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    Lung cancer patient/survivor
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  1. Thank you Lou! I was told by the thoracic surgeon and the Pulmonologist that a biopsy would be "hit or miss" being that this "cancer" was not a solid mass but more of a hole, and the cancer was on the margins so hitting the right spot on the margins would be hit or miss and possibly be an unnecessary procedure. None of it sat right with me. Removing a lobe based on one diagnostic test (CT Scan) seemed unusual. Again, I have a brain injury and almost went along with it. My Primary Care Dr was the one who suggested it may be an infection. She called me this evening after viewing my PET scan and we are starting a month of antibiotics in case it is an infection. Not sure it can hurt at this stage. LOL, I agree that the emotional issues are a lot tougher to deal with right now for sure! So happy I found you all, I am climbing out of my sadness and helplessness. Thank you!
  2. Thank you Tom. Being in this alone with a brain injury is really hard. I feel rushed and have put a halt to everything right now to give me time to think and explore 2nd opinions (where to start with that?) I agree, the tumor , or whatever it is, is large but I do believe it s from an infection and most likely exacerbated by having severe Covid in March 2020 as well as multiple bouts of bronchitis/pneumonia over the years from smoking.You have given me hope and encouragement and I cannot thank you enough. 2 weeks from lung cancer via CT scan diagnosis to surgery is very quick. FYI, my first appt was with a Pulmonologist who then sent me to her best friend (thoracic surgeon). Oncology doc is my next step!
  3. Hi everybody, I am reaching out here as I have no-where else to turn. I am alone in my journey although I have been married to same person for 33 plus years. I had an accident in April (took a tumble down hardwood stairs) and had a number of nasty injuries. The hospital performed a number of scans, one of which found a mass on my left lung, lower lobe (3.7 CMS). I was sent to a pulmonologist who immediately scheduled a breathing test (PFT) and then sent me the following week to her best friend who is a Surgeon. This Surgeon has suggested removing the lower lobe of my left lung and then performing a biopsy to confirm cancer... I was also diagnosed with beginning stage emphysema. This surgery will take away 20% of my breathing capacity. The accident in April caused me to have a surgery for plates and screws in my left wrist as well as a TBI and I now have Post Concussion Syndrome so my thoughts right now are a little scrambled. Apparently this growth was first seen via X-Ray or CT in 2017 (I was never informed) but was much smaller so in 4 years it has grown. It was described as a "hole" in my lung with potential cancer cells around the margins of this hole so a biopsy would likely be inconclusive. Surgeon wanted to do surgery in 2 weeks after I had a clean blood test from smoking (god only knows I am trying but I am so stressed and alone I cannot find the willpower to stay quit and HATE myself ) I had a PET scan at my request yesterday and here are partial results. Everything else from what I can interpret looks clear. Surgeons office LIED to me about results not being available for 4 days- I got these in my portal in 2 hours. Gist of results : Impression 1. 3.2 x 1.7 cm multicystic lesion with mural nodularity demonstrates low-grade FDG uptake. 2. No scintigraphic evidence for FDG-avid metastatic disease. CHEST: Multicystic lesion in the right lower lobe measures 3.2 x 1.7 cm on series 4, image 97. There is mild mural nodularity, with uptake along its inferior margin having an SUV max of 1.0. Along its superior and medial aspect, there is a small focus of uptake having an SUV max of 1.8. My primary care Doctor said an infection could also cause this'd because of my smoking Ihave had more than my share of Bronchitis, pneumonia's etc... I need help! My husband has told me he "does not care as I have to many health issues for him to deal with" Basically told me I was on my own which would be ok if I did not have "Post Concussion syndrome". I don't want to worry my adult children but am more than a little stressed and just unsure what next step should be. Thanks in advance!
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