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karenlaureti

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Posts posted by karenlaureti

  1. I was feeling just like this the other day, and you are not a BAD mom. You are a great mom, and you are normal and have feelings and no mom is perfect. We all have reactions to certain things at different times during our lives and sometimes life is just more difficult.

    I am trying to do the one day at a time thing and to live for the moment, instead of getting ahead of myself now. Try that. And, go out with some friends to have girl talk one night. I am sure your husband would be supportive for you to get some down time! Prayers go out to you for your family and Dad!

  2. Just so scared out out of sorts lately. My Dad now has extensive sclc. two spots on lung, two lymp nodes, spot on spine. I had gotten him into John Hopkins and he was there a month but unfortunately was unable to do the clinical trial and is now taking CPT11 every 3 weeks. My Dad's oncologist is stating that he has at the most 6 months, no more than a year (I have hope most of the time and don't go by this). It is so wierd though, I feel like thisis all happening around me but yet, I don't want to believe it. I put it in the back of my mind and never ever would cry in front of my parents. It is so hard too because they are 15 hours away from me. Sometimes it is so hard to just work during the day and think straight. I guess I just feel so helpless. He has another scan done at the end of

    August. I am praying that the chemo is doing its job. I hate this disease!

  3. Oh Terri,

    I have been out for about a month dealing with my Dad. I am so sorry! He was truly an inspiration to all of us, and his life lives on within you!

    I thought he was an absoultely incredible person.

    Many prayers and hugs your way!

  4. Hi all,

    I haven't posted in such a while, and wanted to update everyone. I am so sorry, there is so much you miss in two months with everyone and I give all many prayers!

    So, 2 months ago my Dad's cancer came back, found a spot on liver, spot on spin, spot on hip, and also two lymph glands in his bronchial tubes. The worst part is that the sodium level really screwed him up. He has gone from 220 lbs down to now 170 lbs. One of the struggles was getting him out of Hilton Head Hospital and into better care. So, I perservered and with the help of someone I know on the board for John Hopkins, I got him to Baltimore! Now for the last month he has been in Baltimore. Was going to start the clinical trial, but then he became dehydrated with high white blood cell counts, so he is not taking Camptosar. Has anyone else taken that? Any input.

    I am praying that when he goes into Hopkins today for evaluations, he will show good blood stats and can go home. The moving around has been so stressful on him and "there is no place like home" especially if we know the kind of treatment hopkins is giving him, he can get back home.

    Please say some prayers for me. What a roller coaster.

    Dad diagnosed with limited SCLC in November 2006. In remission in April, cancer came back beginnning of June.

  5. Hi all,

    O.K., so My Dad is in the hospital since fRiday. Low sodium started again (this is how we found out in Dec. about his SCLC). So of course we are scared, he gets admitted, sodium is going up very low. Took off IV today and now using a special pill for this. They have found a .5 centimeter spot on Liver and two glands near heart. So, we are going to begin new treatment plan shortly but first, need him to build up his sodium level again. So, he is in Hilton Head Hospital for this treatment of the sodium, and his radiologist and oncologist met with him last night to explain where the cancer is. I am scared, but really feel he can fight this too! I have read so incredible stories here and although I am so sad that he has to start again, I know there is hope!

    Anyway, my sister is freaking saying we need to move him out of this hospital, and my husband and I are thinking that we really should keep him where he is until the sodium level is up and he is not as weak, then start to treat the cancers. I know it is not a cancer hospital, but an endocronologist is working with the sodium and in touch with the radiologist and oncologist. In other words they are working together. This is hard as I am not out there. Any words of wisdom?

  6. Well, he is still in the hospital, sodium level still low, going up very slow, it is sad because it causes confusion and such fatigue. It just stinks for him. They took him off sodium IV drip and are now giving him that pill, I forget the name, but it is common to take, so we are praying this does the trick. I am trying to stay positive as I know that there are many different drugs/things he can do. Thank you all for your kind words. Oh, how hard it is to be away from him, but we are leaving Sat. for a week to be with him. Please keep praying for him. I hate for him to even think there is nothing that can be done for him. Thanks so much!

  7. Hi

    I haven't been on a about a week and 1/2. My Dad is in the hospital with Low Sodium. Just found out cancer is back. In two lymph nodes in the lungs and a .5 centimeter in his liver.

    He was just diagnosed as Limited in December of 2006.

    He doesn't even know yet, my mom and him are waiting for the Dr. to come in but the Dr. told my sister this morning.

    I don't know until the Dr. talks to him what the next step is. Basically, I feel like my heart has been ripped out of my chest. I just can't believe it. He had the most agressive treatment. I am so upset right now.

  8. My Dad has SCLC and was diagnosed in December of 2006. I am not aware of the Brain Mets, but I know people here who have had this and you can speak with them. Look around at the messages, there is so much support. I know how hard this is sometimes and it can be like a roller coaster, but you couldn't find a better place for support!

  9. O.K., so I just spoke with my Mom and Dad as my Dad had a hernia surgery just recently done. On top of everything else. And while the surgery was being performed they found two polyps in his throat. Not usre exactly where and now he is going for testing on that next Tuesday.

    Anyone here of this? Any insight would be greatly appreciated. Boy, this can be a roller coaster sometimes, just when I think things are going so much better for him. Thanks everyone!

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