JustEA
-
Posts
14 -
Joined
-
Last visited
Content Type
Downloads
Store
Profiles
Forums
Gallery
Blogs
Events
Posts posted by JustEA
-
-
I love hearing these good things. Helps keep me positive! I am soooo happy for you!
-
The placement of the port went well. Glad it's over. The site is quite tender but should feel better in a few days, (I hope). Start my SBRT on Tues. and finish the following Tues. Leave for Calif Wednesday. Perfect timing! Can't wait to get away and not think about all of this for a short while!
-
Patti B,
I can't believe how freeing just doing something has been. It is like lifting a huge weight off my shoulders. The trip is just around the corner. I'm really going to go. It will be the best trip of my life so far. Many more to come!
-
I know I will. I have lousy veins! Last ime in it took 11 tries to start my IV. Almost as bad as the surgery itself.
-
I had the markings and tattoos for the radiation. I will have 3 intense treatments starting Tues the 29th, then Thurs and the next Tues. (Cutting it close...we leave Wed. for Calif.) Tomorrow I have the port for chemo placed. Gives me plenty of time to heal before chemo starts June 2nd. A few days ago I felt like I was taking one step forward and two steps back. Now I feel like I'm at full speed ahead! I'm gonna need that vacation to recouperate.So relieved to finally be doing something.
-
Sandra,
I too, am a big believer in "knowledge is power". Tell me everything, tell it to me now and don't sugarcoat it. I can't fix what I don't know is broken. Follow your heart and it will never let you down.
-
How excited I am for you!! Can't wait until I can say I have two years behind me.
-
I thank you and my husband thanks you. Ride on!
-
Thank you! The releaf is enormous. Finally moving forward.
-
I have a high tolerance for pain but I would really rather not be awake for the port insertion. Is that the norm? I feel I need to be pro-active, when I went back through my records and asked for all my tests and reports for the last two years, I discovered that the mass on my right lung has been there for two years and that the radiologist reccomended that it be followed up. Which it was not.
-
Thanks for letting me know about Dr. Wests reply. I'm glad he didn't think another surgery was in order. I feel good about the Stereotactic Radiosurgery. A less invasive way of accomplishing the same result. ONE thorocotomy was more than enough for me.
My husband is a Viet-Nam Vet that is 100% disabled from agent orange exposure. Navy, hauling drums of AO. We travel with the NVAR (National Veterans Awareness Ride) Bikers from accros the country meet in DC and on the Sunday before Memorial Day they gather in the Pentagon parking lot and go to The Wall. It is a very moving Parade. More than 350,000 bikes were in the procession last year. I'll send you some photos when we return this year.
Tomorrow is my "Big Day" - They will be marking me and tattooing me for radiation. At last...one step forward!
-
I saw the oncologist today and the final report from Mayo is in. The tumor in my left lung was a metastases. It is a large cell carcinoma. The good news is...no more surgery...except to put in a port for chemo. Which will begin June 2nd after our return from DC.
I also went to see the radiology oncologist who has decided that I am a candidate for Stereotactic Body Radiosurgery. This will be done before leaving for California on May 7th. I will be going tomorrow to be marked and tattooed for this procedure.
-
Hello, my name is E A and I have been diagnosed with nsclc. I have been on a rollercoaster ride since Feb 6th. I was supposed to go in for surgery on my neck. I have 2 herniated discs. They saw a 3cm leasion on my routine chest and sent me for CT. Confirmed leasion in R upper lobe. Sent for PET. Sent to Pulmonoligist for results of PET. Told I had inoperable lung cancer because it was in both lungs and lymph glands in L hilar region. Was scheduled for Bronch/biopsy. Had not told ANYONE anything about the tests yet because I did not want to scare them for no reason. I am also my husband's caregiver. He is a double amputee that went 100% deaf from antibiotics. I was very worried about how he would take it. Before I went for biopsy I finally told my family what was happening. We all went together for the results of the biopsy. The Dr. came into the room and sat down looked me in the eye and said "Well you don't have lung cancer only a lung infection." We all sat there in total shock not knowing what to say. My husband, God love him, said what we all were thinking. "What did he say?" My family asked many questions and we all left there with an uncomfortable feeling. We all talked and decided I would see an oncology specialist for a second opinion. I collected all my records and discs and off we went. He reviewed my films and consulted his radiologist and they felt I should have a needle biopsy, they were not comfortable with the diagnosis either. I took the antibiotics from the other doctor for three weeks and then went for the biopsy. We all figured if it was only an infection there would not be anything to biopsy. I was devastated when the said there was NO change from the previous CT scan. They got a sample from the leasion on my R lung and when they went for the L lung it collapsed. They could not get a sample. They put in a chest tube and admitted me to the hospital for 5 days. The biopsy on the R lung came back positive for nsclc. They still did not know how to treat it because they could not stage it without a sample from the other side. I was scheduled with a surgeon for a mediasteinoscopy and a thoracotmy and possible resection of the L lung. I went in for my surgery April 11th. They said they plucked all kinds of node from the media area and did a resection of the L hilar lymph gland and did the resection of the leasion in the L upper lung. The results are in! Nothing showed in any of the nodes or gland!! However, The tumor was inconclusive. They could still not tell if it was metastatic or a second primary. They are sending it off to Mayo. They say if it is metastatic then I am stage IV and can only do chemo. If it is a second primary they want to remove the R upper lobe of my R lung. It is now a waiting game. They say it will be 1 to 2 weeks before we get an answer from Mayo. I am so frustrated and confused and overwhelmed by it all. I have not told my family this latest fiasco. I will wait for the results from Mayo. I feel like I am torturing them. I do then I don't then I do then we aren't sure then we don't know how to treat it, can't be sure. I just want a plan so I can start doing something. Is that too much to ask?
Markings today-Port tomorrow
in MEMBER UPDATES
Posted
Thank you! Didn't know there was such a thing. I'll make sure I ask for that. I'm so glad to have the port. After trying to put the IV in 5 times, they called a specialist. He at least numbed the spots (all 6) before he tried. I'm black and blue from my elbows to my fingertips! My veins just collapse. They said they've never seen anything like it. They would get in and get blood return and by the time they hooked up the IV fluids it was gone. I still have all the bruises from the surgery 2 weeks ago.