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Irwin1

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  1. Like
    Irwin1 got a reaction from Terri L in Update ....   
    I think I'll chime in. I guess not everyone has the same faith as me but I can share this letter from Paul the apostle. God sometimes allowed him to do great miracles and sometimes not. But I will say this. Paul was in prison and was suffering in there. When he wrote one of his letters to a church he established he directly attributed the prayers from his church that was giving him the stregnth to make it through.
        And the same with us. If we meditate on the prayers that are said in our behalf we can receive the same help that Paul got when he was in his hardships!!!
  2. Like
    Irwin1 got a reaction from PaulaC in I did it to myself part II the sequel   
    It's really irritated at the bottom of my trachea. The Dr said to inhale a hot cup of tea steam.
        Anyway I am a cancer survivor. I experienced it all. I got my results back and the mass and lymphnodes all clean of malignancy nor cancer cells. 
      And although I got back negative results I really really experienced it. I have to go back for a follow up CT scan in 3 months. 
  3. Like
    Irwin1 got a reaction from Rower Michelle in I did it to myself part II the sequel   
    I read somewhere that the Drs like to keep an eye on benign stuff just to monitor things. But it is fine with me.
      
  4. Like
    Irwin1 got a reaction from Robert Macaulay in I did it to myself part II the sequel   
    I read somewhere that the Drs like to keep an eye on benign stuff just to monitor things. But it is fine with me.
      
  5. Thanks
    Irwin1 reacted to Rower Michelle in I did it to myself part II the sequel   
    Now the sun will shine brighter for you every day! 
  6. Thanks
    Irwin1 reacted to Isabelle49 in I did it to myself part II the sequel   
    Irwin!, I think you’ve got some good stuff for a book and the way you tell the story would make it a really fun read. Hop to it!!!
    BTW you mentioned that the day after your bronchoscopy you felt great, then all heck broke loose. Tell me what you experienced, I am really curious. Before I had the bronchoscopy I had no symptoms at all and we had just returned from 11 days traveling through Germany and Amsterdam. I even had to climb up a pretty high hill to get to the top to visit a castle - I did get short of breath, but I put that on the fact that I don’t exercise. When home from the trip, no symptoms. Had the bronchoscopy about a week later, developed persistent cough with lungs so congested I sounded like a washing machine. In order to get enough air, I had to resort to an Atrovent Inhaler that I received in 2018 for bronchitis, which I didn’t have to use much then. Needing the inhaler has become a very frequent thing on a daily basis since the bronchoscopy.  I told the docs about worsening symptoms and all they says is, “it’s the cancer”. As an RN of 33 years, I am not stupid. When a person goes from being just fine on day to really bad the next day with a invasive medical procedure in between, something is amiss. Just my 2 cents. But, write that book anyway!!!
  7. Haha
    Irwin1 got a reaction from Rower Michelle in I did it to myself part II the sequel   
    I'm a rookie at this. I guess I would have found this out.. But he got me into his office pretty quickly when the PET scan came in. Besides, I haven't had a chance to train his staff yet. I am professional at sucking up😎
  8. Thanks
    Irwin1 reacted to Rower Michelle in I did it to myself part II the sequel   
    Oncologist appointments are hard to get. Better to have them scheduled & cancel them. They are just being practical.  
  9. Thanks
    Irwin1 reacted to Rower Michelle in I did it to myself part II the sequel   
    Oh my friend- this is absolutely the worst time. It  does get easier.  Regardless of the result, it’s not the end of the world however the beginning of a new one.  In time you will see that good can come from this experience  
    We all understand the Dr Google thing- it’s hard to live in limbo when all you really want is a concrete answer.  
  10. Thanks
    Irwin1 reacted to Rower Michelle in Bronchoscopy, Recovey   
    I thought the waiting for the biopsy results was the absolute worst. Scanxiety is in my opinion much more manageable.  
    Chocolate milkshakes got me through the results waiting period. 
  11. Like
    Irwin1 got a reaction from Tom Galli in Bronchoscopy, Recovey   
    Still waiting for results. This is making the anxiety grow and grow. This must be the same thing as scanxiety
  12. Thanks
    Irwin1 reacted to Laurel in I have to share this good news!   
    Irwin....never feel guilty.  Celebrate all positive health reports. Hugs
  13. Thanks
    Irwin1 reacted to Rower Michelle in I have to share this good news!   
    Joy!  Praise God!  Not guilt.  Having an unknown illness is a wild ride no one wants to take- getting closer to a diagnosis... hang on.... 🙂
  14. Like
    Irwin1 got a reaction from Tom Galli in I have to share this good news!   
    Funny thing. While I was editing my previous post the surgeon's office called and I have to be there ready to go on Monday morning at 7am. That'll definitely work out for me!
  15. Like
    Irwin1 got a reaction from Rower Michelle in I have to share this good news!   
    Funny thing. While I was editing my previous post the surgeon's office called and I have to be there ready to go on Monday morning at 7am. That'll definitely work out for me!
  16. Like
    Irwin1 got a reaction from PaulaC in I have to share this good news!   
    Funny thing. While I was editing my previous post the surgeon's office called and I have to be there ready to go on Monday morning at 7am. That'll definitely work out for me!
  17. Thanks
    Irwin1 reacted to Tom Galli in I have to share this good news!   
    Irwin,
    I know! Diagnostic delays are horrible. I do hope you are able to get on track next week.
    Stay the course.
    Tom
  18. Thanks
    Irwin1 reacted to Rower Michelle in I have to share this good news!   
    Another way to look at this is if the medical team really thought there was a need for an emergency broncosopy then you would inpatient right now.  The outpatient process is like watching pot to boil you’re starving & it seems to take forever. 
    Keep plugging away and advocate for yourself, the squeaky wheel gets the grease. 
  19. Like
    Irwin1 got a reaction from LexieCat in Confused about everything almost.   
    Almost the same exact thing happened to men. Thoracic Surgeon very positive oncologist and pulmanary doctors not so good. I am going through the diagnostic screening process now and the roller coaster ride is a good analogy. Feeling like a yo-yo is good. 
       I found that waking up in the morning and seeing how I feel is much better than asking the doctors how I am. If I am feeling good today then the heck with what the doctor says. I will say that today I feel okay..I don't know how I will feel tommorow or the day after that. But if I am okay I am not going to let what a doctor says to take away how I feel on that day. Or at least that's how I feel about it
  20. Like
    Irwin1 got a reaction from Tom Galli in I have to share this good news!   
    I got some more hope today. Last Friday I took a fresh CT scan. I had my first CT scan in the ER on May 20 when they discovered the mass. Then I had my PET scan after I was discharged. Then this later the one on Friday. In the ER the mass was between 5-6 cm. I had a needle biopsy that said that the pathologist did not see any cancer. Just cells and dead tissue. Then in the PET scan my wife noticed that the mass shrank to 4 cm. She asked the oncologist about this but he said that the shrinking was because of the PET scan was not as accurate as the CT scan. 
    ...I was feeling very healthy today and I still did not have even one of the symptoms of LC even with the 5cm mass in my lung with a PET scan with positive lymphnodes.So I called into the thoracic surgeons office to see if they would read the results to me..The girl who answered the phone that she had to get someone in the technical department to read the results. So I have no idea what the qualifications of the girl that read the report to me. I don't remember what the report called the mass but the report said that there was shrinkage in this CT scan too. The girl told me that it was very rare that something cancerous to shrink by itself.. But I am sure that the girl had to know that she would get into a lot of trouble saying this. She told me that I would still recommend taking the bronchoscopy.
       So I am taking what she told me with cautious optimism. If I get over exited about this I could get emotionally body slam if I get a terrible report from the bronchoscopy.
         But I do have some real hope the way things are going. The positive PET scan lymphnodes could be reactive from infection along with the mass. For those who pray keep praying 🙏
  21. Like
    Irwin1 got a reaction from Curt in I have to share this good news!   
    I got some more hope today. Last Friday I took a fresh CT scan. I had my first CT scan in the ER on May 20 when they discovered the mass. Then I had my PET scan after I was discharged. Then this later the one on Friday. In the ER the mass was between 5-6 cm. I had a needle biopsy that said that the pathologist did not see any cancer. Just cells and dead tissue. Then in the PET scan my wife noticed that the mass shrank to 4 cm. She asked the oncologist about this but he said that the shrinking was because of the PET scan was not as accurate as the CT scan. 
    ...I was feeling very healthy today and I still did not have even one of the symptoms of LC even with the 5cm mass in my lung with a PET scan with positive lymphnodes.So I called into the thoracic surgeons office to see if they would read the results to me..The girl who answered the phone that she had to get someone in the technical department to read the results. So I have no idea what the qualifications of the girl that read the report to me. I don't remember what the report called the mass but the report said that there was shrinkage in this CT scan too. The girl told me that it was very rare that something cancerous to shrink by itself.. But I am sure that the girl had to know that she would get into a lot of trouble saying this. She told me that I would still recommend taking the bronchoscopy.
       So I am taking what she told me with cautious optimism. If I get over exited about this I could get emotionally body slam if I get a terrible report from the bronchoscopy.
         But I do have some real hope the way things are going. The positive PET scan lymphnodes could be reactive from infection along with the mass. For those who pray keep praying 🙏
  22. Like
    Irwin1 reacted to Isabelle49 in Real or anxiety induced   
    I like to think of myself as a level headed person, but I think I tend to suppress certain emotions. As I get closer to treatment, I am finding that I am having more shortness of breath, but thinking that anxiety is the cause. As an ex home health nurse, I do have a pulse oximeter and can check my oxygen saturation level. When I am feeling particularly sob, I often find my number 95 or above. I look at my palms, they are pink, nail beds, pink too. I had this sob issue years ago when packing to move to a different city and I think it was stress related. Can anyone identify?
  23. Like
    Irwin1 reacted to Isabelle49 in Brain MRI   
    God is Great!!! Brain is clean (of course, this is relatively speaking). Major hurdle, so good to hear. Thanks for your prayers. Blessings to all.
  24. Like
    Irwin1 got a reaction from Rower Michelle in Woke up very sick   
    Feeling better as the day went on. I have no idea why I was so sick earlier. Maybe it has to do with the cancer. I don't know what cancer feels like. 
       Someone also told me that it takes time to get totally better from pneumonia
  25. Thanks
    Irwin1 reacted to Barb1260 in Treatment plans and costs   
    From what I understand, treatment plans are protocol based depending on the stage and other details of your case. The copayment you have depends on your insurance but if you can’t afford it there are usually ways to get financial help. Look into a social worker through your oncologist office, there is usually one to navigate any issues. The 2 in my docs office said just last week there is a way to find assistance for everything and they have been miracle workers. It all seems daunting at first but it always works out. 
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