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mary colleen

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Posts posted by mary colleen

    If you have a spare prayer for my son.. (not cancer related)

    in HOPE

    Posted

    Andrea, I'll join the chorus here: my daughter was actually hospitalized in infancy for tests due to being below the chart metrics. I was pretty traumatized, because I felt as though I was somehow not caring for her properly. There was no real reason identified, and today she is a very busy and healthy college junior, both taller and larger than me. Sounds like Jacob is probably doing well developmentally, and he sure looks great (and beautiful) in his photo. I know these things are hard, but try to keep the faith and know that so many of these issues turn out to be false alarms. Mary

    Diagnosed yesterday

    in INTRODUCE YOURSELF!

    Posted

    Corrine, just from a humanitarian standpoint, I hate to see you wait that long and would urge you to bug that GP to push it along. The waiting is too hard on you.

    Be tough - it's a hard road, but it CAN be walked and it is not - repeat not - a "death sentence". Mary Colleen

    Back on treatment

    in MEMBER UPDATES

    Posted

    Tracy, I have thought of you as well. This drug sure looks promising in research. I understand the feeling of those kids starting to be busy on their own....all of the sudden the house just starts to be very quiet once in a while. Don;t worry - my experience is that they eventually come back, and bring friends!

    Take very good care. MC

    Any news on Aaron?

    in GENERAL

    Posted

    Aaron, thank you for posting. We've all wanted to hear from you. How very hard this has to be. Remember that most of what you are describing is treatment related, and that you CAN recover from those things. Know that we are all here thinking of you daily and sending prayers all over the place for you. Keep up your courage - you've got it. Mary Colleen

    One Step at a Time

    in GRIEF

    Posted

    Teri,

    "I felt like I wasn't grieving properly, even though I didn't really know what that meant."

    You didn't know what that meant, yet are defining it as you go, documenting it, and leaving a trail for others that will be followed.

    You are awesome. You're brave and purposeful, even as you feel you are muddling through blindly.

    Love,

    MC

    Fatigue, anorexia

    in SCLC GROUP

    Posted

    My husband had WBR, basically the same thing as PCI, in June '07. The fatigue hit him very hard as well. He became repulsed by food, lost 15 pounds in 3 weeks, and stopped all activity due to fatigue. Long story short, he was suffering from the side effects of brain radiation. These side effects lasted for about 4 months after the end of WBR. He even had another big drop in performance after seeming to partially recover. Hope this helps. MC

    Temporary Blindness

    in NSCLC GROUP

    Posted

    Carrie,

    I would call her oncologist ASAP to be safe, even though it is a holiday.

    My husband permanently lost a good portion of his vision to a brain tumor, at least partly because I did not insist that he have some transient symptoms checked immediately.

    I know that the MRI was clean, but something did happen, and I would get it checked immediately.

    MC

    Recovery from left lung lobectomy

    in MEMBER UPDATES

    Posted

    Max,

    I like your approach to all of this. I think you and Inez have something productive and positive in motion.

    I can share that my husband (right bilobectomy)had intermittent periods of greater and less pain for about 4 weeks and (you got it!) ended up sleeping and kind of living in a recliner for 5-6 weeks. It seemed to help a lot.

    God Bless - you are going to do fine:)

    MC

    PCI , fatigue, confusion

    in CAREGIVER RESOURCE CENTER

    Posted

    My husband had WBR in June - essentially the same thing as PCI. 6 months post the last treatment, and he is much better, but still struggling in some ways. It is not instant coffee to recover from - I would suggest that you expect several more months of dips and improvements, based on our experience. Rest (as much as needed) is critical to letting the brain recover.

    Good luck.

    MC

    Is this really real?

    in GRIEF

    Posted

    Barb dear -

    You have had an incredibly short time to process from diagnosis until now - it has gone very fast for you.

    Of course you are teary and nauseous - you're reeling, and appropriately so. I wish you much comfort and peace. You did a great job with the hand you were dealt. God Bless. MC

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