[Extensive Stage SCLC - Any Hope?]

Thank you once again for that phenomenal response and I truly hope I am not overstaying my welcome with further questions. However I do have some if you could help. We just received word today from the oncologist that my Father is “stage 4” and they’ve provided an estimate time frame of 12-24 months. 
 

I have read many things and seen many doctors speak about this and they say that it is almost irresponsible to provide any timeframe and that there aren’t necessarily stages like other forms of cancer. They typically are limited state and extensive stage as you’ve mentioned. 
 

Guessing and formalities aside, does the provided timeframe seem accurate? Based on your anecdotal experience, are we potentially looking at a longer life span? In regards to the drugs that you mentioned that are typically used, would you consider those as an inferior treatment? The treatment they have prescribed today is to start Chemo on Monday potentially with radiation, stsrting Cesplatin and then immunotherapy. Is there a more effective treatment even with unconfirmed results that we can try? 
 

thank you very much. 

[Extensive Stage SCLC - Any Hope?]

On 4/29/2023 at 3:13 PM, Pstar said:

Hi ANC… I agree with what Tom said. I was diagnosed initially with limited stage Sclc which was treated with chemo and radiation. It then metastasized to my brain which was treated with gamma knife radiosurgery which then classified me as extended stage. I was just treated with SBRT to my right adrenal gland for metastasis there. I am being treated at Roswell Park Cancer Institute as it is close to me( about 50 mins away). With you being in Syracuse, you could go NYC way or Roswell, or you could go out of state if you feel a different hospital would be better. I wish your father and you the best as you navigate your options.

Pam

Hey guys, thank you very much for the response. With the new treatments, is prognosis better? The internet only seems to have outdated data and if we pay money into a treatment are we likely to end up with better results vs what Medicare will pay for? 

[Extensive Stage SCLC - Any Hope?]

My Father was just diagnosed with extensive stage SCLC and has it in his bones. Are there any trials or anything that we can do? At this stage is it just a matter of time? Money isn’t an object, if there was something somewhere that could help us, please let me know.