ChristinaMarie

I am really not sure which forum to post this in, so please feel free to tell me if this is not the right spot. We met with oncologist # 1 on Tuesday at an independent cancer center. While she was very nice, My husband really wants to go to the other cancer center here that is part of a hospital and university. The oncologist over there is very well renound and has written books on Lung cancer and well, I guess we are already attached to him. The kicker is that he is on vacation until Sept 2nd and we cannot get an appointment until Sept 9th (dont these guys know that cancer takes no breaks?!?! ) Anyway, we have a couple options. His bone biopsy is tomorrow so we would not even start treatment until next week if we went to onc #1. What would you do? Go with onc#1? Start with onc#1 then transfer to #2(they dont really prefer that incase onc #2 has a different plan of attack)? Or just hold off until September 9th? There is a "rumor" going around that onc#2 will return from vaca for a day on the 26th to see urgent patients (which my husband would be considered as) but she is not sure and told me to call her next week and see if she has more info about that. My husband is OK with waiting until Sept. 9th, however, I am not sure I am OK with it. I am scared its going to grow even more and pop up in a new place, although I am not really sure how the monster works. What would you do????

Thanks so much for the warm welcome.

Hi. I am Christie. I am 27 and have been married for over 2 years to the love of my life, Mike. He is 39 and has recently been diagnosed with AdenoC with mets to the bones in his ribs and pelvis last Tuesday. He is a non-smoker. I will work up a timeline siggy when I get a chance. We had our first meeting with an oncologist today. Even though she belives they are bone mets (they lit up in the PET) she wants to biopsy at least one to make sure they are infact cancer. If they aren't then its a different ballgame maybe. The chemo regimen she wants him on is Cysplatin and Gymsynobene (forgive my spelling). I have heard on this website the about the "gold standard" of taxol/carbo/avastin so I am a little concerned I have not heard of these drugs before. I am also torn between starting chemo right away or waiting until after the biopsy confirms the mets. Because if its staged down, then surgery is possible according to her. However, I am not holding my breath that the hot spots are benign. Anyway, I am so glad to have found this website. I go here and read the survivors section when I am feeling really down which has been pretty much non-stop for the last week. I feel awful about it, I want to be strong for my husband, but instead he is having to be strong for me. Its all surreal. He has no symptoms and the main "tumor" is less than an inch in diameter. I am also mad about the lack of priority given to my husband between the initial appointment and the diagnosing bronchoscopy due to his age and "risk factors". We were told "I do not believe its cancer" so many times from April to his Bronc. 2 weeks ago and in that time period the CTs show the tumor grew. I know its pointless to be mad, but darn it I wanna be mad at someone! We are going to 2 more cancer centers to get a 2nd and 3 opinion, then we will make a decision. In the meantime, we are going with the MRI and biopsy. The oncologist today said that holding off on chemo between now and then will not impact survival much (ugh) but I do want to get started ASAP.