bacalice
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di
i am tooweak too write but doing my best to hang on:
alice
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Di:
I feel better but I still can't write well. I read my sentence and I don't know what I wrote. I am still very tired but I have a caregiver of many tricks so she is my efficient secretary I am feeling a little better weak but my mind is not as weak as I though it would be. Stop all treatment he is afraid to give me more I see again on Jan 24, and I will get a CT scan I stoped Chemo on Nov 03, because CPT11 may me to sick had no more Chemo until they decided to typ PCI. Had 13 PCI .
I am have done and cooperated with everthing they said and I am in the Master Hands
Thanks for your help and comfort.
DX'D SCLC LIMITED May '06, 2003
Chemo ectopside 28 treatment
28 Rad 9 3CPT11 and nothing till I received PCI
13
Struggling still Thanks to all of you
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Radioligist ceased the zaps. I didn't. he got chickened and stopped with 14
because I was so weak, i have 24 hour care and no longer try to to do any thing except use the potty. i am so tired. i am trying to find more strength to go on.
with gratitude, di and all others who have helped me
alice
dx'd limited sclc MAY 06. 03
pci 12 /06/2004/12/12/04
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di:
thanks so much and I am trying to hang on and defog my brain.
seem to be getting a bit stronger and I am trying to get my sentences
to be clearing but it is not easy to get them to make sense. My doctpr
stopped the treatment and I am going to try to balance my checkbooks.
Chilcren are concerned because not matter my illness, I always could
count my mney.
Later.
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di
went for treatment, rad onc said no more, i was too weak.i told him i wantet to finish but he was excited but it i died becaus3 of it, i wasgoing
to haunt him.so i finished
i willbe gladto write if my mibd gets better
love to alland thcnks to all
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DI:
very cold in Illinois. I didn't go in today. I go bacvk to the facility on Mon. and tues for two more treatments. aaaai have been very weeak and
ill. have falend a lot and ii am unstablr om my feet. dr has reduced
decadron and say that i am being weand and should be weaned soon and
then i will feel better. thank di and i will rtie when i can be more lucid
alice
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Di:
Inexplicably tired. i saw the Rad ONC and he gaves me doses to reduce
the steroids so I can come down off the steroids and then perhaps I
will not be so tired. I now have until Dec.28 and hopefully it will be over
and it hope that treatment will be successful. I still have not lost hsir
but i am very tired and shaky. thanks for your encouragement. will check in when i can.
dx'd May 06/03
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bett:
i am so tired but i must speak a word. i have been up and down and
i still feel as if i am riding a roller coaster. we each handle the disease as
best we can but i try to live as you say, i thank GOD for every dawn.
prayers and hugs and as long as there is breath, there is hope for
another battle. we may not win the war but a serious of winning small
battles adds up to a longer life.
Hugs and prayers.
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Di: couldn't wait to get home to see what happened but i am having
trouble thi king and focusing. fortunately i have an excellent caregiver.
she was found before i started pci. i now have a ridiculus amount of
meds and for the first time, i can't do it myself well.
there was some hestitancy on the part of the onc to give me pc because i have so many aliments that i have collected over the years to the point that i was failing in ability to be mobile and stable on my feet before thecancer struck. then finally a year later they decided to do it. hair is
still here but i am prone to nausea and sleepy and tired but i am at
peace with round the clock care that i receive and for some reason, it is
one day at the time and i hope the pci helps but i am so glad i tried. i see
the lights , i smell a strange order but it is over in about 5 minutes. this
includes fitting the mask and i was told that placement was of utmost
importance since they needed the zaps in the same place.
My onc smiled brightly yesterday at my visit. mucus and coughing have
decreased but i now have some kind of belching sensation but all in all
i am more calm and whatever the end result, i tried and your comments and addie' amomg others have made the path easier. Marge, at 70 , helped too.
You are almost through, bully for you. i will miss coming home to find
out how your treatment went but i will be glad that you are through. You
certainly have helped me through.
May GOD BLESS. and thanks to all who posted about PCI. Headed for lunch and bed, i am hungry and tired
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sorry di, brain is not working well but i am trying. that is why there are
two similar messages. I did it over because I didn't think that it got posted.
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Di: It is not surprising that you are doing so well, you have such a nice
attitude and a supportive mother with good genes.
I have an appointment for 8:45 and am usually out by 9:00. Lately I
find somewhere to go before I get back home but that is because I
so seldom get out. It is cold here and I must wear a mask but sun is
shining and I am feeling better so it is a very good day.
Nausea is better but I forgot to take the decradon this morning and the
doctor said that I should not miss a dose because he was doubtful
but hopeful that I could complete the series of 15 treatments. I know
that you have fewer than I. I have learned that the facility will be
closed Fri.-Sun next week so treatment for me will skip three days and
end on the 28th .
I just pray that this has been effective. I am just grateful that you have
helped me through. My techs now ask about you and Addie every morning. Today they asked where you were from but I told her I didn't
know. My focus was on how your treatment went today.
Have a great day! Hugs and prayers for all of us.
Dx'd Limited SCLC May 06,2003
PCI scheduled to begin 12/07.2004
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Di: It is not surprising that you are doing so well, you have such a nice
attitude and a supportive mother with good genes.
I have an appointment for 8:45 and am usually out by 9:00. Lately I
find somewhere to go before I get back home but that is because I
so seldom get out. It is cold here and I must wear a mask but sun is
shining and I am feeling better so it is a very good day.
Nausea is better but I forgot to take the decradon this morning and the
doctor said that I should not miss a dose because he was doubtful
but hopeful that I could complete the series of 15 treatments. I know
that you have fewer than I. I have learned that the facility will be
closed Fri.-Sun next week so treatment for me will skip three days and
end on the 28th .
I just pray that this has been effective. I am just grateful that you have
helped me through. My techs now ask about you and Addie every morning. Today they asked where you were from but I told her I didn't
know. My focus was on how your treatment went today.
Have a great day! Hugs and prayers for all of us.
Dx'd Limited SCLC May 06,2003
PCI scheduled to begin 12/07.2004
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Hi Di:
Enjoyed your message. You and Addie write so well. makes for interesting
reading. I am so sleepy and fatigued and making many mistakes with
writing and it is slow go.
My head didn't hurt much today. My hands are not steady but I am like
schmaydee, giving it a good try. I am not ready to give up. I never
checked out what happens when this is over. My focus was just trying to
get through this PCI step.
I will write more when I feel better. I am so eager to read what you write
that i feel i should say something.
It is really cold here and I have to wear a mask and oxygen to try to
make breathing easier. Your mother is some kind of lady. You must come from very good stock.
Take care and thanks for your writing.
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Addie:
Thanks for your welcome. I felt like the 82 year old but I decided to
fight and try the treatment after the encouragement of my oncologist.
You of course are right that this disease does not respect age or anything
and I guess you just do the best that you can. You seem to be doing
very well in helping calm other people. Di said that you helped her
and she helped me and I am trying to help Marge some. I am not very
good with the computer and just was forced to write when I read Di's
log. Well, we are all in this together and we revel in each success because
it inspires each of us.
Joanie:
You are blessed to be a two and a half year survivor. It gives me much
hope. I have so many ailments that I feeel they are having a race to
beat cancer to the finish line.
I have learned to try to make the best of each day and focus on this
day and not worry about tomorrow so much that i don't enjoy the
present. I fight each battle one at the time as best I can.
dx'd May 06. 2003 sclc limited
28 rads, concurrent with 4 cycles of Chemo
PCI scheduled Dec. 6 through Dec. 27.
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Good Morning, Di:
I told my radiologist about you this morning and that I could hardly
wait to get home to see what happened to you this day. You are so
encouraging.
He did tell me that he would continue to treat me with decadron and
adjust the dosage as time goes by to see it I could make it through the 15 treatments. I certainly want to finish. Slight headache is coming on
now. I am a bit shaky and I sometimes take a bit of time to finish my
sentences with difficulty but I am still alive and that is good.
I bought the popsicles. Thanks for your suggestion. It is so nice of you
to have been posting all the time. I felt for a long time that there was
absolutely very little hope and have been psyching myself up for the worse. I now dare to hope a little.
I now have to get a CBC count and keep plugging away. I am impressed
with how quickly I can get away. I have an 8:45 appointment and am
usually out before 9:00. Today took a bit longer because I saw the doctor.
You have become a ray of sunshine in a drab day. You are sick too but
you are really helping me.
Gentle hugs and prayers.
Dx'd Limited SCLC,o5/06/03
Chemo finished 11/03
Completed 28 rads 08/03
Hospitalized Pneumonia 11/26/03
Offered PCI 15 TREATMENTS 12/06/04
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Nancy: I am having similar treatment for headache and another for
nausea. i certainly wish to finish the 15 treatments. You seem to have
done well and i am happy for you. thanks for your encouragement.
Schmaydee: the first picture depicts how I feel. I got sick on the
third treatment. I feel some better today. THanks for your input. I am
taking l6 mg a day for now.
DI: iwas hoping that i would be as successful as you have been but i am
hoping that the radiologist does not stop the treatment. i started and I
hope that I can finish. What kind of popsicles?
Dx'd Limited SCLC 05/06/03
chemo from 06/03 -11/03
radiation from 06/03 -08/03 28 rads
hospitalized pneumonia11/26/03
offered PCI 12/06/04 - scheduled 15 treatments
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Marge: you can gather that my brain is fuzzy. I intended to say that
I am now 78 and had many ailments when they topped it off with
cancer. I was stunned.
Diagnosed with sclc limited: May 06, 2003
currently cancer is stable with what is assumed to be scarring
PCI began on Dec 07,2004, not tolerating the treatment well
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Hello Marge:
I am glad that you had the courage to post. I read these posts for more
thatn a year but didn't find anyone writing who was in my age bracket
but desperatioon for info about PCI caused me to write. I went for a
second opinion after my first visit to an onc, who told me to give up
immediately since there was little hope. I never returned to the first
one.
I truly understand your fears. I have them but I have tried to focus on
one day at the time and try to enjoy that day and not worry about tomorrow.
There are some very supportive people on this site who encourage and
understand.
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Di:
I felt queasy on Wednesday morning and worse on Thursday and later
Thursday I proceeded to vomit and i had a very bad headache. I can't
take any NSAID so that means ifbuprofen is off limits. My radiologist
gave me decadron accompanied by Pepcid/AC to prevent an ulcer. If
the terrific headaches continues, he will stop the PCI treatment. We
will discuss it on Monday. Since they are PCI, I would like to continue.
I was 76 at diagnosis, dx'd 05/06/03.
Finished chemo 11/03
completed 28 rads 08/03
hospitalized 11/26 pneumonia
finallly offered PCI in December
I wondered why they waited so long.
I smelled the strange odor this morning for the first time.
I asked about the colored streaks. Were this treatment not for an
agressive cancer, I would find it fascinating.
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Addie:
Sorry to hear the comparison to a baby's butt. I was hoping that I
would be able to keep a bit of hair, but if treatment accomplishes its
purpose then it is certainly worth the loss of hair.
Schmaydee:
I just had my second treatment and I am so tired and sleepy but I
have been on edge anticipating treatment and barely sleeping. I am
hopeful that we will all be feeling better soon.
Dianne:
I will report on Day 2 later today. I hope this day goes well for you.
I am so tired but I will write and compare notes.
Small Cell, Limited. Dx'd 05/06/04
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Di:
I am right with you. This was day one for me. I couldn't sleep last
night or take a nap today. I am still hyper. I can relate to the streaks
of light. The mask bugged me but I tried to take myself to another
place and i got through it. I received the radiation series from this
facility and they all know me and acted as if they were so happy I
had returned so it was like being with old friends.
I was not offered PCI earlier but my onc decided to push it on me.
I am 78 years old and there was some hesitancy earlier in the game.
Comments from you and a few others gave me the courage to try it.
Treatment itself was not more than three minutes. Of course
setting me up for treatment took longer but it should be faster tomorrow.
I saw the streaks of light and closed my eyes tighter. My jaw began to
twitch but it was the unknown that bothered me. I am now eager to
see how I feel as time goes on. I was told that my hair would go.
Dianne, your suggestion that we write is a good one so I will post
as the process continues. Maybe we will help ease someone's fears.
I would like to say thanks to Nina. I have read your posts and looked
at your picture for months.
Patrice: Thanks for your words of comfort.
Peggy: I appreciated your good wishes.
Again, I am grateful for the friendly welcome that I received.
I have been lurking for quite awhile and benefitting from your posts.
Gentle hugs all around.[/b]
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Dianne:
Not experienced with contributing to this site. I have been reading it for
months. Now i needed it for input relative to receiving PCI. I spent many
sleepless nights trying to decide.
I had the mask done today. it was not bad but rather difficult for me
to keep the position. I get the first treatment tomorrow.
Your post helped me feel better and i hope that i sleep tonite. What
you said in your post is very similar to what i was told. I live alone
and have a caregiver in the day time and i have hired one to spend
the nights until this is over. although my radiologist said he didn't
think that i would need one.
Well, tomorrow I will see how it really is for me. I trust that things go
well with you and i am so grateful for what you wrote.
dx'd small cell limited
Alice
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I have been reading the notes relative to PCI. I am trying to decide if
it is a wise thing to do. Oncologist wants me to have it. The radiologist
says it does not significantly increase chances for survival.
I wish that i knew what to do.
Please share your thoughts with me
Dx'd SCLC 05/06/03[/b]
APB for Alice, Schmaydee & Mouse!
in SCLC GROUP
Posted
Di: Trying to hold on. Too weak to really write
alice