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Eugenia Gregorio

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  1. Are there any success stories about people that went from altima/carbo/keytruda (2 sessions) to Tagrisso (for 30 days) but then got a bad side effect - pneumonitis and then pneumonia - and had to switch to Tarceva? I read so many great stories about Tagrisso being a miracle drug and I'm devastated that my mom can't go back on it because it was definitely working until she got pneumonitis and then pneumonia after a month. Looking for some hope here! Here are more details: My mom is 72 yrs old, retired in North Carolina with my dad 15 yrs ago, was a cancer researcher for 40 years (her last project was working on drugs related to EGFR in fact!), and was diagnosed with Stage 4 lung cancer in late December 2018. (spread to her bones - mostly covering her spine top to bottom). She is being treated at Zimmer Cancer Center in Wilmington, NC (an hour from their house) and after 2 sessions of chemo/keytruda and lots of trips to the hospital for dehydration, weakness, pleural effusion (she now has a tube in her lungs to pump out fluid every couple days) - the oncologist found out she was eligible for Tagrisso but I don't know the specific mutation and have no idea why it took over 6 weeks to get results back for gene therapy. She took Tagrisso for 30 days, while living in a rehab center to get her strength back, and was doing so much better and meds were working per scans when discharged a few weeks ago but a week after being home was rushed back to the hospital due to Pneumonitis (3-5% complication from the Tagrisso) and stayed in the hospital 2 weeks to monitor her lung inflammation and get oxygen and immediately taken off Tagrisso. She was discharged a week ago from the hospital with oxygen and steroids, started taking Tarceva 2 days ago, and was in the hospital yesterday and again today to now be told she has pneumonia and needs to be monitored.
  2. Hi Michelle! Which drug do you take? Tagrisso was working so fast but after 30 days she had a bad side effect with it and isn't allowed to go back on it so they want to switch her to Tarceva?
  3. My mom was recently diagnosed with Stage 4 Lung Cancer that has spread to her bones. She has completed her second chemo/keytruda treatment and will start a new treatment in a week because she should be getting approved to take Tagrisso (gene drug) soon too. They first found the cancer because they thought she had a pneumonia due to fluid in her lungs, then found the mass after realizing that the antibiotics were not helping. That was about 2 months ago in early December and a month later they diagnosed it as NSCLC. Since her second chemo treatment, which was 2 weeks ago, she has been rushed to the ER (first for dehydration and then for trouble breathing) and both times they had to drain the fluid in her lungs. She is in the ER tonight and they plan to put a tube in to help keep it draining even after she goes home and they are also giving her antibiotics just in case she does have a pneumonia. She has been very tired since chemo treatment started, sleeps almost all day, refuses to get up and walk around, and when she does walk around she insists on using a walker so she is not getting stronger. Her motivation and confidence is very low. I'm at a loss and I live far away. Has any experienced this fluid build-up issue over and over again? The doctor said it is not ideal...
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