Notts

Thanks for the response, but the side effects that come along with this particular Chemo is shortness of breath - so guess I shoud expect it. Just hope it doesn't last much longer. It's mainly upon exeration. Any other into??? Ceedee

Back again folks and really need some help. Side effects didn't kick in until well into the 2nd week, so thought I was okay and drove down to the beach (6 hours) by myself. Think I made a mistake. Was planning on finishing up the rest of the Chemo down here with a new Doc. My mouth and throat are unbearable and the meds they have given me really don't do the trick. Also, shortness of breath is pretty bad, which really limits what I am able to do (especially here by myself). Does anyone out there have any suggestions or help??? Really in dire need. Due to get my 2nd Chemo next Tues. and not sure what to do. HELP HELP HELP HELP HELP Thanks for listening and will be awaiting any and all responses. Ceedee

Thanks again for all your help !!! Ceedee (Carol)

Thanks Patti, That was encouraging. Had heard that about the rash and Traceva. That will be my 2nd choice over the Alimta. Guess I hope I get the rash if I use Tarceva. Any other info you can think of will be great. Also, heard about the fatigue. Want to drive to the beach ( 6 hrs). Do you think I could make it??? Ceedee

Hello All, Back again with some new issues. After completing my Chemo and then being hospitalized for 2 weeks, receiving blood daily for low white count, finally was discharged and the counts finally came back up. Had about 5 or 6 really GOOD weeks (better than I had felt in years). Now new tests showed significant enlargement or the right hilar mass and development of peripheral nodule in the upper lung. Also, slight volume loss in the right lower lobe. My choices were 4. Hospice, Chemo of Alimta, Chemo of Tarceva (not highly receommened by Doc) or clinical trials. Have chosen the Alimta Chemo to start, although I did some research on the Tarceva and didn't get much bad feed back, do wonder about the Docs comments. Anyone who has any info on either or these, it would be greatly appreciated. Suppose to start 1st Alimta treatment on Tues. Need to know about side effects and how well it has worked for you. They are not giving me much time, so sort of grasping at straws. Looking forward to your responses and thanking you in advance, I am Sincerely, Ceedee (Carol)

Thanks again. Have a little Condo down there and have had it for about 5 years. Bought it 6 months before my Husband was told he had lung cancer. He lasted 2 1/2 years, so tried to get him down there as much as possible while he was ill. We both loved it so much. Seen all the sights, so for now it is just a wonderful get away place. Hope I don't have to come back too often for medical stuff. Just want to be able to enjoy the summer down there while I still feel so GOOD! Never know how long this good health is going to last. Where are you in NC? Once again, thanks for your help. Carol

Thanks so much for your reply. Went to the Dr. West site and guess now I am more confused than ever. Did go and have my first testing today to see whether or not the results will even let me qualify. Should know something more in a few days. Getting ready to leave for Outer Banks on Thurs. so hope nothing shows up to delay the trip. Hope to be able to stay down as long as possible (the whole summer would be super - if I still continue to feel so good). Thanks again for the help and if you learn anything else - I'm all ears. Carol

Trying to find out if anyone has any information on the new clinical trials for LUCANIX vaccine which could triple the survival time for some patients. I am beginning testing tomorrow to see if I qualify for the project. Any and all information will be greatly appreciated. It is being done at different locations across the acountry and they are only accepting 700. Will be awaiting any and all data that anyone might be able to provide. Thanking you in advance, I am Carol (Ceedee).

Thanks so much Jean & Ned for the feedback. At least I know that this is not so unusual and just another side effect. Wish there was more I could do to control it. Have used the vasoline but it really didn't change anything. Guess I will give the spray a shot (no pun intended). Thanks again. Ceedee

Back again with another problem that is bothering me. Finished my 3rd Chemo a week and a half ago and have now developed nasal bleeding. 5 to 6 times a day my nose will get stopped up and after blowing it, there is a bloody, clotty, muscus discharge (sorry to be so graphic), somestimes crusty too. Is this unusual and something I should be concerned about? Any solutions to help remedy the problem? Would appreciate any feedback Looking forward to your responses. Thanks. Ceedee

Thanks Ned. Will be looking forward to your references. Didn't have to have the Neulasta shot today afterall as my blood work came back fine. Told the Dr. about the unbearable pain last time and he decided to forego it this time. We'll see how that goes too. Will be looking forward to hearing from you and thanks again. Ceedee

Thanks Lynn: So sorry for your loss. Just lost my husband Tommy 14 months ago from lung cancer also. He did last 2 1/2 years, thank God. Thanks for your response. Ceedee

What is the usual protocol for Adenocarcinoma 111 b after receiving 6 Chemo treatments of Taxol/Carbo/Avastin. If the Chemo has worked, fluid is not building up and the growth has shrunk I was under the impression that there would be follow-up Chemo of Avastin every 3 weeks (more or less as a maintenance type thing). Know of several others with same diagnosis and prognosis who are getting this treatment. Asked the Dr. about what would happen after the 6th Chemo and he said no further treatment. That makes no sense to me. He said he would research it for me. Not very reassuring. Would appreciate any feedback. Thanking you in advance. Seems I have to be my own Advocate!!! Ceedee

Dear Susan, Thanks so much for the feedback. Have taken note of your advise for future reference. Had 4th Chemo today and because all the blood work looked so good, Dr. decided to forego the shot for this round. We will see what happens when I am due for the 5th session. If I need the shot next time, will keep your solution in mind. Thanks again for the help. Ceedee

Dear Mary Anne, Thanks for answering. Oddly enough, both previous shots were given on the 2nd day, due to bad weather and driving conditions on the first day following treatment. For me that obviously is not the answer. Had 4th Chemo today and since all my blood work looked really good, the Dr. decided to forego the shot this time. Here's hoping I don't have another 5 days like it did last time. God willing. Ceedee

Thanks Ned. Will pass all this on on Monday and see what "they" come up with. Ceedee

Thanks Christine, but doesn't Advil have aspirin??? Ceedee

Still trying to find some answers or feedback on the side effects of taking the Neulasta shot the day following Chemo treatment. First shot, although bone pain was bad, it was bearable. Second shot, bone pain was unbearable and I was laid up in bed for 5 days. I was told to take tylenol for pain (it did absolutely nothing). I'm looking to see if taking a lower dose of the shot, or getting something stronger for the pain will help. Since I belong to AA, I am not suppose to take narcotics. Because of the Chemo, I am not suppose to take anything with aspirin. Is there anything else out there. Have my 3rd Chemo on Mon. (1/26/09) with the shot the following day. Know I should continue with the shot in order to prevent infection, but cannot go through another session like the last one. Any help with be greatly appreciated. Will be awaiting your replies. Thanking you in advance, Ceedee

I am trying to get some feedback on treating side effects of the Neulasta shot. I take the shot the day after my Chemo treatment. The first shot, the bone pain was bad but bearable. The second shot after treatment was terrible. The bone pain was unbearable and laid me up in bed for 5 days. I was told to take Tylenol for the pain, but it did nothing. I cannot take narcotics for pain as I belong to AA. I need to know if there is some way to reduce the pain by either taking a lower dose of the Neulasta or at least some sort of pain medication I can take to ease the pain. I am due for my third round on 1/26/09 with the shot the following day. Any help that you can give me will be greatly appreciated. I know I should continue with the shot, if possible, in order to fight off infection, but I cannot go through another session like the last one. Will be awaiting any and all replies. Thanking you in advance, Ceedee