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I have followed your journey . My husband has tumor spread to his brain, and afteer a craniotomy to determine diagnosis, they are recommending WBR. He is so weak, it has been suggested we contact hospice. I am not sure I am ready for this. After reading your post and seeing your wife's relief, maybe it is the next step for us too. Enjoy your time together.
So I did get my electric bike- a blast! But even a short ride and I’m exhausted. So treatment yesterday. Saw my nurse and PA and gave them the laundry list of pain, exhaustion the ever annoying dry mouth, coughing. They were concerned and ran more thyroid tests — thyroid is fine, darn it. It seems like side effects are constant. I never get any energy back. If I do basically nothing besides one very short walk the next day might be better. But any excursion just wipes me out! So the suggestion was to prioritize what I want to do then take it easy. Limit phone calls to 20 minutes cuz that increases dry mouth and cough. Life is small! I pray it gets better
Scan before next treatment so see where we’re at. If Kadcyla is still working I guess I just put up with it for now
Been missing the Zoom cuz I’m too much pain. Hope to see you all soon
HAPPY BIRTHDAY 🎂 Tom!!!
Sorry for your pain I know how docs always tell you they are really good at pain management. Maybe they need to be on the other side so they can understand how their patients feel
soon it will be behind you!