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jde512

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    jde512 reacted to LCSC Blog for a blog entry, Safeguarding My Future   
    Whether or not I'm certain about my attitude toward being a dual cancer threat (non-small cell lung and papillary thyroid, cancer), only my subconscious knows for sure. This was recently made clear to when I provided my supermarket shopping preferences to my wife, Dina, who for reasons she takes very seriously (my health) won't let me go into stores to buy anything. Ergo, my list. And I may add, there is much adieu about those preferences. It's like a negotiation. Though not exactly partisan, the debates rage on and I'm lucky if I see more than a handful of requests honored from my list. In effect, Dina is my gatekeeper (you'll note I didn't say jailor).
    There are some requests which are rarely obstructed: health and fitness, fruits and vegetables, meat and potatoes and any other non-dessert/snack-type item. I'm not going to bore you readers by saying how long it's been since I've had a Hostess cupcake or an Entenmann's cake or a TastyKake anything; I wouldn't want you to feel sorry for me. In spite of this food censorship, I'm hardly wasting away. Though I've lost some weight, mostly due to my low iodine diet a few months back (as part of my thyroid cancer treatment), it was weight I could certainly afford to lose.
    Now that I've lost it, Dina doesn't want me to gain it all back. Which I can understand and appreciate. Overweight often leads to any number of problems: hypertension, diabetes and even heart disease, to name a few possible complications. Still, I have my food requirements (OKAY, needs) and unless I get them, Kenny will become even more of a dull boy than he already is. So far, Dina is not budging. I wouldn't quite say she's the immovable object, but she definitely remains an obstacle to my caloric happiness.
    And the 'caloric happiness' to which I refer are basically Kenny's four food groups: cake, cookies, candy, and ice cream, which also explains my presumptive epitaph: "He never met a carbohydrate he didn't eat." But when the conversation moves to other, less controversial items, the conversation is much less problematic and maybe even indicative of who I am, what I've become, and how I assess my future prospects (life expectancy).
    When one receives a cancer diagnosis, your brain gets rewired (figuratively speaking) and your choices become sort of a window to your soul. Things you want/don't want become tells of what's being debated in your brain. Initially, after hearing your cancer diagnosis, it's unnatural almost to want what you used to want. It feels trivial. Your frame of reference and context, narrow and shorten. When the future you anticipated is snatched away, it's not only time which is taken. Hopes, dreams, and normalcy are snatched away as well. And sometimes, without even realizing it, a request is made which inadvertently illuminates the route to the light at the end of the tunnel.
    That moment occurred for me during last week's supermarket list discussion. Aside from the usual stuff that likely would need to be re-ordered, I ordered something new, without it being considered in the context of cancer (basically an abbreviated timeline). I asked Dina to order me an eight-pack of soap bars, an amount of soap that would probably last a few months, at a minimum. A 'minimum' which you don't necessarily anticipate. Not that a cancer diagnosis automatically shortens your life, but generally speaking, it is bad for business, if you know what I mean? A business which, apparently, I'm now willing to invest in. Maybe time is on my side after all.
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    jde512 reacted to LCSC Blog for a blog entry, "Extensive Metastatic Disease"   
    Well, I certainly don't like the sound of that, and I especially didn't like reading it in the "impressions" part of the radiologist's report I received Friday summarizing the previous Wednesday's PET scan. Though hardly a surprise given a thoracic surgeon's description of my original PET scan 11 and 1/2 years ago: "You lit that thing up like a Christmas tree." Still, I would have rather read something a bit less ominous. But I don't suppose being diagnosed with two types of cancer (non-small cell lung stage IV and papillary thyroid, stage II) lends itself to a "bit less ominous." Besides, "less ominous" left the building in late February 2009 when I was first diagnosed with a "terminal" disease: non-small cell lung cancer.
    Not to make light of such a heavy dose of reality but, as Tom Sellick says on his recent television commercial for AAG: "This isn't my first rodeo." And neither is this statement of fact from the radiologist the first less-than-encouraging news I've heard and seen. To invoke Jack Palance (Curly) from "City Slickers" (1991): "I **** bigger than that." I've been living with a version of these words for 11 and 1/2 years. Tell me something I don't know.
    Nevertheless, I'll find out what it all means soon enough. Though it might be a bit of a re-hash from a few columns ago stating that since all the tumors in my lungs can't be biopsied, practically proceeding, my oncologist will never know for certain exactly how much of what type of cancer I have. And since one medicine - from what I've been told, can't treat both cancers, life expectancy, treatment protocols, etc., are likely unclear at best. Presumably, we'll treat the cancer which is most prevalent, most aggressive and most treatable/curable? I can only hope that as I sit and write this column, two days before my surgical lung biopsy on Monday, seven days, approximately, until I hear from my oncologist,  I'll be able to compartmentalize the worst case scenarios - all of which are out of my control anyway, and try to live life as normally as possible and avoid any rabbit holes of gloom and doom.
    Right now, this is just another blip on the cancer radar that has been "blipping" for more than 11 years. Generally speaking, the medical feedback we receive almost always sounds mediocre (and I don't mean fair to middling either). And it never sounds worse than it did in February '09 when I initially was diagnosed and given a "13 month to two year" prognosis. Unfortunately, having outlived my oncologist's expectation by upwards of 10-plus years doesn't guarantee me any favorable news. That was yesterday (yesteryear, actually). This is today, 2020. However, much has changed/evolved in the cancer-treatment world. There have been more drugs approved for the treatment of lung cancer in the last few years than in previous multiple decades, including the introduction of an entire new class of medicine: immunotherapy. It's not exactly game and match, but it is night and day.
    Still, it's premature until I'm re-diagnosed and placed in a new protocol and see the results - in future CT scans. This pending biopsy may be the storm before the calm or vice versa, quite frankly. As I await results, my glass remains half full, as always. I just have to hope that while waiting for the cancer business to become clear, I don't get so thirsty/anxious that I empty my glass. That wouldn't help anybody, especially me.
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