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Littlegirl

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Posts posted by Littlegirl

  1. Congrats!!! Please do not let those guilty feelings enter your brain! There should only be room for appreciation of being a buddy of NED and you should feel PROUD that the newbies here have someone to look up to and someone to give them hope.

    Karen

  2. I was going to post this article also, as we have had a BAD experience with this type of machine. My parents were sold one of these machines while trying to get a mold problem cleaned up in their basement. Mom already has emphysema but while this machine was plugged in her breathing became VERY bad. This all just happened to be going on at the same time mom was visiting many doctors and getting her diagnosis of lung cancer. Mom felt it was the machine affecting her breathing so she unplugged it. The next day we had an appt with the pulmonologist and her breathing was only at 29% capacity. While discussing her health history we mentioned the mold and the air purifier. The doctor said those machines should come with a warning as they are VERY dangerous to people with breathing problems as they emit ozone. My mom went back to the doctor the following week and her breathing was up to 45% capacity.

    We believe this machine could have killed our mother. I also believe that if that had happened we would have thought it was the lung cancer, not this machine. I do believe that some air purifiers can help, you just need to be sure it is not one that emits ozone!

    Karen

  3. I've been lurking for a few months now and have decided it is finally time to come out of the dark and introduce myself. My 78 year old mother was diagnosed with NSCLC, Squamous cell this past February after going to the doctor for a routine check-up to clear her for cataract surgery. The day she was told that she had cancer she attended a funeral for my dad's cousin that died from lung cancer. We were also told that it appeared to have spread to a lymph node and plearal lining. But after the PET scan and Bronchoscope they confirmed that it was Squamous cell (slow growing - yea!) and that it was contained in the lung and not spread to the lining or lymph nodes. We felt that was reason to celebrate. "Mom has a tumor the size of a grapefruit but it is slow growing and not spread so we are thankful!"

    Mom has just completed 35 rounds of radiation and 7 doses of chemo. She was scheduled for 2 more days of radiation this week, but she has had problems eating due to swallowing and the knot in her stomach so the doctor said he is comfortable with today being her last radiation. (She lost 3 pounds this week.) Mom has a weak stomach and normally does not tolerate meds very well so I am VERY pleased with how well she has done with her treatments. She has been extremely tired and has had problems eating but has continued to eat despite the problems. She was a bit sick last week so they gave her a couple days break to help get her through. Also has burns from the radiation but she is a trooper and does not complain. Her doctor wanted her to have 4 more full dose chemo sessions but I think mom is tired of not feeling good and wants to be able to get out and enjoy what time she has left so I don't think she will complete the rest of the chemo treatments.

    We've also been dealing with health issues for my 80 year old father. Actually, we have been taking care of him and his issues more than mom which is ironic as she is the one who is REALLY sick. Luckily I am from a large family so we have been able to share the responsibilities, but sometimes it still seems overwhelming. My heart goes out to all of you who have to battle this on your own.

    I have learned a LOT from this site and am thankful for all of you who have shared your stories.

    Karen

  4. A second opinion will make you feel more comfortabale about what is going on and what is being said to you. Just an FYI...my mom's radiation oncologist told us this morning that the tumor could/should continue shrinking up to 6-8 weeks after completing her chemo/radiation treatments.

    Karen

  5. A second opinion will make you feel more comfortabale about what is going on and what is being said to you. Just an FYI...my mom's radiation oncologist told us this morning that the tumor could/should continue shrinking up to 6-8 weeks after completing her chemo/radiation treatments.

    Karen

  6. Hi Rosemary,

    My mom is only 78 but has severe emphysema and normally does not tolerate meds very well as she has a weak stomach. For the past 6 weeks she has been having radiation daily and low dose chemo once per week. She has handled the treatments much better than we all anticipated. She has been very fatigued, but she recognizes her limits and naps often. She has problems swallowing and the 'knot' in her chest/throat but I understand that is from the radiation, not the chemo. She did vomit a few times last week, but I think alot of that has to do with the Boost she is trying to force herself to drink. Her doctor is very adamant that he does not want her to lose any weight and so he gave her a few days off last week to let her feel a bit better but she is back on treatments again this week. (And she has NOT lost any weight.) Meds have come along way and the docs will give her other meds to fight the side effects. Please let her know that many people have very few side effects as positive thinking will go a long way in making her feel better. (I know when my kids are sick I feel ill wondering if I am getting sick!)

    And my mom was also given meds to help her relax for the scans that made her sleep alot.

    Good Luck! Karen

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