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LarryFB56

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  1. Like
    LarryFB56 got a reaction from LaurenH in NSCLC - New lymph node following treatment   
    Thank you Susan. I've been floowing your story and we have many similarities   I was diagnosed 3B Adeno in July 2016 and underwent the combo of 39 rounds of radiation and 4 rounds of chemo. Subsequently ended up with pneumonia from post rad and esophageal stricture. Last scan in May showed NED but then beginning of July cervical lymph node popped up and a a PET/CT was done and it came back hot. No other hypermetobolic activity in my body. Well biopsy was positive and now just waiting for tissue testing before they recommend a treatment. My radiology oncologist wants another 30 blasts at the node but my heme oncologist wants to wait until the testig comes back and use the node as a barometer wether target therapy of immunoltherapy is working.
    Wondering for your second line did you consider immune therapy like Opdivo or Keytruda? Regardsless you are NED now.   BTW I understand the ordeal with your parents. I lost my dad in January and was lucky to see him for my mothers 80 th birthday.  Subsequently learned that my mother has stage 4 breast cancer and to this day she know nothing about what's going on with me. I live in Florida and have no support system and thinking about moving back to Toronto to be with my family.
    You are an inspiration and prayers of healing and full recovery I'm sending your way.
    Best
    Larry
  2. Thanks
    LarryFB56 reacted to Tom Galli in Newbie   
    Julie Ann,
    I've walked in your shoes. The symptom that caused my diagnosis was coughing up blood.  Still I resisted seeing a doctor.  My wife had to nudge me, several times, and in fact, she just took control and pushed me through the diagnostic process.
    I was 53 when diagnosed and was at the top of my game.  I loved my work. A consummate "things" person, engineering was the perfect profession and everyday was a new challenge.  A life-long car guy, my garage was filled with sleek and powerful automobiles that received unbridled love and attention.  I'd just received notice from the United States Patent Office granting my first patent. I came down with a chest cold that ran its course but the coughing didn't stop.  Then blood appeared and I was overwhelmed by fear. I knew something was very wrong but thought ignoring it would improve the situation.
    When the emergency room physician told me I likely had lung cancer, I wouldn't believe him.  I thought I knew what lung cancer was then -- a disease someone else got.  Now it had me and my world came crashing down. "Things" people do one thing really, really well.  We control things.  But cancer is not a thing, it was a living beast consuming my body and it refused my efforts to control it.  I won't tell you I found courage to undergo treatment alone.  My wife's courage and conviction led me to treatment.  I won't tell you that treatment was easy.  It was nearly three years of mayhem that was easily the worst experience of my life. I will tell you I continue to enjoy a meaningful and worthwhile life experience now nearing 14 years after diagnosis.
    Since diagnosis, I walked my daughter down the aisle on her wedding day, held my granddaughter in my arms, enjoyed countless vacations, received two more patents and even published a book.  An engineer writing and publishing a book, who'd believe that? (People even read it!) There is substantial and meaningful life after a lung cancer diagnosis.  Susan, Cindy, Donna and Bridget have each experienced it.  I've experienced it.  You are being treated by a well respected medical institution.  Lung cancer research is finally yielding new treatment methods. You've got the world to live for --  for example, a future photographic safari on the Serengeti Plain.   
    Most importantly, Julie Ann, is one immutable point: if I can live, so can you.
    Stay the course.
    Tom
  3. Like
    LarryFB56 got a reaction from Tom Galli in Starting Keytruda and Radiation Treatment   
    Thanks for getting back to me Linda. I pray that this treatment works for both of us. Best of Luck Larry
  4. Like
    LarryFB56 got a reaction from Tom Galli in NSCLC - New lymph node following treatment   
    Thank you Susan. I've been floowing your story and we have many similarities   I was diagnosed 3B Adeno in July 2016 and underwent the combo of 39 rounds of radiation and 4 rounds of chemo. Subsequently ended up with pneumonia from post rad and esophageal stricture. Last scan in May showed NED but then beginning of July cervical lymph node popped up and a a PET/CT was done and it came back hot. No other hypermetobolic activity in my body. Well biopsy was positive and now just waiting for tissue testing before they recommend a treatment. My radiology oncologist wants another 30 blasts at the node but my heme oncologist wants to wait until the testig comes back and use the node as a barometer wether target therapy of immunoltherapy is working.
    Wondering for your second line did you consider immune therapy like Opdivo or Keytruda? Regardsless you are NED now.   BTW I understand the ordeal with your parents. I lost my dad in January and was lucky to see him for my mothers 80 th birthday.  Subsequently learned that my mother has stage 4 breast cancer and to this day she know nothing about what's going on with me. I live in Florida and have no support system and thinking about moving back to Toronto to be with my family.
    You are an inspiration and prayers of healing and full recovery I'm sending your way.
    Best
    Larry
  5. Like
    LarryFB56 got a reaction from Tom Galli in NSCLC - New lymph node following treatment   
    Tom thank you for your informative post. I moved down to Florida 4 years ago from Toronto. Needless to say I have my whole family and support system up north. It has been difficult challenge doing the treatment s. Florida. I will have to make some decisions.  I was initially diagnosed Augusts 2016 with Adenocarcinoma Large Cell. The lymph node the came back positive for lung primary was the right upper neck. My radiology oncologist recommends 30 shots of radiation however my heme oncologist wants to complete all the molecular tests first. He says that the lymph node would be a good indicator if I'm responding the chemo/systemic (i guess is the immunotherapy). At this point emotionally I just want to coccoon in my apartment and anxious to get this treatment going.
    BTW I picked up your book from Amazon and just started. It seems the first diagnosis is a huge surprise and every time I go to sleep I hope I wake up and all this was just a bad dream.
    Cheers
    Larry
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