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LUNGevity Social Media Summary 1/7 - 2/10

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LUNGevity Social Media Summary

January 7, 2012-February 10, 2012

Here is a review of some key stories and links that were featured on our social media sites:

• ROS1: New Marker of Small Population with Apparent Big Benefit with XALKORI http://blog.lungevity.org/2012/01/07/ro ... -and-criz/

• Author Teri Simon tells the story of her 1st yr living w/ lung cancer via a series of blog posts that are full of hope: http://www.amazon.com/Perspectives-Flyi ... 202&sr=8-1

• Anti-Estrogen Treatment Shrank Lung Tumors in Mice: http://health.usnews.com/health-news/fa ... rs-in-mice

• What tips or advice would you give someone on the importance of communicating and talking about lung cancer? http://blog.lungevity.org/2012/01/10/ta ... ng-cancer/

• JamieY posted on LCSC today:

"Had my follow up scan today and the results are in.....

I am 7 years and 1 month (lung) cancer free.

I was originally diagnosed with Stage IIIB Adenocarcinoma in December of 2004......I have been taking Tarceva for over 6 1/2 years now. It was a great day!! I pray that others have the same results!!!!"




• Breathe Deep Bloomsbury: in Memory of Roberta Crisman: http://events.lungevity.org/site/TR?fr_id=3190&pg=entry

• DIY Healthcare is Here: http://blog.lungevity.org/2012/01/12/di ... e-is-here/

• Too young to be a sandwich: http://blog.lungevity.org/2012/01/12/to ... -sandwich/

• Understanding Resistance to ALK Inhibitor Therapy: Repeat Biopsies Provide New Insights http://blog.lungevity.org/2012/01/13/me ... alk-inhib/

• Make it a day of service. You can celebrate MLK Day by signing up and volunteering for LUNGevity. Contact us today. Info@lungevity.org

• Watch the new video by BREATHE DEEP DEERFIELD: To Fund Lung Cancer Research and visit http://www.lungevity.org/deerfield to register today!

• Coast-to-coast, LUNGevity has the largest national network of grassroots events aimed at raising money for life-saving lung cancer research and creating awareness about the disease. We are grateful to all the passionate volunteers who make these events possible. Do you have an event in your area? Join or start one today! http://events.lungevity.org/site/PageSe ... =v2_Events

• Caregiver Resource Center: Ways 2 ask 4 help from friends/family, get support from other caregivers, end-of-life issues http://ow.ly/8n1WE

• Show ur support 4 LUNGevity Foundation - branded clothing & merchandise now available through CafePress: http://ow.ly/8n5bk

• LUNGevity's Lung Cancer Clinical Trials Matching Service, FREE service to find the best clinical trial options for you: http://ow.ly/8nmCT

• Personalize your awareness wristband in support or in memory of someone you love w/ Life-Links: http://ow.ly/8okXp

• LUNGevity Link Up: Uniting people who are passionate & committed to ending lung cancer, REGISTER today/join the fight: http://ow.ly/8qeXQ

• U can make a difference in the fight against lung cancer! By making a donation today, u can help save lives tomorrow: http://ow.ly/8qfdz

• Are u a lung cancer survivor or co-survivor seeking 1-on-1 support? Get matched w/ LUNGevity's LifeLine Support Partner http://ow.ly/8r9om

• LUNGevity's Ask the Experts: Powered by doctors - providing expert information to you about lung cancer... http://ow.ly/8sjGj

• Sending our thoughts to Speaker Lujan who announced that he has lung cancer, won't seek re-election http://shar.es/WBg0j

• LUNGevity Announces Winner of Annual Caregiver Contest http://blog.lungevity.org/2012/01/18/ca ... st-winner/

• Caregiver Resource Center now on Facebook: https://www.facebook.com/pages/Caregive ... 9204786562

• LUNGevity supporters sell items on eBay & a portion of the proceeds to LUNGevity, raising $ 4 lung cancer research: http://ow.ly/8ArRw

• Some New Insights About T790M Mutations and Resistance to Oral EGFR Inhibitors http://blog.lungevity.org/2012/01/20/t7 ... -behavior/

• With early diagnostic tools and lung cancer research, the 400 people who die DAILY from lung cancer would have more of a fighting chance.

Support LUNGevity, the largest lung cancer organization and the largest private funder of lung cancer research, in the fight against lung cancer. Our thoughts go out to the family of Joe Paterno and the other families who lost a loved one today.

• ‎"Raising Awareness", by Heather Geraghty http://blog.lungevity.org/2012/01/23/raising-awareness/

• Got a pic you want to share? Email it to kbrown@Lungevity.org Visit our picture boards on Pinterest. http://pinterest.com/lungevity/

• LUNGevity Foundation’s Lung Cancer Support Community (LCSC) is a dedicated social network offering support to anyone touched by lung cancer. Created in 2002, LCSC is the largest online lung cancer support network providing users with an extensive message board, the latest lung cancer information, 24-hour support, a telephone buddy program,(Life Line Support Partners), and notice for lung cancer events and advocacy opportunities that fund LUNGevity’s lung cancer research! http://events.lungevity.org/site/PageSe ... me=v2_LCSC

• Perhaps one more piece of the puzzle, "Some New Insights About T790M Mutations and Resistance to Oral EGFR Inhibitors" http://blog.lungevity.org/2012/01/20/t7 ... -behavior/

• CancerCare Connect Educational Workshops http://www.cancercare.org/connect_workshops

• Take a moment and share the page and ask your friends to "like" it and share it too. Thank you for joining us in the fight against lung cancer. https://www.facebook.com/lungevity

• Upcoming Webinar: Molecular Markers in Advanced NSCLC: Who to Test and What to Test For--Wednesday, February 22, 2012 http://events.lungevity.org/site/PageSe ... s_webinars

• AARP Prime Time Radio Interview: LUNGevity's President, Andrea Stern Ferris. Listen now! http://ow.ly/931r8

• Jim S., a 9 year stage IV lung cancer survivor, nominated his wife Cyndi for LUNGevity’s Caregiver Contest. With his permission, we are posting his winning nomination. http://events.lungevity.org/cg/contest.html

• Share with us how you deal with SCANXIETY... http://www.time.com/time/specials/packa ... 07,00.html

• Concern about Long-Term Recurrences after SBRT: More than We Might Expect? http://blog.lungevity.org/2012/01/27/sbrt-recurrences/

• Featured Researcher: David Carbone. "The people at LUNGevity are dedicated and effective advocates and I’m honored to be involved with helping them.” http://events.lungevity.org/site/PageNa ... rbone.html

• A good article: There may not always be a remission or a cure...but great care during the cancer journey is SO important. Thoughts? http://blogs.webmd.com/cancer/2012/01/w ... -care.html

• "Friends Are Caregivers Too", by Julie Guarducci http://blog.lungevity.org/2012/01/30/fr ... ivers-too/

• Join us Sunday, April 1, 2012 for Breathe Deep Ann Arbor (MI) to participate or volunteer, contact us today! http://events.lungevity.org/site/TR?fr_id=3281&pg=entry

• Breathe Deep Blue Ridge is a 5K walk/fun run through the apple blossoms at Mercier Orchards April 7, 2012. This event is planned and managed by the Mercier Family Orchards in Blue Ridge, Georgia. http://events.lungevity.org/site/TR?fr_id=3310&pg=entry

• The Right Setting for “Local Therapy” in Advanced Lung Cancer http://blog.lungevity.org/2012/02/03/th ... ng-cancer/

• HOPE sterling chain ring, a subtle reminder of the importance and healing that comes with HOPE. http://www.etsy.com/listing/65981701/lu ... chain-ring

• Caring for Lung Cancer Patients http://blog.lungevity.org/2012/02/07/ca ... -patients/

• "Our Experience (with LC) Can Help Others", by Megan Giblin http://blog.lungevity.org/2012/02/06/ou ... lp-others/

• Did you know with LUNGevity you can establish a Tribute Fund in honor/memory of an individual, family or event? It’s a great way to celebrate someone you love: http://ow.ly/8U4Km

Find us on Facebook http://www.facebook.com/lungevity

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