Haysha
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Posts posted by Haysha
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I am so sorry you and your dad are going thru this horrible disease. My mother was diagnosed in February and is 2 weeks away from being done with concurrent radiation and chemo. I am 36 and totally understand what you are feeling. I am thinking of you and your family.
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Letting Go
in GRIEF
I am so sorry. I will be thinking of you during this very hard time.
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I am so sorry. My thoughts are with you.
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Do you know does he have any from Washington, I would gladly send one. Dont know if I am too little too late though.
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I am sorry you are going thru this hard time. I hope it at least goes smoothly for you.
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I am thinking of you, I am sorry this is happening.
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Hi Donna, I am glad you found this wonderful place for information, support, help, encouragement and a place to vent. Everyone here is amazing.
I am also where you are. My mom was told in early Feb that she had lung cancer and 5 weeks and 5 days after that visit is when she had her first treatment. Alot of hurry ups and waits during that time.
I hope it gets going for her real soon. I have noticed that since treatment has been able to start I have been able to look at the LC differently. I dont look at the statistics or numbers as much, I focus on her treatments and her side effects. And most importantly I focus on HER.
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I am a collector of stuff that I think I can sell on ebay but rarely do, which then turns into my hobby of collections of useless stuff around my house that I cant manage to throw away because of the thought in my head someday I might need that. So mine is a twofold type hobby lol.
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Mom had her first infusion yesterday of Cisplatin. It took 6 1/2 hours and she was tired from sitting there that long. Afterwards she said her bones were tired. She had a bit of nausea this morning not too bad though. She started her Etoposide today at 200 mg and will continue that thru friday. She also had her first of 37 radiation treatments today. Overall doing well so far.
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Everyone here is such wonderful supportors. Thank you so much. Now lets see if I can answer.
1. ACS info. We got the lodging help that is provided from seattle hotels, I recieved many phone numbers to call about coordination help, support groups, groups that can help with copays and transportation. Many helpful things like that. I got more then I expected when I sat down to make the call.
2. We live about 2 hours away from Seattle.
3. Her PET showed a smaller tumor in her mid to lower lobe on the right, and he feels that this is the primary tumor. The medialstenial tumor is much larger but not the primary. Nothing else showed up. No he could not confirm the NSC type but feels that is what it is. The comfirmation will come on Tuesday. But he also believes she is not a candidate for surgery.
4. He did not give us a short term prognosis but did say the 4-6 weeks that the previous doctor gave us is not accurate.
She is being see by Dr Wood at University of Washington for the Biopsy then she will come back to our hometown for treatment. That should start on Thursday.
Again thank you so much for all of the support and help that is given to everyone that comes here.
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Mom had her PET scan yesterday. It was good, other then it did show an additional tumor, smaller but they do think it is a primary tumor. He also feels she is at a Stage IIIA and that it is NSCLC but we will know for sure on Tuesday. He did give us a bit more hope on the short term prognosis and that left us all feeling better.
He comfirmed to my mom that YES it is Lung Cancer. I think finally she can start accepting it and go gung ho into treatment.
All in all a good day today.
Also we got some good advice to call American Cancer Society and I think they will be of great help in many areas.
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That is wonderful news.
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Hello and welcome. I am also in early stages here. My mom was diagnosed on 2/21 and we are still waiting for type. She has had two inconclusive biopsys and are now waiting for the next step. I have felt wonderful support from this community already and am so glad I found it. I am sure you will agree.
My thoughts are with you and your mom.
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Well the needle biopsy did not go so well. Mom was in terrible pain, it started bleeding the radiologist was very surprised. Said he had never had that happen before. She felt horrible right after yesterday but is feeling better today.
Went to the Onc doctor today thinking we would get some answer finally, but no the were not able to get any tumor cells with the biopsy. So now she is supposed to go to seattle next week and see the big guns on biopsys I guess. So we are back to wait and see mode.
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Well these have turned out good so far, her Brain MRI came back clear as did her Bone Scan. We are still awaiting the needle biopsy to find out exactly what type. That will be tomorrow.
I was so glad to get the brian results though.
She is still in deniel but I suppose will face it more when we see the oncologist on Wednesday.
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thank you for sharing.
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Thank you for the responses I know this is not my post but still helpful to know.
Lyris, I hope your mom feels better with this soon, hopefully some of the suggestions can help.
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Hi, I am also new here. My mom is in diagnosis process. Waiting for a needle biopsy.
I think that this is going to be a very great resource for all of us. Everybody is so kind and knowledgable.
I am thinking good thoughts for you and your Dad.
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Well thats not what I waited all day and night and day to hear now was it. They will now go onto needle biopsy, brain MRI, bone scan and sees the ONC doc on tuesday. I dont want to wait until tuesday to start anything. Her non treatment prognosis was 6-8 weeks and if we wait till tuesday that is one week less. I know I cant take part in the whole prognosis thing, but until treatment starts it is how I look at it. So most of the tests have been sch just waiting on the biopsy one.
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I will be thinking of you this friday.
my mother is going thru the same thing right now. Will meet with oncologisty today or tomorrow. Her doctor has been great though. I am sorry yours is not so nice. I hope the next one you meet is improved.
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Thank you so much. If we dont hear by 3 today I can call and she will look it up.
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The procedure went well. The doctor put some epi on the cancer to help stop the bleeding so hopefully that will help her a bit in the next few days. We are now just waiting on the type so we should know tomorrow what type. Sclc or Nsclc. This doctor is thinking it is small cell and that in my moms case it is the better of the two regarding treatment. We will then see the oncologist as soon as we know and she will start treatment ASAP.
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Hello I am so happy to find this wonderful place.
My name is Laura I am 36 and my best friend, my mom was told today that she most likely has T4 inoperable small cell lung cancer. All the words that I did not want to hear. She is going for a Bronchoscopy on Tuesday so we will have a definate diagnosis then. She has been coughing blood for 2.5 months now and just recently started to have shortness of breath.
I am so scared for her, for me for my whole family. I am a nurse so understand some of what is going on but am ready to educate myself to the max to get her the best care.
I will be back and update when I can, but yesterday I had already read some of your forumns. I know that this will be a lifeline for me to come here.
Thank you to everyone.
Prayers needed for my surrogate's mom....
in HOPE
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My thoughts are with her and her mother.
As a side note Andrea. I am a two time surrogate. I had twins the first time and a little girl the second time. I was so thankful that there were people like you that would trust me to carry their babies. How did all work for you. I had two wonderful amazing journeys.