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Moonbeam last won the day on February 18 2020

Moonbeam had the most liked content!

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    Fort Lauderdale
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  1. So glad all went well, MarieE. My husband had a pneumonectomy and I was amazed he was up and walking shortly after his surgery. Home is definitely the best place. Sending so much love and well wishes to you and your husband. we are all here for you! XX
  2. Lisa A - my husband received 5 treatments to L5 in his spine plus had kyphoplasty at the end of July and first few days of august. All was going well and he stopped all pain meds first week of September. UNTIL this past Monday. The pain in the same spot is back...and goes into his hip. The radiation helped and all is stable. There are no new metastatic lesions and everything is stable. Except the pain. They have done 2 MRI's of the spine in the last 2.5 weeks and no reason for this amount of pain...He was admitted on Tuesday am and he is now taking gabapentin, dilaudid, and xanax. They think his anxiety may have something to do with all the pain. 🤦‍♀️ I know the burn from the radiation cropped up on Sept. 12th and I feel since then, little by little, uncomfortableness developed but by last week and weekend, he was back on the floor. Never did I think we would be here again. All of his doctors know about this and seems the only answer is pain meds (he's so bummed about that) and xanax for anxiety. Who doesn't have anxiety and especially a cancer patient! Maybe there are others who know or can shed light on this. XX Moonbeam
  3. Love it, Michelle!!! And Tom, you got this. Prayers for another clear scan!!! Xx
  4. My husband started chemo/Keytruda almost 2 weeks ago for recurrence. He’s had for the past 4 days a stomach ache. His symptoms are: -Pain to the touch below the belly button and to the sides. -Intestinal gas style pain. -Dull burn sensation. -Occasional gas produces minimal but noticeable relief is this normal? I’m going to call tomorrow but thought I would reach out an ask. Any and all advice is great.
  5. Appts start this am. And MRI of spine is this afternoon. He’s nervous and feeling defeated, scared the last day and a half. He wants it all to work. I believe the tumor in spine has shrunk. He can sit and walk and pain is about a 3/4 compared to 7-10! Lung we won’t know if chemo/immunotherapy is working for quite some time, I imagine. Today’s appts are all pain management prescriptions and MRI, as I said. Tomorrow, we will meet with his neurosurgeon to go over results of MRI. 🙏🏻 I’ll keep everyone posted xx
  6. Thank you all. Today has been much better. Bone pain has lessened- nausea on and off but better than yesterday. We leave again, Tuesday, for a few appts and an MRI of spine to see how Kyphoplasty was and radiation. We will also go thru all of his pills/pain management ones as well. He’s having a hard time emotionally and I sooo understand it. My heart breaks for him however, I’m all about moving forward one day at a time. Every day is a new day and I hope he responds to the new treatment. 🙏🏻
  7. Thank you everyone. Staying hydrated and making smoothies. BridgetO - good idea with the rice. It’s amazing how we forget the basics. 😩 This second time around going thru chemo is a bit different and I’m charting again. I just got worries with the joint paint as last time, he didn’t have as bad if at all. Onwards and upwards...hoping tomorrow he’ll feel a bit better!
  8. Good morning all. Well, after my husbands infusion Wed. 8/7, he was feeling ok. Very normal. This time around is a bit different and want to make sure all is ok. His new cocktail is: Carboplatin, Paclitaxel, and Keytruda. Now on day 3, He is having muscle aches and pain, stomach upset (almost burning), dizziness and he's lost about 5 pounds in a day. He's eating but it's difficult as we all know. Are these normal symptoms? He doesn't look jaundice and he doesn't have a fever. Is there anything I can give him other than all the meds he is on? He takes quite a few bc of his metastasis to L5, even though that is better after his radiation and kyphoplasty procedure. I just gave him his anti-nausea medicine and anxiety med, plus muscle relaxant etc. ugh, i hate this for him!!! Anyhow, any information or advice would be great at this point. XX
  9. Hi Michelle! Thank you for responding. My husband is familiar with the ringing in the ears bc he had that on the cisplatin. They now say “he has an allergy to it”...lol At this point, he will take ringing in the ears to get this under control 🙏🏻 . Let’s say he doesn’t respond, are the other alternatives if no genetic markers? hope you are well! Wish we lived closer xx
  10. Hello all...so my husband starts his new treatment for his recurrence. He will be on Carboplatin/Abraxane with Keytruda. praying he responds to treatment 🙏🏻 I charted his symptoms when he had his infusions when he was initially diagnosed after he had a pneumonectomy. He was on cisplatin/taxotere. Any one else on the above? What should we expect? Similar to the 1st course of treatment? Did everyone respond. BTW, he has no genetic markers...maybe that will have changed after these last biopsies? Thank you all for responding. XX
  11. Thinking about you....you can private message if you like....xo

    1. Moonbeam


      Hi karen. I'm sorry I didn't see this! We went over to Tampa General on Monday and saw a vascular surgeon. He is set for the procedure this friday. We go over on Thursday morning and he will be admitted around 4. He has had a bit of pneumonia and is on doxycycline for that. The surgery is the Thoracic Endovascular aortic repair. They will go through his groin and put a stent in place. We saw his pulmonologist here and he agreed and all are on board with the surgeon who will be doing it. Never a dull moment and praying all goes well . It was comforting to know you had heard of this happening. they believe it was due to the trauma of the surgery. Not surprising as a total pneumonectomy is quite a surgery. ugh...thank you for reaching out! How come yours is a wait and see? Hope you are well. XX

  12. wow Karen, completely agree with all you speak of. Laughter being one of the best medicines; Becoming your own and in my case, my husband's advocate. Every time, i learn something new every day. I also have been so on top of it, some on his team (surgery, oncology etc) have missed things, wrote things that were wrong, the list goes on. This new finding is troubling and not a lot of info out there that I can find. Any info you have on Pseudoaneurysm from descending thoracic aorta would be great. Thank you so much and again, Welcome to the forum!!! XX
  13. Karen - your strength is admirable and congratulations on 21 years!!! Welcome to the forum! Husband stage 2b lung cancer pneumonectomy left lung almost 5 months ago
  14. My husband did not really have insomnia but he did have hair loss...he was cisplatin and taxotere. His started to fall out right at the 3 week mark just before his 2nd round. His was also every 3 weeks. He had his final chemo on March 29th. His hair funnily enough, started to grow back in spots. so not he just has a little hair sticking up on his head. Looks adorable. Hope this helps and sending lots of love and prayers to your mom. XX
  15. Disappointed/dissatisfied tbh since the get go with the oncologist, the oncologists head nurse he was assigned to after his surgery. Don’t forget the first meeting with oncologist he wrote “margins were positive”. Incorrect/splitting hairs?. Pathology report said no because they removed the part of the tumor that grew out of the bronchus into the tissue. Bronchial margin and vascular margin were uninvolved by carcinoma however, the tissue margin extended to the outer surface of the main bronchus. But surgeon removed that. Since that time, first visit good. Second visit good. Third enter PA. and note on his portal from nurse stating I was “emotional” and tearful regarding genetic testing, immunotherapy and tinitis and saying I said they were not moving quickly enough regarding husband’s treatment ??? And PA’s nursing note that “husband is anxious regarding his treatment.” Ugh...you all can see how frustrated I am. I will definitely be writing a letter and speaking to an administrator as it’s just not right. Thank you Tom for the advice...have lots to think about moving forward that’s for sure. xx Moonbeam
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