"Just when I thought I was out ... they pull me back in." And just when I thought I had a month off from cancer-related appointments, infusions, scans and lab work, et cetera, I experienced a new symptom the other day which warranted an unexpected brain MRI. Though I delayed a few days in sharing my new symptom, on Thursday I emailed my oncologist. Within the day (not nearly soon enough for my wife, Dina), I received a call from my doctor. After a brief conversation during which I described my symptoms in more detail, a diagnostic scan was scheduled for the next day (fortunately an appointment opened up while we were talking. Otherwise, it might not have occurred so soon). According to my oncologist, what I was experiencing is called "disequilibrium." I couldn't walk a straight line. Had a police officer been present, I would have been cited for walking while intoxicated.
Amazingly, I received the results from the MRI within a few hours of my appointment. The report from the radiologist was extremely thorough since I had been given "contrast," an infusion which provides better detail for the radiologist. (Given my pre-existing kidney issue, there are certain products which I cannot tolerate, ones which are filtered through the kidney, specifically "contrast.") But this time, my oncologist wanted the clearest picture/assessment possible. (Infusing "contrast" results in a kind of clarity, like the difference between viewing color and black and white.) So receiving an "unremarkable" (no metastasis, "no infarct, no hemorrhage, no intracranial abnormality,'' no anything) report was particularly encouraging. Now I can breathe again, except for another side effect caused by the lenvima (my thyroid cancer medicine), but that symptom is more par for the course I've been on for the last four months or so. "Disequilibrium" not so much.
Going forward, I am experiencing less balance/dizziness issues. But I'm also no longer - for the moment, taking my thyroid medicine, which I can't imagine is a good thing. However, I'm not going to worry about that in the short term. In the long term, not taking the best possible prescribed treatment for the treatment of papillary thyroid cancer is hardly reassuring to my presumptive life expectancy. Nevertheless, if I've learned anything in my nearly 12 years as a cancer patient, it is that nothing (drugs, side effects, miscellaneous treatment/protocols) lasts forever. Heck, sometimes treatment and all doesn't even last a month. It's best to sit tight and try to be patient. Getting ahead of one's immediate circumstances is unhelpful and could be much ado about nothing (at least that's been my modus).
That being clear to me, anytime I can get a month where I have no scheduled lab work, infusion, injection, diagnostic scan or appointments is to be acknowledged and celebrated almost. Presently, I am, or rather, was in the middle of just such an interval until this "disequilibrium" manifested. It's sort of like being called in to work on your off day. Mentally, it really upsets the apple cart, and more specifically your peace of mind. And any time a cancer patient can get some piece of mind, it's extremely valuable. It's mind over something that's the matter.
With a month off from cancer-related activities, one can almost ('almost,' not quite though) live a cancer-free, normal-type life. It's not as if you forget your circumstances, however, but it allows a certain mental break which believe me, all us cancer patients need. Without all the constant reminders, one can almost back-burner the whole cancer existence. Unfortunately, this kind of existence is also characteristic of the ups and downs and all-arounds that cancer patients experience. Granted, it's not ideal, but it's still a living, thank God!