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wiesia

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Posts posted by wiesia

    Navelbine

    in GENERAL

    Posted

    My father was also put on Navelbine (as a second line). I did quite a bit of reading on that and the research shows good results in second line. They vary, but many have around 50% of stable disease. In second line (and even often in the first line) Navelbine is combined with Gemzar. But in the elderly, it seems, that this combination was not stronger than the single agents.

    On this board many had good results with Navelbine.

    Lucy and Deb come to mind.

    Good luck with it !

    In a limbo

    in GENERAL

    Posted

    We had various tests done this week and it turns out that father's tumor and some enlarged mediastinal lymph nodes are pressing on his esophagus and probably also the trachea.

    The narrowest part of esophagus is 5mm. Father can only eat very mushed type of food. The oncologist left it to us whether to put a stent or not. He says that himself he would not do it because the mushy/liquid diet could be quite enough for now. Does anyone have an opinion here ?

    Another matter is that father's breathing is getting worse by the day recently (last week or so). It is probably the lymph nodes pressing on the trachea and maybe also the tumors in his lungs. Our oncologist seems to think that this is just the nature of father's cancer and is unwilling at the moment to offer him anything. It is driving me crazy. Being SOB does not help my father's fighting spirit at all ! I read here of people taking inhalers, O2 concentrators and also steroids. We can do the inhaler and concentrator ourselves but with the steroids I am a bit uncertain. Would they help my father ? If I knew they would we would be more agressive about them with our oncologist. I should mention that there is no effusion visible.

    At the moment we are at a limbo. We gave up on Gemzar because one of the tumors progressed. My father breathing is bad so the oncologist thought that he looked too weak for chemo last Friday. But then... he did not want to go straight to Tarceva either trying to keep it for the third line. My father just got Avastin. And we have a week to regroup.

    But as long as my father's breathing is bad he will be weak. I do not see how it can be otherwise. His blood work is very good. So our family feels that

    we should just try second-line chemo. If we insisted,

    our oncologist would probably agree. One thing though: can SOB mean that chemo can be dangerous to my father ? Is SOB (even severe) enough of a problem to discontinue chemo ?

    Thanks.

    radiation second opinion

    in GENERAL

    Posted

    Does anyone know of a cancer treatment center in the US that would give us a second opinion on a possibility of radiation to the tumor. This would have to be based on a CD from a CT scan and some general information only since my father can not travel at the moment.

    Thank you

    Help Needed for a Friend

    in NSCLC GROUP

    Posted

    There are people here that were treated with gamma knife for more than 7 mets (8 at least, I remember). Maybe she needs to call around gamma knife specialists.

    Also, I think after WBR chemo is supposed to pass easier to the brain. Did her doctor talked about chemotherapy for the brain mets ?

    w.

    don m update

    in MEMBER UPDATES

    Posted

    Don,

    I do hope that it is nothing !

    With interest I have read several of your posts on targeted therapies of various sorts. What is the main difference between IMRT and IGRT ? Is there less damage to surrounding tissue with IGRT ?

    Thanks,

    w.

    throat mets

    in NSCLC GROUP

    Posted

    Have any of you had a met to the lower throat area ? What was done about it ?

    We have just found out that father has a nodule in the lower throat and narrowing esophagus at some point below that. Both must be responsible for his trouble swallowing. Endoscopy is scheduled for tomorrow to look at that nodule.

    Thanks,

    w.

    Stimuvax or BLP25

    in GENERAL

    Posted

    Gosh,

    I was so hoping that my father could get into that trial. They just started it and in Poland as well. Alas... it is randomized, double-blinded for stage IIIB (that is where they had best results in phase two). Is there any way to get that vaccine out of the trial ???

    w.

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