JenkazMrs

Hi All, Thanks for your kind words and encouragement, it's nice to share good news and give others hope at the same time! Also good to read that others are also doing well long may it continue! Love to all, Deanne xxx

Hi All, We are celebrating today the fact that my husband has now been on Tarceva for a year and had great success. Our local paper did a follow up I have included the link below. A CANCER sufferer is celebrating a milestone in his treatment today. It's been a year since grandad Jimmy Jenkyns, 55, of Bainbridge Avenue, Simonside, South Shields, started taking lung cancer drug Tarceva. The victim of a postcode lottery, he was forced to pay for the drug privately at first, at a cost of £1,700 a month, because health chiefs in South Tyneside refused to fund it. But after a high-profile campaign, led by his wife Deanne, 40, South Tyneside Primary Care Trust agreed to pay for the drug in September. To view full article click link http://www.shieldsgazette.com/news/Canc ... 3941642.jp Deanne x http://www.lc-action4life.co.uk

Thanks so much, Randy...you made me laugh thnks for your support as always. Jamie, Thanks your a star! Deanne xxx http://lc-action4life.co.uk

Hi Randy, Thanks so much, if I could get some patient statments who have benefited from Tarceva. what difference it has made to their lives how long they have been on it. Date of diagnosis ect, that would be great. Deanne xxx http://www.lc-action4life.co.uk

Action Needed! Patients and carers, NICE has again knocked back guidance for the drug Tarceva. In a press release on Friday they said that the drug was not cost effective. Basically meaning that patients will still have a fight on their hands to get access to the drug. This is one of many approved drugs being denied to cancer patients. Patients who live in the North East and Cumbria will still have access to the drug. Other PCT’s throughout the country are giving it to patients creating a post code lottery! This has been dragging out for some time now. Final guidance will be issued in April. Patients need this drug now! NICE are supposed to fast Track cancer drugs but instead they are sentencing patients to death! ON June the 6th last year we staged a rally outside NICE head quarters in London while I attended the meeting inside. Which created media attention. I would like to plan a protest so need some bodies to attend . If I can drum up some support I will again involve the press and TV adding weight to the campaign. Regards, Deanne Jenkyns

Hi, so sorry that Tarceva did not work for Michael. Hope that the Alimta gets good results. Everything crossed! Deanne xxx

thanks all for your Kind words and your support. You are all so amazing! Deanne xxx

Thanks so much everyone! We plan on celebrating big style this Christmas and we are rounding it off with a 16 Day Cruise round the Caribbean on the 5th Jan! Us along with 8 other friends so some party that will be!!! Love to everyone! Deanne xxx

Hiya All, Wow! what a week it has been waiting for these results! We sat waiting for the oncologist, like 2 fightened rabbits! He then came in and delivered his verdict. He said there is no change at all, Stable disease. He said he could not be happier as it has been 5 months since jimmy's last scan, which is a long time for a LC patient. To say we are thrilled is the biggest understatment OMG!!! I have the biggest smile on my face. could not have asked for a better christmas present. Thanks for all your support! ((((((((hugs)))))))))))) to all! Deanne xxx http://www.lc-action4life.co.uk

Hi All, some pictures from Saturday evenings charity Ball. It was a perfect evening. http://www.lc-action4life.co.uk/eventspage.htm http://charity-ball.blogspot.com Deanne xxx

Hi, Just wanted to say a huge thank you to all you wonderful people for your support and encouragment. It means so much! Deanne x http://www.lc-action4life.co.uk

Hiya guys, Thanks so much for including this and your continued support it means more than you could know Deanne x http://lc-action4life.co.uk

Thanks Katie, I think it is still sinking in! Been such a long haul just seems so surreal! Deanne x

Sorry Muriel, keep forgeting to tick the little box to show signature He is doing great I am pleased to say Deanne x http://www.lc-action4life.co.uk

Hi all, Today we received the news through Jimmy's oncologist that the PCT have agreed to fund Tarceva. It all feels somewhat surreal at the moment. I have campaigned so hard for this and it has caused many sleepless nights and a tremendous strain not just on us bu our family. Night after night writing letters to MP's the PCT, TV, newspaper interviews has finally paid off. While we are delighted by this we are small fish in a big pond as there are so many others out there finding themselves in long drawn out battles. I hope that our news will give others a boost fighting for drugs, I know how much it weighs you down and how frustrating it is. I hope if your reading this post it will give you the strength to continue with your fight. Goodluck to everyone! Deanne http://www.lc-action4life.co.uk