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J L W

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  1. Like
    J L W got a reaction from Tom Galli in Newbie   
    Followup - Review
    CT Scan = 9mm lower lobe - spiculated, lobulated with irregular borders - non calcified - 
    Met with the doctor yesterday after my PET scan. He said there was no uptake and no lymph nodes involved (Im happy about that) which gives us time to see if it grows over 3 months. So I'm scheduled for another CT in 90 days. I kinda liked his initial approach which was more aggressive.
     
     
     
  2. Like
    J L W got a reaction from Mally in Newbie   
    So, Still waiting on the repeat CT.  My PET san was negative, which gave me a better feeling about all this.
    While waiting, several medical friends told me I should get a second opinion. I got a second opinion and the 2nd Doc said that  PET has a lot of false negatives on 9 mm nodules. He cited several relatively recent cases he's working with patients similar to my situation that tested negative on PET, but positive on aspiration and VATS. He also said that since it is non-calcified, speculated and lobulatedi, thats not a good sign at all. 
    Anybody else have similar experience? I ask because the information available on the net is confusing. in this case, google is not my friend. 
  3. Like
    J L W got a reaction from LaurenH in Newbie   
    Followup - Review
    CT Scan = 9mm lower lobe - spiculated, lobulated with irregular borders - non calcified - 
    Met with the doctor yesterday after my PET scan. He said there was no uptake and no lymph nodes involved (Im happy about that) which gives us time to see if it grows over 3 months. So I'm scheduled for another CT in 90 days. I kinda liked his initial approach which was more aggressive.
     
     
     
  4. Like
    J L W got a reaction from Susan Cornett in Newbie   
    Followup - Review
    CT Scan = 9mm lower lobe - spiculated, lobulated with irregular borders - non calcified - 
    Met with the doctor yesterday after my PET scan. He said there was no uptake and no lymph nodes involved (Im happy about that) which gives us time to see if it grows over 3 months. So I'm scheduled for another CT in 90 days. I kinda liked his initial approach which was more aggressive.
     
     
     
  5. Like
    J L W got a reaction from Mally in Newbie   
    Followup - Review
    CT Scan = 9mm lower lobe - spiculated, lobulated with irregular borders - non calcified - 
    Met with the doctor yesterday after my PET scan. He said there was no uptake and no lymph nodes involved (Im happy about that) which gives us time to see if it grows over 3 months. So I'm scheduled for another CT in 90 days. I kinda liked his initial approach which was more aggressive.
     
     
     
  6. Like
    J L W got a reaction from Meloni in Newbie   
    Followup - Review
    CT Scan = 9mm lower lobe - spiculated, lobulated with irregular borders - non calcified - 
    Met with the doctor yesterday after my PET scan. He said there was no uptake and no lymph nodes involved (Im happy about that) which gives us time to see if it grows over 3 months. So I'm scheduled for another CT in 90 days. I kinda liked his initial approach which was more aggressive.
     
     
     
  7. Like
    J L W reacted to Meloni in Newbie   
    Hi JLW,
    Like the others, I would ask clarification about the size of the nodule (or perhaps you have a typo?). The size you indicate, 0.9 mm, is 1/10 of one millimeter. Ten millimeters equals one centimeter. CTs /PETs have a difficult time picking up spots and details of spots that are less than one centimeter. If I recall correctly, the medical community categorizes a mass as >/=3 cm (30 mm), and a nodule as <3 cm (30 cm).
    The beginning of my story is similar to yours, but our diagnoses may be very different. I had a 1.3 cm (13 mm) nodule that was spiculated and lobulated. It was first discovered by x-ray, and followed-up by CT. Due to my low risk demographic and exposure history, my medical providers chose to ignore it. I persisted, and found a pulmonologist who ordered a PET and subsequently a bronchoscopy, which diagnosed my NSCLC. 
    I spent hours researching lung diseases prior to my diagnosis--I'm clearly not an expert, but your nodule might not be cancer. People have nodules that are completely benign. I am the worst follower of my own unsolicited advice, but try to focus on pleasant activities, and avoid getting caught up in the "lung cancer hole" of the internet this week. Easier said than done, I know. 
    When you get back with the doctor, remember that you are your own best advocate. Be persistent if you feel they are putting you off. However, since your doctor ordered a PET, it doesn't sound like they are putting you off. Is your doc a general practitioner, a pulmonary doc, a thoracic surgeon, or an oncologist?
    Meloni
  8. Like
    J L W got a reaction from Meloni in Newbie   
    Hi, Very sorry guys. 
    The nodule is 9mm.  I see the doc again Monday afternoon. He told me he thought is was a 50/50 chance.
    i appreciate the comments. I'll let you know what happens.
  9. Like
    J L W got a reaction from Tom Galli in Newbie   
    Hi, Very sorry guys. 
    The nodule is 9mm.  I see the doc again Monday afternoon. He told me he thought is was a 50/50 chance.
    i appreciate the comments. I'll let you know what happens.
  10. Like
    J L W got a reaction from Mally in Newbie   
    I was recently informed that ai have a .9mm lobulated, spiculated, non-calcified nodule in right lung found on CT. Radiologist called it highly suspicious. Doc ordered a PET-CT and it was performed 3/03/17. Waiting on results. Of course I'm interested in the results, but Doc is out of the office all week. Anyone start out this way? Not asking anyone to diagnose, just curious about your experience.
     
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