[buttock pain?]

I promised to post here if i found out something new.

Well new team is not completly formed enough has

been there to put me back on Tarciva..

the back pain started out with numbness right at tail

bone. then when i sat, stood, walked or layed on my left side everything felt like muscle pain that kust

would not go away...

it seem's tail bone would not relieve with pain killer, but remainder would. the remainder would go away with killers.

turns out that pain was from infection pain caused

by diareah vs impacted bowel war. oh yeah bladder control problems mixed in didn't help.

Back for bone scan on 23rd. Know for a fact that old

team and new team actually spoke to each other. makes

a guy feel good.

God Bless VA so far.

good luck on ya all......

[buttock pain?]

Oh yes. I have been having buttock pain

for 3 months now. That is well into my chemo

stuff. It also seems to snub its nose at pain

killers as well. If it is a side effect I wish

I knew what or why its doing it. This topic will

be number one when I meet with new Onco team.

Good luck.

[Do I need to be Freaking out?]

Don't worry till you are told to by doctor. Went thru

the same scare a few months back. Turned out to be

of no serious issue. Hope the same for you guys.

[Getting back on path....]

Wow I never want to go through that again.

When I last saw my Doc on Oct 15th I had been on

Tarceva for 15 days. Breaking out with acne like

symptoms was a understatement. My face, across my

nose etc had just became a collection of open sores,

swelling, and downright gross sight. Doc suggested going to 5 days a week on and two off.

Well on to

second chapter of this nervous breakdown. We had been planning a move to the Dallas Fort Worth area due to the fact the wife can no longer drive and

when I went down due to side effects of second go

around with chemo it became evident that rural

living wasn't going to get it. Plan A get a place

in new area and send wife down with daughter who lives in area. Then I would hold out in Mo until

we got the place sold. Well plan A didn't work. I

just mentioned we would be selling to the postman

and next day had offer on the place. Now all hands

on deck, find a place, box up the old place, get a

mover and get gone. OK not to belabor the point but

this also meant doing all the things required to become

a texan. That meant meeting people in public looking

like something Halloween made famous. It also meant

cutting ties with doc and onco team in KC VA. So I

went off Tarceva around the Oct 15th area. After two

weeks face began to respond.

Well now I think we are mostly settled and its time to find a new onco team. We are really about 45

miles east of Dallas so I quess checking with VA

there is next task.

Right through all of this I have been having pain

in the buttocks area so bad can't sleep. I suppose

inactivity had a lot to do with this. I wasn't a

lot of help during move due to SOB and weakness.

It seems standing and laying down are best relief

but I know that just makes the problem grow. Anyway

that is the first thing I will address with new team.

That and getting back on Tarceva. Last Cat scan showed little growth on Oct 15.

I realize this maybe just a rant on my part but

wanted to get back in the mix now that we have

INTERNET access again.

Check with you guys later.

[365 days later........]

Congrats Rachel. Really rooting for you and

good results on the Tarceva. Please keep us

posted.

Mike Z.

[Hi Finally made it.]

Well I thank you all very much.

Feel at home already.

Will see you at the General forum in awhile.

[Hi Finally made it.]

Had the darnedest time getting registered.

Been lurking awhile and found lots of help

but felt like a peeping tom or something.

nice to join in.

Non small cell lung cancer stage iv. dx oct 2006.

As soon as I figure how to put up the history I'll

get back with some questions.

dealing with numb fingers so please excuse typos.

till later.