I would wake up at 4:30am be on the lake by 5:45am to watch the sun rise & bald eagles eat breakfast. I rowed 10-12k in the am, ran 5k at lunch.
My doc thinks in about a year I’ll be able to manage longer distances. I’m slowly working back to 2k.
Persistance, perseverance & patience is my framework. I have learned to accept that I can not compare my split times to my pre-cancer diagnosis. I set a new baseline & work from there. Listen to your body- if you’re tired rest.
From my perspective- a little bit of rowing is better than no rowing. As for the 5k run- bleh- never could get the runners high so I don’t miss that part.
I think the key is to keep your legs strong. You might want to try the boring recumbent bike (we also have recumbent trikes we found on Craig’s list) Short intervals could also work for you. Try walking for 5 minutes & running for 2-3 minutes then build.
There are lots of peeps who return to their sport after the LC diagnosis. You will too!
Reposting: "I’m looking for a patient /advocate who is articulate and knowledgeable about Expanded Access also known as single patient IND requests, or formerly as “compassionate use”.
A cancer-focused public workshop on EA (and the Reagan Udall Foundation EA Navigator system) is taking place here at FDA on May 16, 2019."
Our colleagues at FDA are looking for patient panelists! If you fit the criteria above and are interested, please contact Rea at
U.S. Food and Drug Administration