[Scans time plus for Mike -updated 12-12]

I am praying for Mike. Sounds like you guys are both really strong, which is required of all of us lung cancer patients.

[Scans time plus for Mike -updated 12-12]

I will be praying for Mike, as I know that prayers really do make a difference.

[How do you guys do it?]

Rochelle: As for all of us the beginning of this journey is the most difficult. Two words helped me through this phase and is still helping me after 15 months, LET GOD. I couldn't do it without the prayers of my family and friends and the belief that God has a plan for me that I need to accept.

[epirubican and irinotecan]

Just got results of CT scans, MRI and PET yesterday, and not so good news. Several small spots on left lung, spine, ribs and a large one on right femur. I will be starting a clinical trial tomorrow with epirubican and irinotecan. Has anyone ever used these and if so with what results.

I was diagnosed with sclc limited August 04

Had cistplatin and VP16 for four rounds and radiation to left lung, successfully resolved lung tumor at that time, but now it is back.

I am desperate for an answer.

[Path less traveled]

I must say I admire your decision and your acceptance of your disease. Am saying prayers for you and your daughter.

[still feel lousey]

I finished 15 days of PCI two months ag, and I think the side effects are worse now than they were 2 months ago. Extreme fatigue, nausea. Zofran is good. My Radiology/oncologist said there is no reason for me to be nauseated at this point, and I should be getting over the fatigue. However, my oncology nurse said sometimes these symptoms can last up to a year.

My husband has been very supportive until he hears these doctors say I shouldn't be having these problems. He tends to think it's psychological and even asked the doctor if it could be. Doctor said it could be. Just what I need on top of feeling so lousy. A husband & doctor that think I'm goofy besides.

When I hear these other postings saying they are feeling the same way, it makes me think maybe I am not crazy, although I am sorry for anyone else to be going through the same. I may hve to start chemo again next week, and can hardly tolerate the idea feeling the way I do with this other stuff. Sorry to sound so dismal. I have been very optimistic until now.

[Nobody out there has used Topotecan? Little response to post]

I used topotecan as part of a clinical trial, along with radiation Tx, 2 times/day for three weeks. After that, and four rounds of chemo (Cistplatin & Epotoside) the tumor in my lung vanished!!! I have limited sclc, diagnosed August of 04.