[Tarceva rash]

my understanding is that the rash is good as tarceva attacks the skin (so in other words if your dad was not getting the rash, the tarceva would not work).

my father successfully uses a cortazone cream which helps the rash. unfortunately, there's really nothing much to do here.

was your father tested positive for EGFR?

[pNK2 inhibitor drug]

Does anyone know of a inhibitor drug for the gene pNK2?

Thanks... darien

[Testing for ERBB1/ERBB2 and ROS1 genetic mutation]

Does anyone know what facilities (if any) test for the ERBB1/ERBB2 and ROS1 genetic mutations?

Thanks in advance... darien

[Father newly diagnosed with NSCLC]

thank you everyone for your support. ok well, stage iv, all the lymphnodes in/around his lungs, left shoulder bone, and adrenal glad. hopefully the mutation analysis will show something.

any thougths on the best place to go for what i call cocktail thearpy?

[Father newly diagnosed with NSCLC]

I just wanted to say hello to everyone. I've read some fantastic and tradgic stores. It's just me, my mom and my dad so i'm doing tons of research. I look to learn a lot and post often.

Thanks you again.

darien

[Father newly diagnosed with NSCLC]

Hello everyone and thank you for this great forum.

My father (never smoker, non drinker, no lung cancer history in family, no exposure to toxins) is at Mayo Clinic in Rochester. Bronchoscopy revealed today that the 4cm mass in left lung near windpipe is NSCLC adenocarcinoma. Not sure why, but the biopsy taken of the lymphnode was "too small" of a sample to reveal if it was canerous. Full body PET scan completed today and will get results tomorrow morning. Initial thoughts is that it's operable so they set up a meeting wiht surgeon immediately after he'll get the PET scan results. Mayo wants to do surgery as the first option.

We're really trying to find the best treatment plan and best place to be treated. Location is not an issue. So here are a few questions that I have (assuming PET comes back negative):

- are there any other tests (besides lung and heart capacity testing) that are needed to be done in efforts to determine the best treatment plan? what about mutation analysis? what about gene/targeted thearpy tests?

- is surgery, chemo, radiation/proton the only types of treatments available?

- what are some of the potential different surgery options? would rfa or nanoknife be an option?

- what are some of the questions we should be asking to find the best surgeon and best surgery option?

- i've heard of some people having chemo or radiation/proton thearpy before surery, would that increase the chances of a positive outcome?

- why does mayo want to do surgery first?

- why is the standard guidelines the first place where everyone wants to start? how do we find the places that create a treatment plan outside of the standard?

are there any other questoins we should be asking mayo?

thanks in advnace. i hope to learn and post often. this support site is wonderful.