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NikoleV

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Everything posted by NikoleV

  1. Help us understand what matters most to people with cancer! The Cancer Support Community (CSC) is looking for people to help develop a new tool to understand what matters most to people living with cancer. Please consider participating if you have ever received a cancer diagnosis, are at least 18 years old, and can read English. Participants who complete the survey will be offered the chance to enter a drawing for a $100 gift card. Five gift cards will be awarded for every 100 participants who complete the survey. If you complete the survey, you will have a chan
  2. Gilda's Club Metro Detroit https://www.gildasclubdetroit.org/ The Gilda’s Club Metro Detroit lung cancer support group meets on the 3rd Monday of each month from 6:30-8:00 p.m. at our Clubhouse. Our clubhouse is located at 3517 Rochester Rd, Royal Oak, MI 48073. All support groups are completely free and are open to those diagnosed with lung cancer as well as their family and friends. Please call us for more information at (248)577-0800.
  3. Hi Jane! LUNGevity has caregiver mentors that we can match you with for one on one support by email and/or phone. Would you like to be matched with someone through our LifeLine program? Please let me know if I can help find the support you are looking for. Best Regards, Nikole www.lungevity.org/lifeline
  4. Join our team! We are currently seeking survivors and caregivers to join our support team. If you have a few hours a week to provide support and friendship to others through email and/or phone, please sign up at the link below. www.lungevity.org/lifeline
  5. Hi all, We have a 77 year old female looking for someone to talk to who has been diagnosed with SCLC. She does not mind if the support mentor is male or female. She just needs some support and encouragement from someone with the same diagnosis. Please let me know if you are willing to offer her an ear to listen. Thank you in advance. Best Regards, Nikole Support and Advocacy Coordinator [email protected]
  6. Texas and surrounding area LC Survivors! You're invited to attend the 2015 Dallas HOPE Summit! Register to reserve your spot today, registration is FREE. http://events.lungevity.org/site/Calendar?id=100821&view=Detail Dallas HOPE Summit 2015 Embassy Suites DFW South 4650 West Airport Freeway Irving, TX 75062 Friday, February 6, 2015 - Saturday, February 7, 2015 The LUNGevity HOPE Summit is a conference for lung cancer survivors. A survivor is anyone who has ever been diagnosed with lunch cancer of any stage, or in or ou
  7. We have been asked to recruit for two advocacy opportunities (documentaries) for lung cancer survivors. Here is the criteria for each opportunity- if you are interested please email [email protected] for more information. #1 • White • Male • 50-70 yrs. • Squamous • Currently being treated, or post-progression (i.e. “after the cancer got worse”); Relevant experiences to discuss. #2 • Has recently progressed to 2nd line. • Is active (i.e. a PS 0-1) • Does not have any oncogenic drivers (i.e. EGFR or ALK mutations). • Is extremely motivated to live as long as possible. • Is
  8. 2014 LUNGevity HOPE Summit - Don't miss it, register today!! Friday, May 2, 2014 - Sunday, May 4, 2014 Keybridge Marriott Arlington, VA www.lungevity.org/dchope HOPE Summit is a conference for lung cancer survivors. All conference sessions, speakers, access to exhibits, and meals during the conference will be provided to all participants at NO COST beyond the $50 application fee. Welcome Reception: Friday, May 2, 2014, 7:30 pm, Keybridge Marriott Conference: Saturday, May 3, 2014, 8:00 am - 5:00 pm, Keybridge Marriott (Optional Dinner/Offsite Activity TBA) Sunday, May 4, 2014, 8:
  9. Hi Dana, Welcome to LCSC! We are sorry you had to find us, but we are so glad you did! Please keep us updated on your mom. Best Regards, Nikole
  10. Hello LCSC members. I am currently seeking a SCLC survivor to support a recently diagnosed 55 year old female with SCLC. If you can help, please message me as soon as possible. It can simply be email support to offer encouragement and hope. Please consider being a LifeLine to someone in need. Thank you so much! Thank you, Nikole
  11. Celebrating 16 years - That's great news Donna!
  12. Hi Cindy! I hope your husband is doing well with his recovery and I hope you are doing ok. Positive thoughts coming your way! Please update us when you get a chance. Take care! Best Regards, Nikole
  13. Hi Stockster! Congratulations on your one year anniversary! Positive thoughts on good news this week. Please keep us updated. We are so glad you found LUNGevity! Best Regards, Nikole
  14. We are currently looking for volunteers who want to support others impacted by lung cancer. Survivors, caregivers and families can volunteer to be a support partner and offer 1 on 1 support. Our LifeLine Support Partners volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone. LUNGevity’s LifeLine Support Partner program is utilized by dozens of hospitals and many support organizations to ensure that people impacted by lung cancer get the support the
  15. We are currently looking for volunteers who want to support others impacted by lung cancer. Survivors, caregivers and families can volunteer to be a support partner and offer 1 on 1 support. Our LifeLine Support Partners volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone. LUNGevity’s LifeLine Support Partner program is utilized by dozens of hospitals and many support organizations to ensure that people impacted by lung cancer get the support the
  16. The 2014 Lilly Oncology On Canvas Art Competition is now underway! Individuals diagnosed with any type of cancer, as well as their families, friends, and caregivers, are invited to express, through art and narrative, the life-affirming changes that give their cancer journeys meaning. Registration and Submission Deadline: June 30, 2014 http://www.lillyoncologyoncanvas.com/Pa ... tails.aspx Remember you don’t have to be a professional artist or writer. It’s the sharing of the story that counts. Presented by Lilly Oncology and the National Coalition for Cancer Survivorship (NCCS), the Lill
  17. Novartis is having their national oncology meeting in New Orleans January 12 through January 14 and they are looking for a survivor who's had a positive experience on their LDK378 trial to come and share their story. If you've had a positive experience with LDK378 and you're interested please get back to us with your contact info as soon as possible thank you! Please send your email to [email protected] Thanks, Nikole
  18. Reposting - please help if you can! Qualitative Research survey for those diagnosed with NSCLC and ALK+ gene Find A Cure Panel specializes in patient research for serious and rare diseases and conditions including lung cancer. And they are looking for U.S. patients to participate in an anonymous and confidential qualitative research for people who have the ALK+ gene. This research will be one telephone call with one moderator that will take about 45 - 60 minutes of your time. To qualify, you must: 1) Have been diagnosed with NSCLC. 2) Have been diagnosed with ALK+ gene If you participa
  19. Novartis is having their national oncology meeting in New Orleans January 12 through January 14 and they are looking for a survivor who's had a positive experience on their LDK378 trial to come and share their story. If you've had a positive experience with LDK378 and you're interested please get back to us with your contact info as soon as possible thank you! Please send your email to [email protected] Thanks, Nikole
  20. Novartis is having their national oncology meeting in New Orleans January 12 through January 14 and they are looking for a survivor who's had a positive experience on their LDK378 trial to come and share their story. If you've had a positive experience with LDK378 and you're interested please get back to us with your contact info as soon as possible thank you! Please send your email to [email protected] Thanks, Nikole
  21. We are currently looking for volunteers who want to support others impacted by lung cancer. Survivors, caregivers and families can volunteer to be a support partner and offer 1 on 1 support. Our LifeLine Support Partners volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone. LUNGevity’s LifeLine Support Partner program is utilized by dozens of hospitals and many support organizations to ensure that people impacted by lung cancer get the support the
  22. We are currently looking for volunteers who want to support others impacted by lung cancer. Survivors, caregivers and families can volunteer to be a support partner and offer 1 on 1 support. Our LifeLine Support Partners volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone. LUNGevity’s LifeLine Support Partner program is utilized by dozens of hospitals and many support organizations to ensure that people impacted by lung cancer get the support the
  23. Dr. Antoinette Wozniak on Small Cell Lung Cancer: Current Management and Future Directions June 21st, 2013 - by Dr. Jack West http://expertblog.lungevity.org/2013/06 ... irections/ I must apologize for it taking so many months to get the webinar by Dr. Antoinette (Toni) Wozniak, from Wayne State University’s Karmanos Cancer Center in Detroit, on small cell lung cancer (SCLC). There has been so much timely content from the 2012 Lung Cancer Highlights, Santa Monica Targeted Therapies in Lung Cancer Conference, and then ASCO that this never saw the light of day. Let’s rectify that. SCLC ha
  24. ASCO Update: Is Avastin Critical in First Line Therapy and Maintenance for Advanced NSCLC? June 17th, 2013 - by Dr. Jack West http://expertblog.lungevity.org/2013/06 ... al-zinner/ Here’s another video we filmed at the end of ASCO 2013, in which Dr. Pennell from Cleveland Clinic summarizes the PRONOUNCE trial that compares two different commonly used regimens for first line and maintenance therapy in advanced NSCLC. What did we learn? (Click link above to view the video) ASCO Video: PRONOUNCE Trial of carbo/taxol/avastin –> bev vs. carbo/Alimta–> Alimta
  25. Quick ASCO Summary: Potential New Options for Lung Cancer June 15th, 2013 - by Dr. Jack West http://expertblog.lungevity.org/2013/06 ... ng-cancer/ Continuing with a second part after my summary of new presentations on management options for some of our current tools against lung cancer, today I wanted to briefly cover some of the more promising new agents and approaches emerging in lung cancer at ASCO 2013. Probably the biggest story in lung cancer from last year was the anti-PD1 immunotherapy now called nivolumab, an “immune checkpoint inhibitor” that essentially turns off the brakes of
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