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MaryTD777

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Posts posted by MaryTD777

    My introduction

    in INTRODUCE YOURSELF!

    Posted

    Hi there,

    Just joining the "Welcome Wagon". Even tho none of us likes the fact that we have a reason to be here, glad you found us. I was at the Summit this year... most would remember me as "The crazy purple lady" if they noticed me at all LOL!!

    I hope they get things nailed down for you.

    My introduction

    in INTRODUCE YOURSELF!

    Posted

    Tairen,

    Everyone above nailed it, so I just wanna say that I will keep you & her in my thoughts & prayers. I lost my mom suddenly... tho a bit older than you at the time, I get it. Just remember you can't say "I love you" too much.

    New to this site

    in INTRODUCE YOURSELF!

    Posted

    Hi Don! I was at the summit too, first time. Sorry I'm late with the Welcome to the site, I just don't get online too much. From the sounds of it you prefer to be outside than online too, so I hope to be forgiven. =D

    Be Well!

    Does scan time ever get less nerve wracking?

    in MEMBER UPDATES

    Posted

    Thanks Katie, Sue, Diane, Trawna & Randy!! Still NED!! Go back 8/1 just before my 8/15 cancerversary @ 2 years :-)

    Hate to be short, but it will come out anyway ~ it IS out on FB but I don't have you there. It will be VERY obvious at HOPE. I had a lovely w/e w/hubs ~ we went WAY up into NY State for a 40th anniv party and he knows I love birding, and there would be new birds there, so we stayed an extra day.... LOVELY! Birded all the way home, got to some local Eagles & their eaglets.... Got GREAT pix.... tripped on a stick, cradled the camera and landed on my face... top of my head & nose really. Hit so hard the blacktop gave my bangs a haircut!! Fixed my deviated septum and broke a finger... right pinky... right hand minus thumb, index and IQ finger is in a pretty purple cast (NOT) so typing is even MORE fun than it was before :(

    No one wants lessons how to fix their nose that way... do they? ROFL

    Anybody that DOES want to friend me on FB can find me in the HOPE alumni group, even tho this will be my 1st time.

    Hugs & BIG thanks & hope to see some in 8ish days!!

    Does scan time ever get less nerve wracking?

    in MEMBER UPDATES

    Posted

    Thanks Diane, Randy, Trawna & Cindy!

    Cindy, never heard of the book and currently failing badly at reading the E version of The Cancer Survivors Companion. I just don't focus well anymore :-(

    Thanks tho! My walks, which no longer exist either, are generally around a lake or near a reservoir, any place I can grab nature shots with a focus on birds, esp those in flight. HA HA I wrote "with a focus on" when mentioning my photos. :)

    Going Thursday for my day o'docs. Actually a short one since I saw the neurosurgeon last week due to new stabbing pains. I am starting to REALLY dislike him. He should not have touched me if he was not used to carving bone that had been thru radiation. Grr.

    Anyway, Thurs is just the pain gurus, a CT and the onc who will tell me what the CT says. I never know which med/onc I will see til someone walks in even tho I have an appt with one. The joys of a big center I suppose.

    Odd thing is, no blood work this time ~ 1st time. I am using that as good news even tho I am clueless, I have had blood drawn with all image taking visits til this 1.

    If you have more prayers hanging around, I would love a few.

    Thanks & hugs & prayers back atcha!

    Mary

    Never thought to see this day!

    in SHARE YOUR LUNG CANCER STORY

    Posted

    Jackie said:

    Survival has increased logarithmically and there are new treatments almost every day!

    WOW! Gotta love it when the GOOD news is as hard to pronounce as the bad news! LOL!!

    Sorry, I have no excuse, my sense of humor has ALWAYS been warped! I remember actually practicing saying mediastinoscopy on my 2nd visit to Fox Chase, just 2 days after the first visit. They warned me that each new person I met pre-op would ask me what surgery I was having. The last time I was asked was the 1st time I nailed it HAH!

    Judy, I hope they get all your questions answered ASAP and that it is the best possible news they can give you.

    hugs,

    Mary

    Not husband Too!

    in LC SURVIVORS

    Posted

    Hi Donna,

    I am so sorry your husband as having such trouble. When I started reading this thread, I was just so happy to see that you kicked butt against a pancoast tumor over 16 years ago. I have a pal coming up on 11 and I am 2 years from Dx and will be 2 years from surgery in Aug.

    While this isn't the happy, Hi how ya doin, I would have liked, I do want to tell you I will have some prayers for both of you. You probably know this, but just in case ~ he should be eligible for SS Disability under CAL (Compassionate Allowances) http://www.ssa.gov/compassionateallowances/

    I hope this helps if you haven't yet filed.

    hugs,

    M

    Robert Lowe

    in LC SURVIVORS

    Posted

    Eric,

    I am so sorry for your loss, and the loss for the community as well. It sounds like I missed out a lot in my journey by not having known of him prior to this month. Take some solace in the thousands mourning along side you.

    Sincerely,

    Mary

    Thought I had Pneumonia/SCLC

    in INTRODUCE YOURSELF!

    Posted

    I am so glad you responded so well to treatment. That in itself should tell you docs that their numbers mean nothing :shock: Wonderful that it's not gotten to your bones either. Every bit of good news is something to help you feel that you are doing better than they thought you would.

    As said above, many people here are proof that only your creator ~ what ever you believe ~ knows when you will return to their side. I also agree with Mike. Of course I may not be right, but I tell all my friends to find a cancer center. At the very least you are not sitting next to people with flu, rash, any sort of contagious crud and at best you find docs who know that this plus that squashes them.

    Wishing you continued improvement!

    Mary

    Introduction

    in INTRODUCE YOURSELF!

    Posted

    Welcome Bob! I am also glad to meet you and sorry to see you here. I just found this site 2 months ago, so I am still wandering the halls. I think I mostly come back to see people celebrate 5,6,7,8 years of survivorship. Happy to say I see a new anniversary most every time I pop in.

    May I ask, what stage were you 4 years ago? If I am to nosy, just say so or ignore me. I get too chatty sometimes. Nashua sounds familiar. Has anything famous happened there recently, or did I just pass a sign for it whilst heading elsewhere in NH?

    Wishing you luck in finding a trial that fits you.

    Mary

    Monday's Air

    in JUST FOR FUN

    Posted

    Hi y'all!

    I know this is an older "Air" but I didn't look for a newer 1 once I saw the bird. TOO CUTE! I am a bird lover, but stick to the ones in my yard. We already have a zoo, I think I posted my pups here before. With our 3 dogs, the St. Bernard we have been fostering since late Jan. and our Bearded Dragon, a bird could be that mythical straw on the camel's back LOL

    I hope all went well in Boston!!

    Diane, Are you doing the laundry room, or having it done? I love DIY projects.

    Clare, adding prayers for you & your mom. Good for you remembering to recharge yourself when you get a chance!

    Speaking of birds, I got torn from typing here cuz of them, as pasted from my Facebook status::: I love my birds and they love me! Kait heard a bird and it made her think she should call me, so she decided to call me later. After lunch she heard another bird and remembered she should call me in a little while. A few minutes later she heard a Woodpecker and figured she better call NOW!! Over an hour and not done chatting, just had to get the phone off my ear and the butt off the chair LOL

    Take care and be well everybody!

    xoxox

    Scan results

    in HOPE

    Posted

    Congrats!! Such wonderful news! I love the list of NEDs growing longer & longer on your signature! (And on yours too Kasey!! And your long list of Stable DianeW!!))

    Thursdays Air

    in JUST FOR FUN

    Posted

    Hi Janet!! Happy Valentines day to you too!!

    We got a bit of snow here too, but the stuff from last week was already washed away by flooding rains we got the other day. Sorry I wasn't on for a while... not even a good excuse. Checking out some other sites (none good as this!!!) and Facebook.

    Hope Summit ~ I am thinking about it. Hubby would take the ride with me but do sightseeing and leave me to my own for the most part. Have you gone before? Is there much "quiet time" when I could go for walks & try some birding / photography or is it "scheduled up the wazoo"?

    Went to an ortho today ~ knees have made noise for a while but started getting swollen, red & warm. Effusion and some pretty significant wear & tear for someone my size & age. Took out 25 ccs of junk fluid and put in 5cc cortisone. Here are some exercise you can start in a few days. BuhBye. With all this stupid cancer caca, I can't remember a wham-bam-thank you ma'am appt with no follow appts set or anything but g'bye. So strange, but good. (insert twilight zone music LOL)

    I feel ya on the clothes, but I gained after being told to eat my tush off during treatment and then slowing down so much after surgeries. I am up 25lbs over my normal 125 - ALL in my belly - well 20 anyway. I look 6-8 month pg. Until neck & knees are up for some work I just refuse to buy more than the 1 khaki and 1 jeans I bought :shock: As for you, I would by ensure (? light blue bottle?) dark chocolate and stick it in the freezer 30 minutes ahead to get it SUPER cold, then take a sip and refill it with Hershey's Special Dark Syrup and shake it to death (after putting the cap back on LOL) It tasted good enough to chug in less than 10 minutes. Don;t let it get warm :?

    Hubby got me chocolate covered cherries and Godiva dark choc Truffles, a purple rose that I thought was sparkle plastic but is really a grape lollipop (did y'all know I am a purple-a-holic?) and a 8" stuffed leopard holding a heart that says True Love. He had my truck yesterday for errands (like buying the above mentioned LOL) repairs etc, so I was stranded. He wouldn't let me drive after the shots to both knees, so I get to buy him dinner out tonight for his gift,,, Uh, it's all one purse here, so we are both paying for it LOL. He is SUCH a cutie :D

    So, I have babbled enough. I hope all of y'all & your loved ones have a great day today, with a special other or a very special self. Happy VD, Happy Pre-Friday, Happy eve of the Great Backyard Bird Count weekend, Happy eve of Presidents Day weekend.... anything else?

    Hugs,

    M

    Blessing!

    in GENERAL

    Posted

    HOORAY for $$!! That 1st check with the back pay was a pleasant surprise for me as well. The money was direct deposited into my acct the same day the note arrived explaining what was paid and what to expect.

    I hadn't even thought of DI until someone told me to look into it. When reading thru the info online about what illnesses are usually covered online with just Dr info and no trips to the office or anything I was both surprised and sad to see Pancoast Tumor got it's own special spot on the list. It required a 6 month wait so my timing was just right to apply.

    Go buy yourself a lil something special! Even if you can't go crazy with it, a small treat is always deserved after a "windfall" shows up :D:idea:

    Take care!

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