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Found 4 results

  1. Hi - I'm joining this forum to find out more about Adenocarcinoma and Women that never smoked. My mom was diagnosed on 11/29/2016. That day changed our lives. My mother fell and broke her femur and once we rushed her to ER the doctor reviewed her x-ray and said her femur should never break that way. From there he ordered a CAT scan which showed lesions on the femur. The next response from the doctor was it didn't start there, so he ordered an upper body scan which found it in her lung (source) however it was also in her spine, and ribs. Mom has had surgery since to repair the femur but recovery is not the only obstacle. The emotions of knowing you have cancer in so many places are overwhelming. In early December they determined she had it in her brain as well. They did WBRT for 10 sessions and she didn't have any side effects until a week after, where she lost her hair in one night and her scalp became very tender. Doctors recommended Aloe Vera and Aquaphor to soothe the skin. We just applied it yesterday so we're hoping it helps. Mom was informed that she does have the EGFR mutation which allows her to have the chemo pill rather than standard chemo. We're hoping the side effects won't be as extreme as traditional chemo. Has anyone taken Gilotrif and had positive (or not so extreme effects)? Can you give me some background or suggestions? Background on Mom: Mom is only 72. Thankfully, mom is a very strong woman she has pain but tries not to complain. She was semi-active before the fall and only noticed what she thought was arthritis pain or osteo pain from aging. She hasn't lost a pound she still has an appetite and after WBRT some of the cognitive thinking and some memory patterns returned, but depression keeps creeping in from time to time. I'm confused about a few things. I read a lot on this version of cancer and it's astonishing to me that one article stated it is now the #1 cancer for women. Why hadn't I heard of this before? Why aren't women warned? We're warned not to smoke but this cancer affects those that don't smoke. What kind of warning could people that don't smoke have received? I'm devastated that my mom is going through this. We have to keep our faith in God and sometimes we won't understand until later. Any suggestions about anything helps. Thanks for reading!!
  2. My husband was diagnosed stage 4 met to brain and super clavicle lymph nodes. Sterotactic done to brain and lung. Proton to clavicle plus 2 courses of chemotherapy. Reoccurrence to Chest cavity affecting voice, swallowing,cough and shortness of breathe. Doctor recommends Opdivo. Need to know side effects and prognosis.
  3. Hi, My dad was diagnosed with stage 4 lung cancer met to liver a year ago. He did chemo from last november to about two months ago, 6 or 7 weeks ago he started OPDIVO which was recently approved. While he had some side effects on the chemo, but really nothing that slowed him down, this new "drug" has devistated him. He had 3 treatments once every two weeks for 6 weeks, and it was like he was ready to die. It all coinicided with this new Opdivo treatment. We actually had to hospitalize him last week for a few days. It's like his body is attacking itself and not the cancer. But his blood work was supposedly normal, and all the tests. Catscan taken last week revealed no growth or decline and the actual cancer was stable. Has anyone been on this? Has anyone else had every possible side effect? Can you come back from the side effects? Thank you, Karen
  4. Hi all, I've been to 2 DC Hope Summits and 2 regional Summits so I've met many of you. So I'm joining in here to share my story and, I hope, to help others find answers and HOPE. In 10/10, I was diagnosed with stage 4, poorly differentiated adenocarcinoma. After treatment with concurrent chemo (cisplatin/etopicide) and radiation I am stable and now NED. I've had no maintenance therapy and have no clue what my driving mutation is (not enough genetic material taken to test). I'm considered a complete responder- they got it all. 4 yrs, 9mos with no progression. It can happen!
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