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KarenR

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Everything posted by KarenR

  1. Hello, I have been feeling very out of breath lately and have been coughing more than usual. I went to the doctor and had a CT that shows a lot of fluid around my cancerous lung. I will be having the fluid removed as soon as they can schedule me. Is there anyone who has had this procedure who could let me know what to expect? Does it come back? I have gone through radiation and chemo and I have been on Tagrisso for 2 weeks. Thank you!
  2. Hi Dona, I just saw your post. I hope you are doing well. My mass was 6.5 cm. It has been significantly reduced by radiation and chemo (radiation every weekday for 6 weeks and chemo every 3 weeks / 3 rounds)and the lymph nodes that were affected are clear. They did genetic testing and found that I have an EGFR mutation and so I started Tagrisso last night which is specifically for the EGFR mutation. Every day I try to stay positive. I had a terrible time with nausea during chemo but it passed. I have some shortness of breath but I still do what I can as far as activity goes. Sometimes it’s a long walk and sometimes it’s a walk around around the block and sometimes it’s a rest day. ! I just keep moving and enjoying life. if you would like to talk about the treatments please let me know. I’m happy to share the good, the bad and the ugly. God bless you and hang in there. Best, Karen
  3. I had my first dose of chemo on Friday, Saturday I was fine. The nausea started Sunday and continuing today… With daily radiation. I feel terrible….
  4. Thank you Delia for your insight and suggestions. I’m so happy to have found this site with people like you and all who have shared with me. Good luck to you as well! Best, Karen
  5. Hi Lexie, The radiation oncologist said that the radiation was right on the edge of what they could do because the lymph nodes were fairly far from the tumor and they have to be able to get them all. They are going to do 4d imaging of the area next week and then radiation starts the 17th and chemo on the 18th. He said that I will most likely have some irritation to my esophagus due to proximity of the lymph nodes, but should be manageable. Thank you for the link to the Durma blog. Very informative! I’m so glad I found this site. You are all wonderful :) Best, Karen
  6. Hello all, I have adenocarcinoma, stage III b NSCLC lung cancer, inoperable because one lymph node is near my collarbone. The oncologists are recommending radiation therapy (IMTR) 5 days a week for 6 weeks and chemo treatments once every 3 weeks(2-3 rounds) which will be Carboplatin and Pemetrexed. After radiation and chemo, the plan is that I will go on Durvalumab.(Imfinzi) If anyone has had experience with any of the treatments, please let me know. Also, any feedback is appreciated. Thank you.
  7. Good luck to you and thank you. Please keep me updated as well.
  8. Me too, can’t help myself. Plus it gives me some questions to ask. everything takes so long! Does anybody’s primary care physician get involved?
  9. Thank you everyone for all of your comments. It’s such an emotional roller coaster. I’ve been reading a lot of articles from this site and others just so I have a basic understanding. Your comments and clarifications really help me.
  10. Hi, On May 2nd they found a mass on my right upper lung and since then I have had MRIs of the abdomen and brain. CT of the abdomen and chest, PET and had the biopsy on May 18th. I have adenocarcinoma with spread to lymph nodes on right side. Mass is in right upper load. I was anticipating that they could perform surgery. But one lymph node is near my collarbone so surgery is not an option and I am stage 3b. I will be seeing a thoracic oncologist on June 4th. The thoracic surgeon seemed to think they would go after the tumor with radiation and the rest with immunotherapy and chemo. In your experience, is there an alternative to radiation for the tumor? Has anyone had immunotherapy and chemo and then surgery for the tumor? Also, do you have access to the test results right away? Thank you. Best, Karen
  11. Yes, that’s my husband ❤️ Married 36 years ❤️
  12. Has anyone switched to a vegan or raw diet and found it helpful to reduce tumors? I have been a vegetarian for a number of years snd have recently gone vegan with mostly, raw fruits and vegetables and freshly made juices. Also any positive experience with other alternative therapies, oils, reiki, acupuncture etc. Thank you. Best, Karen
  13. Hi everyone, I had a chest X-ray on May 2nd and they found a mass on the upper lobe of my right lung. The CT showed that some of my lymph nodes were also compromised. They are also doing an MRI of my liver to check out a cyst. Initial stage is III a. I’ve had several CT scans, a brain MRI, a pet scan and a biopsy. I am meeting with the doctor next Thursday for results and a plan. I have been staying pretty positive, but it really hit me today for some reason. I’m afraid that they won’t be able to treat it. After I found this site I felt more hopeful. So, I wanted to say thank you to all who post here. I hope to be an inspiration to others one day. God bless and be well. Karen
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