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jcawork

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Posts posted by jcawork

    jcawork funeral services and donations

    in GRIEF

    Posted

    Dear Friends:

    Please see the attached link for the details of Jenny's service. A celebration of life will follow immediately after the service at the Ackerman home, 4505 Daly Manor Place Olney, Maryland, 20832. All are welcome.

    http://obit.pumphreyfuneralhome.com/obi ... ng=Current

    Anyone caring to help with the after service gathering should contact Edna Simmon at ersimmon@yahoo.com or at 301-527-1574.

    The Ackerman/Quinn Familles

    My sister JCAWORK has passed away

    in GRIEF

    Posted

    I am sorry to tell everyone this terrible news but I feel like you guys understand, Please read my obit it says moe and I will update it later.

    My sister was the best in the world and now I am lost. How will I begin again. Well never begin again but how will I move on.

    She loved you all very much and will miss you even more

    jcawork is now at peace

    in GRIEF

    Posted

    It is very hard for me to write this as I still can not belive my sister has left this earth. I am crying now. I know she loved you guys so much that it made her heart break when she heard bad news and was so happy for the people that got the good news. She was not one of these people but I will say my sister fought harder then anyone could have. If you guys knew her before she got sick you would have either loved her or hated her. She said what was on her mind and she did so until the end.

    She died on Monday nite at 9.47pm with friends and family.

    My heart goes out to all of you but I must say that I am glad this pain is over for her and her family I have spent almost everyday with her for the last 18months and it was hard but she lived hard and died the same.

    I will update when I can with the service information. Please if I misses spelled anything forgive me. By the way my name is Debbie and I read the board everyday.

    Jenny sends her hugs and kisses to all of you.

    Has anyone heard from...

    in SCLC GROUP

    Posted

    I am here.

    Hanging in there.

    New pain, lower back. Not sure if its a met. Can hardly walk.

    I get rid of one pain syndrome and a new one starts-it sucks.

    Oral chemo destroyed my counts (Etopiside) have had transfussions and waiting to start again.

    Still very upset about a Addie/Libby and others so dont come on board as much.

    Thanks for the inquiry.

    Jen

    Does anyone know why Addie/Libby declined so suddenly?

    in GENERAL

    Posted

    I had just spoke w/ Addie 10 days ago. She seemed so much better. I know spine mets were tx during hospital stay. She had guests arrive the day I called so I didnt have time to ask if Gamma or WBR would be done for brain. Last she said just feet and hands were still bothering her.

    I didn't want to bother her family w/ details only an LC friend would want to know.

    Thanks,

    Jen

    VP-16/Etopiside pills and shoulder pain issue

    in GENERAL

    Posted

    Will be starting VP-16 pills this weekend. Please let me know if you used the pill form, how it was, did it help and side effects. 3 weeks on, 1 week off schedule.

    I am finishing pelvic radiation this week. Belly feels better. Shoulder now a problem. MRI of shoulder is inconclusive for mets. Bone scan Thursday. Getting tired of being in pain for one reason or another. Its been 7 months of this pain crap. First back met, then pelvic met now shoulder pain.

    Any shoulder feedback? Can't sleep. MRI showed rotator cuff tendonitis and 2 hot spots as possible mets.

    Thanks so much and sorry I have been so quiet. Pelvic radiation and holiday's really knocked the crap out of me.

    Thanks,

    Happy Holiday's,

    Love Jen

    Edema Feet? Have you had this?

    in GENERAL

    Posted

    My feet have been swelling a bit last month and a lot this month. Left more than the right. Top of feet and ankles. Have no idea why. Have you had this? Do you know why you had this?

    I am on Topo.

    I have a small Pericardiac effusion

    I have 2 1 cm liver mets

    I have a enlarged ovaries

    I have low red blood counts

    My Doc says he doesn't know why I have this.

    Any thoughts?

    Thanks,

    Jen

    jcawork scan update- It sucks

    in GENERAL

    Posted

    Hi,

    Well the Guru read my scans and says its in my liver and Topo is not working anymore. Everything else seems stable or smaller. Head MRI was fine, for now. I am having my right ovary radiated starting this week as its pressing on my ureter tube and causing problems. They think it may be the cause of my pelvic pain, but to me it doesnt explain 5 months of diareaha as bowels checked out okay.

    I am very depressed and of course thinking all the doom and gloom that I can. I always felt better that it had not hit my liver. Well, thats over. How long can you live w/ liver mets? Also dont know what my next chemo will be. Blood transfusions due to low reds. I feel beat to shi_ quite honestly and pissed off.

    Thanks for listening.

    Love,

    Jen

    Getting new scans done today need some good vibes.

    in SCLC GROUP

    Posted

    Hi,

    Well the Guru read my scans and says its in my liver and Topo is not working anymore. Everything else seems stable or smaller. Head MRI was fine, for now. I am having my right ovary radiated starting this week as its pressing on my ureter tube and causing problems. They think it may be the cause of my pelvic pain, but to me it doesnt explain 5 months of diareaha as bowels checked out okay.

    I am very depressed and of course thinking all the doom and gloom that I can. I always felt better that it had not hit my liver. Well, thats over. How long can you live w/ liver mets? Also dont know what my next chemo will be. Blood transfusions due to low reds. I feel beat to shi_ quite honestly and pissed off.

    Thanks for listening.

    Love,

    Jen

    icawork's TRANSFUSION!

    in SCLC GROUP

    Posted

    Thanks for thinking of me.

    I had one pint Fri will have another Mon. It went fine. I just hate that more can happen to you reaction wise from a blood transfusion than from chemo.

    My update that I will post Sun. is the Topo isnt working anymore, cancer now in my liver and I am staring radiation on my right ovary next week as it is pressing on my ureter and may be the cause of my mystery pelvic pain for the last 4 months.

    I am depressed.

    Thanks again for checking on me.

    Love,

    Jen

    Getting new scans done today need some good vibes.

    in SCLC GROUP

    Posted

    Sorry for the delay in posting results. Agian we have issues w/ the results and they will be re-read by the Guru next week w/ he is back from vacation.

    My head MRI was ok- we know that. Preliminary is we have had Liver progression w/ a new met but everything else stayed the same. I am of course not happy.

    I am still in pelvic pain and finally something showed up, my rt ovary is pressing on my colon and has blocked my rt ureter tube. Will probaby get radiation.

    Will post final info when I know. Thanks for the posts.

    Love,

    Jen

    Addie Update

    in GENERAL

    Posted

    Hey Adiie,

    Well, you have a dam better attitude than I do most days! Don't be so tough on yourself. I forgot to share w/ you before the mix of premends I get that increased my appetite and took away the urpy 100%.

    Decadrom 4 mg pill one hour before I go in

    Emend one pill 3 days in a row an hour before I go in

    Aloxi IV 25 mg IV before chemo

    Zofran at home only if I feel quessy, but this has not happened.

    This works like magic.

    Jen

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