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  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      37,782
      posts

  2. STORIES OF SURVIVORSHIP

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,341
      posts

  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      98,389
      posts

    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express the thoughts and issues that are specific to people living with lung cancer.

      9,234
      posts

    3. NSCLC GROUP

      A forum where general thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      43,065
      posts

    4. SCLC GROUP

      A forum for patients and caregivers impacted by Small Cell Lung Cancer. Share latest SCLC news, information and get and give support here.

      16,445
      posts

    5. CAREGIVER RESOURCE CENTER

      A forum for FAMILY MEMBERS/CAREGIVERS: Air your feelings, get and give support from others who are co-surviving lung cancer. Post and share resources for caregivers here.

      30,609
      posts

  4. TREATMENT FORUMS

    1. CHEMOTHERAPY

       A forum for patients and caregivers impacted by chemotherapy treatment. Connect here to offer insight, get advice and peer support. Share Information and news about chemotherapy here.

      524
      posts

    2. IMMUNOTHERAPY

      A forum for those on or interested in immunotherapy treatments, latest news and peer support.

      641
      posts

    3. RADIATION

      A forum for patients and caregivers impacted by radiation. Connect here to offer insight, get advice and peer support. Share Information and news about radiation and new radiation therapies here.

      169
      posts

    4. SURGERY

      A forum to discuss lung cancer surgeries, share experiences, get and give support.

      283
      posts

    5. SUPPORTIVE CARE

      A forum about supportive/palliative care. Learn about palliative care for lung cancer survivorship, get advice and support and share your resources here.

      24
      posts

  5. LUNG CANCER NAVIGATOR

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      623
      posts

  6. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      11,297
      posts

    2. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      4,067
      posts

  7. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      506
      posts

    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,759
      posts

    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      42,162
      posts

  8. SUPPORT

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      502
      posts

  9. GRIEF

    1. GRIEF

      A forum for anyone who has lost a loved one to lung cancer. Post general updates, memorial notices and any tributes here. Share resources for those who may be grieving.

      42,046
      posts

  10. TERMS OF USE

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      10
      posts

  • Member Statistics

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  • Recent Discussions

    • Curt
      I’m so happy I found you all!

      By Curt · Posted

      Hi Susan.  I’m three weeks post op from an Upper Right lobe lobectomy.  I’m glad to hear you are doing well a year later.  It gives me hope. The day after the surgery the hospital told me I had to walk a mile a day if I wanted to go home.  I did that religiously while there.  Since home I’ve been doing 30 minutes on the treadmill (it’s too cold to be outside) slowly increasing my walking speed and incline.  I’m up to a mile and a quarter in 30 minutes on a slight incline.  It’s a long way from a 7 minute mile but who cares.   It’s more about how I feel afterwards, not how far or fast I went.  One bonus to having lower lung capacity is that you can get your heart rate going with less effort.  Higher heart rate equals more cardiovascular exercise, with less effort.  That’s the math I’m using anyway. I’m not sure if you feel this way but when I exercise it is a pretty strong reminder of the fact that I had cancer and lost a part of my body because of it.  That reminder stings.  I’m hoping it lessens with time but I can imagine a lot of frustration comes with those reminders.  I’m choosing to not focus on the why I’m not able to do what I use to and focus more on how much improvement I’m  able to achieve now.  I’m focused on recovering from the surgery and improving.  I’m obsessed with the spirometer and getting as close to my preop lung capacity as possible.   I hope I can keep up that perspective long term.  I’d like to get back in a Montauk bike this summer    Lungevity has some endurance events you may want to look into when you feel ready.   https://lungevity.org/events/team-lungevity-endurance-events Its awesome you are interested in getting back into running.  Go with how you feel during and after running, that’s what’s most important.  Not how far or fast you go.  
    • Rower Michelle
      I’m so happy I found you all!

      By Rower Michelle · Posted

      Hi Susan Welcome to our group!  I was a competitive rower before my diagnosis.  I would wake up at 4:30am be on the lake by 5:45am to watch the sun rise & bald eagles eat breakfast.  I rowed 10-12k in the am, ran 5k at lunch.   My doc thinks in about a year I’ll be able to manage longer distances.  I’m slowly working back to 2k.   Persistance, perseverance & patience is my framework.   I have learned to accept that I can not compare my split times to my pre-cancer diagnosis.  I set a new baseline & work from there.  Listen to your body- if you’re tired rest.  From my perspective- a little bit of rowing is better than no rowing.  As for the 5k run- bleh- never could get the runners high so I don’t miss that part.   I think the key is to keep your legs strong. You might want to try the boring recumbent bike (we also have recumbent trikes we found on Craig’s list)   Short intervals could also work for you.  Try walking for 5 minutes & running for 2-3 minutes then build.   There are lots of peeps who return to their sport after the LC diagnosis.  You will too!  Michelle    
    • KatieB
      FDA - Expanded Access

      By KatieB · Posted

      Reposting: "I’m looking for a patient /advocate who is articulate and knowledgeable about Expanded Access also known as single patient IND requests, or formerly as “compassionate use”. A cancer-focused public workshop on EA (and the Reagan Udall Foundation EA Navigator system) is taking place here at FDA on May 16, 2019."   Our colleagues at FDA are looking for patient panelists! If you fit the criteria above and are interested, please contact Rea at U.S. Food and Drug Administration Tel: 240-402-6506 [email protected]
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