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My story is very similar to Joe’s- so hello from a Stage IV ALKie. I have a mutation that allows me to take a targeted therapy. Prior to the biomarker treating, my symptoms were very similar to your husband’s.
The symptoms can be managed to improve his quality of life. This is a journey like none other you’ve been on before. It takes a while to have the confidence to navigate the healthcare system and advocate for your family. You will need to be very vocal, the squeaky wheel gets the grease. You are in the driver seat! Do not settle if anything doesn’t look or feel right. Trust your instincts. Speak up, ask questions, challenge assumptions.
Have you considered a second opinion? That can be done at anytime during the course of treatment.
Practically speaking, the clinic staff needs to be paying close attention to the weight loss. You might want to find an Integrative Medicine practitioner to address nutritional approach’s (like high calorie smoothies). Your hubby’s mood will improve as he begins to feel better.
Let us know how things are going and we’ll jump in to help.
We’re here for you!
Susanrae . In answer to your question. I did receive treatment in the Twin Cities. My treatment was
finished in 1998-------------------- ! I saw my doctor at a local clinic but she was a Onacology Professor at the U of M.
My husband did receive treatment here also but at the VA hospital at Fort Snelling .