trishnmiller
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Posts posted by trishnmiller
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I can only wish for you the peace and blessings that come with knowing you helped him fight the good fight. He is at rest now.
In love and prayer.
Trish
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Your story is my story too. Your husand is younger than mine but my children are 10 and 12. Although my husband came home sick today he has been working steadily for the last 6 months (after being told he had 1-3 months to live) so you never know. Today was just a bad stomach ache. We will all be praying for your husband. In the meantime don't forget to take care of yourself...it can get really hard to do that!
Trish
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Oh Boy! Sometimes...ARGHHH. My friend who was suppose to go with Jeff to get the liver/lung scan calls and says that Jeffrey never drank the white stuff and then he ate breakfast when he was suppose to fast. I sent him down stairs last night so he wouldn't forget..ah, hell. Anyway, it's rescheduled for Friday. As it turns out, it didn't matter anyway as he didn't really have an appointment. The nurse had never called down to confirm it. Thanks for all of your prayers and I too pray for all of us every day and night. I'm trying to work every day and I don't always get to respond to each person but know that I think of all of you. You are my lifeline!
Trish
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Today was a shocker as Jeff went to Doctors Hospital for removal of 1 brain met and Dr. Wolf found 5! He Gamma Knifed them all and also informed us that all 8 of his previous mets are completely gone, so that is good. Tomorrow he has a new liver and lung scan but it will be a few days before we know that results. Prayers please and lift up our wonderful doctors (when we find them)
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Today is April 18, 2011. Once again I am writing during Holy Week because God is good. My husband remains cancer free. I haven't been on this forum in 2 years but Jeffrey ran into someone at a cancer benefit concert who was interested in his story. He asked me to send the gentleman this post so here I am, glad to continue to share his miracle. Bless all of you in your journey as you are a strength to everyone who struggles with you now and in the coming years as many more are counted among the long term survivors of "The Beast".
Today is April 2, 2009 and as I prepare for Holy Week I have been thinking about all of the events of 4 years ago. Today my husband remains cancer free and is a working, loving productive individual. As you travel through your own personal hell with this I want you to understand that there are people who survive stage 4 NSCLC and my Jeffrey is one of them. On Friday he is having surgery for a hernia which got very large because none of us wanted to deal with hospitals again! We are grateful for the support of this forum. It was and is an enormous help. There was a time when we lived on these boards. I never thought we'd see "normal" again but here we are.
Jeffrey's story
Around Christmas time in December 2004 I began wondering what the hell was wrong with my husband. He was distant, ornery, and just generally awful. I repeatedly drilled him as to what was going on and he just kept saying that he didn't feel well. He went to our family doctorwho gave him Biaxin for an upper respiratory infection. He just kept getting worse and I started to suspect drug abuse because he works on South Beach and ...well, you know how it goes. Anyway, he got to the point where he was losing words for simple things. He would point and say "go get that,that,that...thing". I knew something awful was going on. Then on January 12, 2005 I brought home subs for dinner and he asked what it was and I told him it was an Italian Classic and then he said, "No, what is it..what am I suppose to do with it?" He didn't even know it was a sandwich! The next day I had my friends from the fire dept come and take him to the ER. Everyone thought he had had a stroke and was blaming me for not getting him in earlier. I kept trying to tell them there was no "event" just a progression of wierd behavior. They did a CT Scan and found the first tumors (
in his brain. I was struck dumb. I didn't even cry In fact I don't remember what I did except just sit there. He was admitted and during the next week there were MRIs and a liver biopsy and more scans. Ultimately his diagnosis was Stage 4 nsclc with mets to the brain and liver. The doctor gave him 1-3 months. He went on decadron for the swelling from the brain tumors and that helped him become much less "clouded" in his thinking. At least we were able to face this together with our children John 12 and Megan 10. I got our affairs in order, had him make a living will, got durable power of attorney and then I went on the internet to learn as much as I could about this new fact of our lives. I found out about Gamma Knife for the brain tumors but the first two radiologists refused to perform it on patients with more than 4 tumors. Then I found Dr. Aziak Wolf. We took Jeff's scans to him and he said "I can do that". The Gamma Knife surgery was performed on Feb 1 and 2, 2005. All 8 mets were done in two sessions. He was totally clear in his mind, felt great and returned to work. He also began chemo treatments which worked well on the primary lung tumor but not as well on the liver tumor. He then was switched to Tarceva. That was 2 months ago He will have a scan tomorrow to see if he needs to go back to chemo. In the meantime, he got 5 new tumors in the brain which we had Gamma Knifed out this morning. We are now prepping for cyberknife of the liver tumor but we need to get new scans before we absolutely go ahead with it. 
This is not a journey I would wish on my worst enemy but with the support of my friends,family, and church family we are not making it alone. Jeffrey is still working and still feeling great. We keep reminding ourselves that every day is one more than all of his many doctors (except Dr. Wolf) gave him and thank God that He had other plans. -
Go ahead and scream. I'll be howling as well. My husband's MRI showed a new tumor this morning. he called to tell me on his way to a consult with the cyberknife oncologist...argghhh.
Trish
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I am so thankful to have found this site! On January 13, 2005 I had my friends at the Fire Station take Jeff to the hospital because he was becoming increasingly "odd". For days he couldn't remember simple words and his eyes looked like he was on drugs. I kept demanding to know what was happening and he just kept repeating that he didn't fell well. Actually this had been going on all through the Christmas Season. When I got the diagnosis that he had 8 brain tumors from nsclc and 1 met in the liver, I felt like Alice falling down the rabbit hole into cancer wonderland
...not a nice place. We have 2 kids: John,12 and Megan,10. I work full time and we have no living relatives in the area. I never had felt so overwhelmingly alone in my life. They told me he had 1-3 months to live and to get his affairs in order. I won't go into the whole saga right now but that was in January and now it's almost May. He is back at work and has been since the middle of February. We changed oncologists and protocols several times. I became agressive 
and pro active. This is as much my disease as his and we are fighting for our life. After months on the internet there is very little clinical information left for me to read. What I need now is to know what "real people" are doing with their situation and the results they have. Statistics are depressing and seem to have no connection to our personal reality. We rely on brains, hope, and Faith in God. Trish
in his brain. I was struck dumb. I didn't even cry In fact I don't remember what I did except just sit there. He was admitted and during the next week there were MRIs and a liver biopsy and more scans. Ultimately his diagnosis was Stage 4 nsclc with mets to the brain and liver. The doctor gave him 1-3 months. He went on decadron for the swelling from the brain tumors and that helped him become much less "clouded" in his thinking. At least we were able to face this together with our children John 12 and Megan 10. I got our affairs in order, had him make a living will, got durable power of attorney and then I went on the internet to learn as much as I could about this new fact of our lives. I found out about Gamma Knife for the brain tumors but the first two radiologists refused to perform it on patients with more than 4 tumors. Then I found Dr. Aziak Wolf. We took Jeff's scans to him and he said "I can do that". The Gamma Knife surgery was performed on Feb 1 and 2, 2005. All 8 mets were done in two sessions. He was totally clear in his mind, felt great and returned to work. He also began chemo treatments which worked well on the primary lung tumor but not as well on the liver tumor. He then was switched to Tarceva. That was 2 months ago He will have a scan tomorrow to see if he needs to go back to chemo. In the meantime, he got 5 new tumors in the brain which we had Gamma Knifed out this morning. We are now prepping for cyberknife of the liver tumor but we need to get new scans before we absolutely go ahead with it. 
This is not a journey I would wish on my worst enemy but with the support of my friends,family, and church family we are not making it alone. Jeffrey is still working and still feeling great. We keep reminding ourselves that every day is one more than all of his many doctors (except Dr. Wolf) gave him and thank God that He had other plans.
...not a nice place. We have 2 kids: John,12 and Megan,10. I work full time and we have no living relatives in the area. I never had felt so overwhelmingly alone in my life. They told me he had 1-3 months to live and to get his affairs in order. I won't go into the whole saga right now but that was in January and now it's almost May. He is back at work and has been since the middle of February. We changed oncologists and protocols several times. I became agressive 
and pro active. This is as much my disease as his and we are fighting for our life. After months on the internet there is very little clinical information left for me to read. What I need now is to know what "real people" are doing with their situation and the results they have. Statistics are depressing and seem to have no connection to our personal reality. We rely on brains, hope, and Faith in God. Trish
Jeffrey's Scan
in MEMBER UPDATES
Posted
My friend went with Jeff to have his scans read by the Oncologist today and the results are that there is nothing new
. No new tumors but no action in the old ones either. The Doc is going to take him off the Tarceva, go ahead with cyberknife of his liver tumor and then start Alitma/Carboplatin. Who out there had had this chemo? Jeff has never had side effects from anything but I would like to be prepared. I hope he can wait until after our vaction to start the new chemo.
Trish