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Thank you @Karen_L, I certainly need to stop beating myself up for everything, but the guilt is just killing me. I will never know if that short exposure over lunch is what got him sick but 3 months of school went OK until this incident despite so many in his class getting sick during that period. My kiddo is a mask pro and is so smart, we have to fight him to relax his mask or ever remove it when outside home... I really thought it was the right call to ask for ambulance but the whole system makes you feel like an idiot. It is kind of like the paramedics were disappointed that my heart was settling by the time they arrived and the questions started about "do you have anxiety". The story of my life, years of being dismissed by doctors about feeling unwell until boom lung cancer diagnosis. Now same with tachycardia... I have had a number of heart tests since my chemo (following surgery), which is when my tachycardia started (many ECGs, one echo, one stress test, and one 5-day holter which they told me were all normal- except sinus tachycardia ). There is even one episode of tachycardia that predated my cancer diagnosis. I guess this is why they are starting to ignore my tachycardia, which is horrifying. When I ask the oncologists, they tell me I had so many tests, much more than they usually do! When I asked for oncology cardiology referral, they saw me once and said your heart is OK. I saw another cardiologist after going to ER in the past but he said he found nothing to explain and gave me some beta blockers (did not take them). I am tired. The 2 ECGs (before the ER one, which I don't have a copy of yet) I had since starting Tag showed normal QT interval. I asked my GP for an echo since oncology refused to do one (!!) but I have yet to receive a date since our hospitals here in BC are collapsing. This week alone 3 kids died of the flu in BC and hospitals look like war zones. It is all nerve wrecking and seeing my boy get sick after protecting him 3 years hurt so much. His school is filled with sick kids who come despite being sick. No one masks. Teachers are sick, parents are sick yet everyone is partying like it is another universe. Even those who know I am CEV come to talk to us to tell us they have the flu. People are just so damn selfish and mean I am too tired. I hear the same stories of rampant illness from friends who have school age kids, half the schools are absent but there is no political will to reduce the misery or carnage. -
@LilyMir It was very smart to call the ambulance. I urge you to call your oncologist and talk about this episode. See about having your heart checked again; it's not all that common, but sometimes Tagrisso can do something with the rhythms of our hearts. My doc orders an EKG quarterly (at least) and I will be having an echocardiogram later this month. One of the hardest things as a mom is when your kid gets sick. Trust me, you can't know with certainty where he picked up that bug. (Oh, the stories I-- or any mother-- could tell.... )A few bites of lunch indoors might have been the exposure, then again, they might not. Unless you're with him all the time, there's no way to know what other moments in that day, or any day before that, were like. There's no real way to know whether he would have come down with the cold anyway. You know how they say in airplanes to put on your O2 mask first, then your child's? You did exactly that in the situation-- took care of your potential physical emergencies first. No one can do two things at once; you picked the priority. And, sometimes bad stuff happens. You've certainly had your fill of it. Can you do some slow, deep breathing to ease some of your anguish? Hang in there. -
By Justin1970 · Posted
Hi lily Sorry to hear your having a tough week and that your son picked up a germ I'm glad your feeling better in yourself but sorry your sad this disease really is a nightmare and the pandemic really hasn't helped make it easier, me and my 18 year old even did all the shopping for my elderly parents and my wife's dad through the lock down and I was more vulnerable than any of them I just didn't know it at that time, try not to worry and get upset there is better times ahead, Take care Justin x
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