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I didn't mean to complain, he does do if I ask...but I worry that if the little common things aren't noticed (such as the standard of picking up after one's own self) then living out here (20 mi from town) what if I really need some family help? I can and still do everything, but everything I do makes me winded. I guess I was having a worry day

Thank you for the imput I read everything and try to process. Around here...you have 'C' you are a write-off so I really don't have local to talk to. My care team is wonderful , one of my nurses is fairly local, is of the same faith and practices as I, and 'get's me so I consider her a friend. She even FB'd me

Thank You! I just now figured out how to find replies to my posts. I had my second blood draw this week, we are comfortable enough with each other that no phone call=nothing to report. I have my second treatment next week and am anixous (not in a bad way) as to what the xray will show, size-wise. I am settling down ☺ and am using my down time to learn and work on things to change and/or do better. (type A personality) Thanks for the input...will post again the outcome of next week ♫

I have BAC. I live in an extremely small area that is home to small town gossip so have told just a small group of trusted friends. To get good care I travel an hour to our capitol city. My onc is the best in the region, my nurses exceptional. This is my second go-round of BAC. I am so very private, and have a tendancy to be prickly to strangers. All combined, I didn't get any counselling as I wouldn't talk to strangers. Thus, I know I am still angry and it will overflow at times. Suggestions on handling the anger and at times the depression, although that is much better.

I've had one round of chemo (second go-round of BAC, first was taken care of with surgery) and I am exhausted much of the time. When I get tired, I don't mess around...I take a short nap. I am fortunate in that my dr office is excellent in preparing us for what to come, as best they can. Plus, a friend stepped up to share things to expect as well, so as much as I can be, I knew what might come, such as the awful pain that comes sometime after treatment. I knew what it was, and took what I could pain-wise and wrapped up in a quilt and waited it out. Keep asking your Mother is my suggestion, but don't push her into the car. Perhaps a short time on the deck etc on nice days would help some. It does me wonders.

I am recently diagnosed with my second go-round of BAC. Mostly, I don't need assistance as some would see it, but do need some basic help regarding not having household members make more work for me. An adult daughter is temporarily living her due to an accident resulting in a TBI. She tries, and I can not get upset with her on any messes. I ask, she responds. She does not remember to help me on what I ask, like floor care. Then there is the husband that just does not 'see' what needs to be done or the extra work he makes. I need to train him for extra duty. I try not to ask anymore of him than he do for himself right now as I can do most things and he is working 1 1/2 jobs to keep us together. How did others train family caregivers to become such?

I am quite pleased to find this alternative section of the group. I was recently diagnosed for the second time. The dr and stats say I can not be cured...but no one knows, do they ☺ I started chemo (alimta/carbo) have had one treatment, and tomorrow will be the second bloodcheck, with the second treatment next week. In addition, I have developed, with advice from others in the same sitution and a biomedical researcher's advice, a regime of supplements. Next month I will add in the IV VIT C treatments. I feel comfortable with this, even though they say that chemo will not really do much for BAC. I feel this is using all the tools available to me. Interestingly, after my first treatment, I had a mole dry up and fall off. I was told from other patients that alimta is most likely the reason,as it also is used to treat melanomas (they say). The theory is that it finds melanoma cells and kills them. I have a second mole doing the same.

I was just earlier this week rediagnosed with recurring NSCLC now stage 4. I had the surgery Apr 2011 for BAC, removing the lower rt lung, as it was completely filled and overtaken with the tumor. They said they got it. The testing came back negative. I knew it could reoccur, but somehow thought the chances were slim. As this is in the upper 2 lobes, (2 noduals and a mass) it is classified as Stage 4, inoperable. We are waiting on the ALK mutation testing to come back to determine treatment. I know the basic options of positive vs negative. I am having a hard time understanding if I am looking at months or years. I am scared beyond words and can't get a real grasp on things. There is no one around here to talk to that I know of that has had this particular kind. In the last couple years I have had several friends die from cancer so that has me unbalanced...terrified would be the accurate word. My oncologist said this is so rare (BAC) that it is hard to determine or know how it will act and react. I am information oriented, so have been trying to read and educate myself, which only makes it worse at this point. I am keeping myself busy...getting my affairs in order, cleaning and organzing what I didn't already have in order in my house. Input appreciated (someone from ACOR NSCLC recommended this group)