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azgirl

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Posts posted by azgirl

    Chemo question

    in GENERAL

    Posted

    hello everyone,

    I am wondering if anyone can tell me approximately how long the effects of chemo linger after treatment is finished? My mom had her last treatment on Dec. 17th and still has tingling in her hands and feet. (I know there's a special word for this, but I can't think of it right now! :D ) Of course it is different for everyone, but she's just wondering about how long she can expect to have some of the side effects.

    Any feedback would be appreciated. Thanks!

    -Maryea

    Stage iv NSCLC quesions

    in NSCLC GROUP

    Posted

    One more thing I forgot to mention: Don't be afraid to get a 2nd opinion or find another doctor if you are not 100% certain that the current doctor is "in it to win it", so to speak. My mom's first doctor spoke in terms of "quality of life", which made us head for the door! We weren't looking for a short term fix, but a CURE. Your mom CAN be cured if she's getting surgery. If your doctor isn't fighting for that, I say find someone who will.

    Stage iv NSCLC quesions

    in NSCLC GROUP

    Posted

    I believe my mom falls into the same category as your mom. She was diagnosed last June and is currently cancer-free!! Everything looked so dire in the beginning (even doctors were telling us she didn't have much hope :cry: ) but she NEVER believed that she was going to die anytime soon and she still has that attitude today. Of course we can't predict what the future holds and if the cancer is ever going to be back, but we are so grateful for the results she's had so far. Have faith that your mom can have similar results! :lol:

    New Introduction

    in INTRODUCE YOURSELF!

    Posted

    Welcome; I'm sorry that you have to be here. You will certainly get lots of info. and support here. Hang in there--the beginning can be shocking and scary, but eventually you will regain your composure and be ready to fight!!

    Maryea

    Looking for some hope...

    in MEMBER UPDATES

    Posted

    Woooooooooooo Hoooooooooooooo!!!!!

    Mom got her PET scan results today and that spot was NOTHING! Her scan showed NO CANCER! I cannot even describe the tremendous flood of relief and gratitude I felt when I heard the news. It was incredible. Finally, something good. Something WONDERFUL.

    Mom is flying out to AZ tomorrow! Yay!

    I just wanted to share my happy news. :lol:

    Maryea

    Brain mets

    in GENERAL

    Posted

    My mom had a single brain met resected last June. She really had no choice because it was growing and causing her brain to swell, so it had to be removed. We felt extremely lucky that it was isolated and able to be taken out. Like someone else mentioned, the recovery was a piece of cake (especially compared to the recovery of her lung surgery!). In August she had WBR. Her side effects were fatigue and loss of appetite, but it didn't last that long. She may have some short-term memory issues now, but nothing major. The doctors were very persistent that she should have the WBR to reduce the chances of a recurrence. The first CT scan she had after chemo (just a few weeks ago) showed a spot on her skull. We are now awaiting results from a PET scan to see what that spot was. We are praying hard that it was just some scar tissue.

    Good luck with your surgery; I hope this info. helps you some.

    Maryea

    Like a deer in the headlights

    in INTRODUCE YOURSELF!

    Posted

    The first doctor Mom had after her diagnosis told us that they were only performing her brain surgery for her "quality of life", that her lung cancer was incurable, and that the tumor in her lung was inoperable. We refused to accept this and went for a 2nd opinion. The doctors at the Mayo Clinic informed us that the tumor in her lung was operable and they were going to "go for a cure". Those are the doctors you want, the ones who are willing to at least try to beat the statistics. I feel the first doctor simply went by the textbooks and wasn't going to be aggressive in the fight for my mom's life.

    My mom had whole brain radiation. I think you should absolutely go for it. Mom went once a day for 10 days. She was very tired and had no appetite, but that was the extent of her side effects.

    Stay positive and please don't let one doctor's words kill your hope!

    God Bless,

    Maryea

    New chemo

    in MEMBER UPDATES

    Posted

    Hi Ernie,

    When my mom was first diagnosed in June, your story was one of the first I read and it gave me so much comfort and hope. Thank you for your positive, uplifting attitude. You are such an inspiriation to me.

    I'm sorry, but I don't know of anyone who has had your drug combo. I wish you the best.

    God Bless,

    Maryea

    Looking for some hope...

    in MEMBER UPDATES

    Posted

    Although I have used all of my sick and personal days for the rest of this school year (I am a teacher), if her PET scan indicates that this "spot" is actually more cancer, I will definitely take some more time off to go see her.

    However, I am still clinging to the hope that it is some kind of inflamation or damage from her surgery or WBR and she'll be coming out here next week! At this point, I just can't let another alternative enter my mind, although I know I should prepare myself for the worst. I just can't.

    Thanks for all the prayers and support. It helps to have a place to come to where I know everyone knows exactly what I am feeling.

    Looking for some hope...

    in MEMBER UPDATES

    Posted

    My mom got the results from her scans today and it wasn't the news we were hoping for. The lungs looked clean and the so did the brain, but there was a spot on her skull. The doctor ordered a PET scan (I guess to get a better look and to see if there is anything on any other bones) for Monday and the earliest we'll get those results is Wednesday.

    My brother is telling me that there is a possibility that it isn't actually cancer, that it could be scar tissue from the WBR she had. Has this ever happened to anyone? Or are we just getting our hopes up for nothing?

    I hate that I am 2,000 miles away from my mom right now! (I live in AZ and she lives in Michigan, where I grew up) I am going crazy; I just want to hug her!! She had a plane ticket to come out here on Wednesday, but she had to postpone her trip. :(

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