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atlanta1

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Posts posted by atlanta1

  1. and that's no joke- he was an April fools baby! I think he is sending jokes our way...

    Went to cemetary last night (as we knew today would be rainy here) and released balloons. There are four grandsons (11, 9, 6, 4) - quite entertaining when they are all together. Two balloons got stuck in the power lines and the 4 y/o said "I'll go get them" and darted off toward the road. So my sister darted off after him. My 9 y/o knocked my other son's balloon off into the wind before he was ready so they started squabbling (the norm for them). the 6 y/o enthusiastically sang Happy Birthday for all the world to hear. Dad always sat back and chuckled at all that chaos.

    Then at 12:30AM - my 11 y/o son's alarm clock accidentally went off so that gave us a good scare and we were fumbling around trying to figure out what was needing to be turned off. I was wide awake for a while after that so I have had some good quiet time of smiles, tears and reflection (albeit in the dark).

    I am thankful to have had a great Dad and a fun "papa" to the boys.

  2. I know what you mean! For some reason lately I have been thinking about the day the doctor suggested hospice and the initial meeting with the hospice group. Honestly I think that was the worst 30 minutes of my life. Dad was very ill and really I was thinking it would just be days - and it was. I wonder how I ever got through it. Some time after my Dad died, I thought if given the option to be hypnotized and erase from my memory those painful days - I wouldn't do it. I think those experiences can shape you. Recently a friend of mine died at 37 and he was under hospice care. I reached out to his mother and felt an instant connection...as someone who had been there - I knew some of what she was feeling and maybe I said or expressed myself to her differently than I would have had I not gone through the same thing.

  3. Hello everyone,

    Has anyone attended any remembrance services in your community? The cemetary where my Dad is buried had a service Saturday night. They had luminaries all up and down their driveway - and then you could place a luminary on your person's marker. We put one on Dad's and my grandparents who are buried right next to him. That was all very pretty. It was a nice service about 20 minutes - someone sang and then someone spoke a few encouraging words. That cemetary had not done this for years and I am glad that someone brought it back. My mother attended another one at the funeral home chapel - it was for any family the funeral home had served this year.

    Caring thoughts to all of you this season!

  4. Thanks for posting that article. It hits the nail on the head for alot of us who have heard that question over and over. I am sorry for your loss - having recently lost my Dad I'm sure we are going through some of the same emotions.

  5. Hello everybody. My husband, kids and I just got back from a week at the beach. This time last year (I guess I'll be saying that alot going forward), my parents and my sister and her family were all at the beach with us for vacation. That was life before Dad got sick. Anyhow, last week my 8 year old son found an almost perfect good sized seashell - the kind that curls in - a few inches long. I asked what he was going to do with it and he wanted to take it to the cemetary and leave it with Papa. I had been telling the boys about trips when I was young and how Papa loved the beach and so on. I missed Dad so much on this trip - I pictured him alongside the kids fishing on the pier and doling out "one more dollar" at the arcade. I pray that I can keep driving home to the boys what they meant to him. My emotions have been in high gear this week. I think it is because it's getting close to "this time last year" when Dad's back started to hurt. It was the beginning of a new and unfamiliar path, and we didn't have a clue what we were in for.

  6. This is the first Father's Day without my Dad. We went to the cemetary and released balloons - my sons (11 and 8) had attached a note to theirs and my mother and I wrote a note on ours. My 8 year old had this idea that we could send "Papa" a note to heaven. If only we could all see life through the eyes of an 8 year old. So we watched the balloons until we couldn't see them anymore. Then we went out to eat and told some good stories about when Dad used to help babysit the boys. I actually had a harder time yesterday as I attended a 90th birthday party for a friend of the family. While I am so happy for her and that she is in good health and still drives!, I couldn't help but ask "why" - why couldn't it be my Dad that lived to be 90. After that party yesterday - the pain was as fresh as the moment he slipped away.

  7. Hello everybody - we have a DVD of pictures of Dad - from his childhood, my childhood, vacations, the grandkids with him, etc. This was running at the funeral home during visitation. I have just today been able to sit and watch the whole thing through...but I can't stand to have the music turned on with it I have to mute it. Just can't believe this time last year - he was playing pitch with my 8 year old baseball player son, and giving $1 to my other son each time he scored a soccer goal. Even last July we all went to Daytona Beach, FL - his favorite place in the world. And here we are now - we just had his funeral last Saturday. I feel like I've been on a different planet for the past several months and now that there's no Dr. visits to accompany, no daily call to see how he's doing or going out to eat just because he felt good that day - I just feel kinda lost and am really not interested in work, the news, or anything else except checking in on Mom and caring for my own family. Is there a "disgusted" stage of grief? That's pretty much how I feel - disgusted at the disease itself, disgusted that at times I feel Dad never had a chance as he was dealing with first one thing then another, disgusted that millions are spent on figuring out how monkeys communicate, but very little on lung cancer research, disgusted that people struggle to pay for gas to get to the doctor's office. Maybe I need to go throw something but I just had to vent this morning.

  8. I have just gotten home from being at the funeral home for Dad's visitation. We had visitors all day from about 11am this morning until 9pm. We are pooped - but at least the time kept moving. I am very much dreading the funeral tomorrow. If my mom gets a minute of quiet - she just looks so incredibly sad. My family and I stayed with her last night and tonight my sister and her family (husband and 2 boys) are with her. A couple of the nurses from the oncologist office stopped by - I thought that was nice and we asked them if we could donate the unused lovenox (blood thinner shots) to them as well as the unopened stuff that we used to flush Dad's picc line. I am desparate to find a way to pay it forward on a personal level for someone. One thing I thought about is to buy a handful of small denomination gift cards and perhaps patients that come in for chemo- maybe their caregiver could bring lunch from a nearby restaurant or even use it for gas. Something - anything to make the journey easier.

  9. Mr. Kenneth L. Thacker, age 66, of Canton, passed away on Thursday, May 8, 2008 at his residence.

    Funeral services are scheduled for 3:00 p.m. Saturday, May 10, 2008 from the Sosebee Memorial Chapel with Rev. Gerral Richards officiating. Interment will follow in Cherokee Memorial Park. The family will receive friends anytime after 11:00 a.m. Friday at the funeral home.

    Mr. Thacker was a retired soil testing engineer with the Georgia Department of Transportation. He was Baptist.

    Survivors include his wife, Effie Thacker; daughters and sons-in-law, Amy (Sean) Dillon of Holly Springs and Allison (Charles) Burgess of Waleska; four grandsons, Chandler and Hayden Dillon, Seth and Evan Burgess; brothers and sisters-in-law, Hugh (Marlene) Thacker of Canton and Charles (Margie) Thacker of Maysville; several aunts, uncles, nieces, nephews and cousins also survive.

    Sosebee Funeral Home, Canton, Ga. is in charge of arrangements.

    www.sosebeefuneralhome.com

  10. We lost my Dad about an hour ago. It was the most peaceful precious moment of my life. Hospice is here now and our family is here also. Please keep us in your thoughts and prayers in the days to come. Thanks.

  11. Thanks for everyone's kind thoughts. Friday was a very difficult day - between the oncologist stopping treatment, talking w/the hospice people, Dad getting discharged to go home, etc. Friday night - he was really sick but thankfully the hospice nurses had a compounding pharmacy whip up some kind of gel to help with all that was going on. It goes on your wrist and is called BARPH gel. I guess the BARPH stands for whatever drugs are in it. It is one moment at a time right now. Currently Dad is in no pain, he is not nauseated, he is able to sip water, coke or juice and sleeps alot. He is "with it" most of the time when he's awake and sometimes he's confused about things. All in all - it's going OK. The hospice nurse that came out Saturday morning has assured us that we will not get in a situation where Dad is in a struggle and we are helpless what to do. That has been my biggest fear.

  12. Hello all - we will be engaging hospice services. My dad has just gotten progressively weaker and weaker over the past few weeks. He cannot withstand any more chemotherapy and just as well because it was not working anyway.

    He is currently in the hospital after receiving a transfusion yesterday evening. Most likely after a consult with his doctors the hospice we have chosen will come and meet with us tomorrow. Honestly my Dad has been really confused/tired/weak lately that I don't know how much he realizes what is going on.

    My mom took this the hardest - she's worked so hard caring for him over the past several months and stayed on top of everything. But I think after hospice comes in she'll see how much of a help and a Godsend they can be. Please keep us in your thoughts and prayers in the coming days and weeks or for whatever time we have left.

  13. Hello everybody - forgive this long post,

    It has been a rough couple of weeks. My father had to have a stent put in his bile duct as his liver is the most troublesome place where his lung cancer has spread. Couple that with port problems, blood clots now in his upper left arm (same side as port), continuing problems with nausea and appetite...he pretty much nosedived last weekend. After his monthly neulasta shot his WBC shot through the roof and he was admitted to the hospital for 3 nights. He should be going home today although he is still quite weak. He is going to be on IV nutrition to try and get some strength back up and to try and get the nausea under control. Honestly I thought we would be referred to hospice - but - the doctor seems to think that all the recent trouble mentioned above just took it's toll. He is able to resume chemo "whenever he is up for it again". Apparently - they think there is opportunity for improvement. Mentally he is pretty down - and they have started something new for that. He has a hard time dealing with setbacks like this - and the nice PA at the office says that it is quite common to deal with first one side problem then another. Can anyone offer any good advice how to get back on the straight and narrow again?

    Thanks for the help.

  14. Hello everybody,

    I would appreciate hearing from anyone who has been treated with Gemzar - any strange side effects? Looks like the side effects are similar to the other chemo drugs.

    My dad starts this chemo today - some recent problems with his liver (a site where his cancer had spread) led to yet another change of chemo drug.

    As always - thanks for the help.

  15. Hi Amieb,

    I agree with the others - the top priority at this point is to get the pain under control - whether by radiation or pain meds - or a combination of both. I remember my Dad saying if he could just get rid of the pain - he could deal with "this other stuff" - is what he sometimes calls the cancer. The early days of endless tests are maddening and it does seem that nothing is moving fast enough. You will be a tremendous help by being at those appointments- so good to just have another set of ears there.

    I'll be praying for a safe trip for you and for the doctors to get a treatment plan in place quickly.

  16. Hello Amieb - I am glad you found this website. It's been a Godsend for me. Please keep us posted with what treatments the doctors decide to do. I know it seems an almost impossible thing to deal with right now - but the others are right - once you get your treatment plan in front of you things will settle down. My dad benefited from radiation to his back- his back doesn't give him any trouble currently.

    Take care and I'll keep you and your family in my prayers.

    Amy (Atlanta1)

  17. Hello everybody - today my father got results of his latest CT scan. Brain - clear, lungs - clear. Place on liver - still there maybe a tad smaller. No new places or suspicious spots. Doctor said he was "stable" - at least we are not going backwards and I am thankful for that.

    We were able to enjoy a family trip to the beach (albeit a somewhat chilly beach) over the weekend. Dad felt bad the last day we were there so on the way home - they stopped off at the Dr's and he got some IV fluids - he was dehydrated. They plan on keeping him on Alimta for 5 more sessions and then scan again.

    I am thankful for every day and every opportunity I have to make good memories.

  18. Hi Andy - sounds like your family is the best! I am thankful that you and all of us online support folks have this website to come to no matter what the emotion. Happy, sad, confused, overwhelmed or grieving - there will always be someone here to hold you up. So keep posting...as long as you need to - and then when babies come - we want to know all about them!

  19. Does anyone know if CT and pet scan measurements are comparable? My dad had ct 10/14, PET 10/31 and another CT 12/13. He has had two treatments of carboplatin/taxol. His oncologist is wanting to switch out chemo drugs based on measurements between ct #1 and CT #2 where a tumor on his liver is larger - but if you consider the Pet measurement vs ct #2 - the liver tumor is smaller (liver biopsy is non small cell adenocarcinoma). Of course we are not thinking fast enough in the doctor's office to consider this - today was a frustrating day it seemed like the oncologists office wasn't quite together. It was very busy maybe they were trying to see everyone before the holidays.

    Thanks for any input.

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