Myra Rapport

Sarah,
I do absolutely understand. I had 4 recurrences after treatments. Each one felt like an emotional punch in the gut. 
I wish I had a magic pill that would wipe away this madness.  You know the drill.  A treatment plan will emerge and you'll need to suite up for the beat lung cancer game.  
Welcome back and stay the course.
Tom
 

HI I'm Myra,
Thank you for this site.   I had a nodule removed from my right upper lobe  about 1 year and a few months ago.   Onc said 95% chance no reoccurrence.  Now they found another spiculated mass there.  I don't have the measurements of the mass at my finger tips.   The surgeon said I am not a candidate for surgery.   I have another scan at the end of the month to see if any changes.
I was a wreck when I heard this news.  Now I feel good physically and am not looking forward to going into proceedures and treatments that make you feel sick.   
Sarah  all the best to you!   I just have a feeling that something will come through for you,  Blessings  
Thanks again for this site.  M

HI I'm Myra,
Thank you for this site.   I had a nodule removed from my right upper lobe  about 1 year and a few months ago.   Onc said 95% chance no reoccurrence.  Now they found another spiculated mass there.  I don't have the measurements of the mass at my finger tips.   The surgeon said I am not a candidate for surgery.   I have another scan at the end of the month to see if any changes.
I was a wreck when I heard this news.  Now I feel good physically and am not looking forward to going into proceedures and treatments that make you feel sick.   
Sarah  all the best to you!   I just have a feeling that something will come through for you,  Blessings  
Thanks again for this site.  M

Hi everyone! My dad was diagnosed in 2011 with IB adenocarcinoma. Underwent wedge resection, without need for chemo or XRT. Fast forward to 2016, when he underwent a CT scan to check on his (for now) stable aortic aneurysm, and they discovered 3 enlarged lymph nodes. Found to have IIIB adenocarcinoma. Underwent chemoXRT. PET in Oct revealed excellent response to the chemoXRT, however, we unfortunately missed the "curative intent" boat, as the cancer had already spread to the liver (too numerous to count), possible bony mets and possible lung nodules. So far, he had been asymptomatic entirely, outside of the side effects from the chemoXRT. He does not have your typical mutations, so onc recommended starting Opdivo, as he feels it works just as well, if not better than, standard chemo with fewer side effects.
The jury is still out regarding Opdivo, as he's only had one infusion. As soon as he had the infusion, he immediately started feeling symptomatic, unclear if it's from the disease or the tx. Substantial increase in fatigue, dysguesia, queasiness, and feverish. I'm not even sure he has the PDL-1 expression. Anyway, I'm asking about BRCA1 and CDKN2A mutations. Does anyone know much about these? The doc felt that if Opdivo doesn't work, we could potentially try olaparib or palbociclib instead. These have been approved as targeted therapies for recurrent ovarian and I think breast cancer. I haven't found much research on lung, except for ongoing some clinical trials in SCLC. Does anyone have any information, either anecdotally or clinically, about these mutations and using the other drugs?
Thanks so much! By the way, I'm getting married in January, and in lieu of gifts, my fiancé, sister, and brother in law have decided to donate money to this awesome organization. We are hoping we can contribute to a path toward better treatment options.